Changing stroke rehab and research worldwide now.Time is Brain! trillions and trillions of neurons that DIE each day because there are NO effective hyperacute therapies besides tPA(only 12% effective). I have 523 posts on hyperacute therapy, enough for researchers to spend decades proving them out. These are my personal ideas and blog on stroke rehabilitation and stroke research. Do not attempt any of these without checking with your medical provider. Unless you join me in agitating, when you need these therapies they won't be there. Did your doctor somehow miss the recovery protocol that Pedro Bach-y-Rita used to recover fully back in 1958 with only a partial brain?

What this blog is for:

My blog is not to help survivors recover, it is to have the 10 million yearly stroke survivors light fires underneath their doctors, stroke hospitals and stroke researchers to get stroke solved. 100% recovery. The stroke medical world is completely failing at that goal, they don't even have it as a goal. Shortly after getting out of the hospital and getting NO information on the process or protocols of stroke rehabilitation and recovery I started searching on the internet and found that no other survivor received useful information. This is an attempt to cover all stroke rehabilitation information that should be readily available to survivors so they can talk with informed knowledge to their medical staff. It lays out what needs to be done to get stroke survivors closer to 100% recovery. It's quite disgusting that this information is not available from every stroke association and doctors group.

Showing posts with label Action Plan for Stroke in Europe. Show all posts
Showing posts with label Action Plan for Stroke in Europe. Show all posts

Thursday, December 25, 2025

Europe’s new Cardiovascular Health Plan: Stroke must not be left behind

 YOU WILL have to hold their feet to the fire, because I'm sure NOTHING WILL COME OF THIS until after they are the 1 in 4 per WHO that has a stroke and they realize they DID NOTHING ABOUT RECOVERY! 100% recovery is the only goal in stroke! GET THERE!

Europe’s new Cardiovascular Health Plan: Stroke must not be left behind


SAFE and the European Stroke Organisation welcome the publication of the European Commission’s EU Cardiovascular Health Plan. For the first time, the EU has recognised the urgent need for coordinated action on cardiovascular health, the leading cause of mortality and disability in Europe. 

The Plan includes many positive commitments for stroke, including a strong focus on prevention, national cardiovascular health plans by 2027, rehabilitation, innovation and tackling inequalities. These measures have real potential to improve outcomes for millions of people. 

In addition, this week the OECD published its report ‘The State of Cardiovascular Health in the European Union’. It confirmed that stroke remains Europe’s second leading cause of death from cardiovascular disease and a major contributor to acquired long-term disability.

It also highlighted that stroke prevention, acute care, rehabilitation and long-term support remain fragmented and unequally available across the EU. 

Our joint response makes clear that for the Plan, framed as the ‘Safe Hearts’ plan, to deliver meaningful impact, stroke must be explicitly integrated across all pillars of action. We highlight key areas where further ambition is needed, including access to specialised stroke units, emergency pathways, structured secondary prevention, rehabilitation, life after stroke and research. 

SAFE and ESO will work with EU institutions, Member States and partners to ensure that stroke receives the prioritisation it deserves.

Thursday, October 23, 2025

Stroke takes centre stage at a European Parliament event: A call to close the gaps in stroke care across Europe

 What absolute stupidity; survivors WANT 100% RECOVERY NOT 'CARE'! Do your ever actually talk to survivors?

Stroke takes centre stage at a European Parliament event: A call to close the gaps in stroke care across Europe

On Tuesday, stroke took centre stage at a European Parliament event in Brussels, where policymakers, people with lived experience, healthcare professionals, researchers, stroke support organisations and stroke advocates came together to call for urgent action to address lack of stroke research and persistent inequalities in stroke prevention, treatment and long-term care(NOT RECOVERY!) across Europe. 

The recent World Health Organisation ‘Global status report on neurology’ highlights that stroke is the top neurological disorder contributing to health loss globally. Europe faces over 1.1 million strokes each year, causing nearly 460,000 deaths. Nearly 10 million people live with stroke’s long-term effects. The economic burden is immense and is projected to rise to €86 billion by 2040 without urgent reform. Stroke is the second leading cause of death and the leading cause of adult disability in Europe. 

The event, “Closing the Gaps in Stroke care(NOT RECOVERY!): A Call to Action for Europe”, hosted by MEP Kelleher (Ireland) and MEP Jerkovic (Croatia), Stroke Alliance for Europe (SAFE) and the European Stroke Organisation (ESO), highlighted the critical need to act now and embed stroke as a key pillar into the upcoming EU Cardiovascular Health Plan and broader brain health strategies, and to use the Stroke Action Plan for Europe as the framework for this. 

 Oh God, what a fucking waste. You didn't even talk to any of the 10 million yearly survivors, did you? The four points listed are not what survivors want. Survivors want 100% recovery and these problems in stroke needing to be solved.

Ever heard of the Stroke Action Plan? European Stroke Action Plan 2018-2030

“Too many lives are cut short or permanently altered because access to prevention, acute treatment, rehabilitation and long-term support depends on where you live,” said Arlene Wilkie, Director General of SAFE, “With the upcoming publication of the Stroke Action Plan for Europe, we now have a clear roadmap. What we need is EU leadership to help Member States turn this evidence into action.” 

The event featured contributions from Members of the European Parliament – Billy Kelleher (Ireland) and Romana Jerkovic (Croatia), Marianne Takki from DG Sante, Katherine de Bienassis from the Organisation for Economic Co-operation and Development (OECD), people with lived experience, ESO and SAFE. 

Discussions underscored the urgent need for a coordinated European approach to closing the gaps in stroke care(NOT RECOVERY!), supported by stronger alignment between EU and national health policies across five key areas:  

  • Prevention: Systematic screening for hypertension and atrial fibrillation, sharing best practices across Member States. 
  • Acute care(NOT RECOVERY!): Expanding access to dedicated stroke units, emergency coordination and life-saving interventions such as thrombolysis and thrombectomy. 
  • Rehabilitation: Ensuring early, intensive, multidisciplinary rehabilitation with EU support for scaling up community and outpatient services. 
  • Life after stroke: Embedding long-term support, including mental health and reintegration programmes in national frameworks. 
  • Research and monitoring: Establishing EU-wide registries, quality indicators and embedding stroke in EU health and research agendas. 

 

Wednesday, July 2, 2025

Kyrgyzstan joins the fight against stroke by signing the Stroke Action Plan for Europe declaration

 What a fucking pile of lazy shit. NOTHING to address these many problems in stroke. 
And these are our stroke 'leaders'?

1. Only 10% of patients get to full recovery.
2. tPA only fully works to reverse the stroke 12% of the time. Known since 1996.
3. No protocols to prevent your 33% dementia chance post-stroke from an Australian study.
4. Nothing to alleviate your fatigue.
5. Nothing that will cure your spasticity.
6. Nothing on cognitive training unless you find this yourself.
7. No published stroke protocols.
8. No way to compare your stroke hospital results vs. other stroke hospitals.

Kyrgyzstan joins the fight against stroke by signing the Stroke Action Plan for Europe declaration

Congratulations!

Kyrgyzstan is now the 15th country to endorse the Declaration for Action on Stroke, marking a significant step towards improving stroke care, prevention and recovery services for its population.

By signing this declaration, Kyrgyzstan’s government demonstrates its commitment to recognising stroke and other cerebrovascular diseases as leading causes of premature death, long-term disability and cognitive decline among adults. The declaration emphasises that many strokes are both preventable and treatable through evidence-based, cost-effective interventions.

With this endorsement, Kyrgyzstan pledges to fully support the implementation of the Stroke Action Plan for Europe, aligning with its four key targets for 2030 and the broader goals of the WHO Global Action Plan for the Prevention and Control of Noncommunicable Diseases.

Read more here.

Monday, April 1, 2019

SAFE(Stroke Alliance for Europe) calls upon politicians to give stroke the same attention given to cancer and mental diseases

But first you have to acknowledge that everything in stroke is a complete failure. 

Your 2030 Stroke Action Plan for Europe is a fucking waste. You didn't even talk to any of the 10 million yearly stroke survivors, Did you? The four points listed are not what survivors want. Survivors want 100% recovery and these problems in stroke needing to be solved. 

Four over-arching targets for 2030 were identified:

  1. To reduce the absolute number of strokes in Europe by 10%
  2. To treat 90% or more of all patients with stroke in Europe in a dedicated stroke unit as the first level of care (Care, NOT results)
  3. To have national plans for stroke encompassing the entire chain of care from primary prevention to life after stroke
  4. To fully implement national strategies for multisector public health interventions to promote and facilitate a healthy lifestyle, and reduce environmental (including air pollution), socioeconomic and educational factors that increase the risk of stroke.

 

SAFE(Stroke Alliance for Europe) calls upon politicians to give stroke the same attention given to cancer and mental diseases

Brussels, 28 March 2019- The Stroke Alliance for Europe (SAFE) organised today the event ‘Joining forces to prevent and control non-communicable diseases: The role of policy in tackling stroke’, under the patronage of the Romanian Presidency of the Council of the European Union, in Brussels, at the European Committee of the Regions. The event was organised by SAFE in collaboration with the European Stroke Organisation and the Romanian National Stroke Association.
The panel participants have put many proposals on the table. The most important request is for forming a stroke related sub-group for the purpose of facilitating the implementation of the Stroke Action Plan for Europe, the same as has been done for cancer and mental health.
As Jon Barrick, SAFE President stressed in his opening speech, the topic discussed today is of extreme importance: Stroke is the second most common cause of death in Europe, with nearly one hundred thousand (988,000) deaths each year[1]. In Europe, over 13% of women and 9% of men die from this disease (data from the MEP Hearth Group of the European Parliament).
In 2018, SAFE and ESO released the “Stoke Action Plan for Europe 2018-2030”, which proposes a holistic approach to stroke management, from prevention to acute care, rehabilitation and life after stroke. The report sets out minimum targets to be reached by every European country, to equilibrate the quality of care across Europe.
“Romania is definitely trying to put an end to inequalities in stroke care across the country, and we hope to see the same thing achieved at European level” said Tiberius-Marius Brădățan, Secretary of State, Ministry of Health of Romania. “We think that this is now possible thanks to the Stroke Action Plan for Europe that SAFE and ESO have released. If implemented, the Action Plan will underpin the step change in stroke care that is required to reduce the devastating impact that this condition has on individuals, their families and Member States’ economies.”
Effective healthcare planning and adequate resource allocation across Europe is needed to deal with this public health challenge, taking into account that the emotional and financial burden of stroke is largely borne by stroke survivors themselves and their families.
“Stroke remains a major cause of disability and death, but the opportunities to curb the effects of stroke have dramatically improved”- said Prof. Bo Norrving, who chaired the European Action Plan for Stroke 2018-30 steering committee, adding “While we are discussing the implementation of the  European Stroke Action Plan, strokes continue to occur, and patients continue to get substandard care – becoming disabled or dying. Time to go from table to practice is now!”
Sorin Tuță, Vice-president of the Romanian National Stroke Association (ANRS), said that although Romania faces 61.500 new strokes each year, things have significantly improved in the past several years, especially in the domain of the acute stroke treatment, with 32 new stroke ready hospitals in 2019.
SAFE President and the representatives from the Romanian EU Presidency
“Romanian Registry for Interventional Treatment in Stroke was established in 2014 and stroke patients are treated almost exclusively by neurologists” stressed out Cristina Tiu, President Elect of the Romanian Neurology Society.
Prof. Tiina Laatikainen, from the Institute of Public Health and Clinical Nutrition, Finland, said that, even though the emergency care well organized and those hospitals not having neurologists 24/7 achieve consultancy by telestroke service, there are still challenges, such as endovascular treatments not available 24/7 in the whole country due to lack of angioradiologists, less than 15 % of patients achieve adequate rehabilitation and every fourth working aged stroke patient do not return to work (disability pension).
Thanking all discussion participants and the EU Romanian Presidency and the Committee of Regions for their support, Jon Barrick concluded the session by saying: “We have the scientific community and patients aligned. We have the will of European, national and regional decision-makers, and industry partners who are here today to give their support to future activities aimed at improving stroke prevention, treatment and research. I would therefore like to call upon the future European leaders, and upon the Member States, to work together to achieve the 2030 goals as set by the “2030 Stoke Action Plan for Europe.”

Tuesday, January 29, 2019

Ever heard of the Stroke Action Plan? European Stroke Action Plan 2018-2030

Oh God, what a fucking waste. You didn't even talk to any of the 10 million yearly survivors, Did you? The four points listed are not what survivors want. Survivors want 100% recovery and these problems in stroke needing to be solved.

Ever heard of the Stroke Action Plan? European Stroke Action Plan 2018-2030


Following the launch of its European Stroke Action Plan 2018-2030, the European Stroke Organisation discusses with Health Europa the world of stroke care.

Recently, the European Stroke Organisation (ESO) released a major policy document – the European Stroke Action Plan (ESAP) for the years 2018 to 2030.1 The action plan will serve as an important source of reference on actions needed to increase efforts to prevent stroke and to improve stroke services. The document was prepared in co-operation with the Stroke Alliance for Europe (SAFE), the alliance of patient organisations.
The European Stroke Action Plan was prompted by accumulating insights on the need to substantially change the attention given to stroke in a policy and priority perspective so that efforts, actions and investments should be proportional to the effects of stroke on public health. Stroke is the second most common cause of death in Europe. Every year, up to 1.3 million people in Europe suffer a first-ever stroke.
Consequently, the socioeconomic impact of stroke is considerable, with an annual cost in Europe of up to €45bn. Projections predict that the overall stroke burden in Europe will have further increased another 35% by the year 2050 due to, for the most part, ageing of the population. Based on recently published studies, the age-standardised incidence of stroke in Europe at the beginning of the 21st Century ranged from 95 to 290/100,000 per year.
Specifically, while an overall decline in stroke incidence was noted in the last two decades, several Central and Eastern European countries are still experiencing increasing rates in stroke incidence and stroke-related mortality. However, there is growing evidence that acute strokes will be both more preventable and treatable in the near future. In only a few decades, scientific advances such as stroke unit care, thrombolytic therapy and thrombectomy have dramatically changed the possibilities to treat acute stroke and improve the prognosis.
There are considerable variations in the quality of care for stroke patients in Europe, both between and within countries. ESO, the European Society of Minimally Invasive Neurological Therapy (ESMINT), the European Academy of Neurology (EAN) and the patient organisation SAFE performed a survey of scientific societies and stroke experts,2 in which the best available information on access to and delivery rates of these treatments was collected from 44 out of 51 European countries.
The estimated mean number of stroke units was 2.9 per million inhabitants (95% CI 2.3–3.6) and 1.5 per 1,000 annual incident strokes (95% CI 1.1-1.9), respectively. Intravenous thrombolysis was provided in 42 of 44 countries. The average treatment rate was 7.3% of incident ischaemic stroke patients for intravenous thrombolysis (95% CI 5.4–9.1), and 1.9% for endovascular treatment (95% CI 1.3–2.5). However, countries with the highest rates reached proportions of treated patients of 20% and 6%, respectively. Despite scientific evidence and clinical guideline recommendations, this data shows that too many patients are not treated in stroke units and centres that can offer the best evidence-based treatment in the acute phase.
The European Stroke Action Plan builds on two previous pan-European consensus meetings, the 1995 and 2006 Helsingborg meetings, which were convened to review the scientific evidence and the state of current services, and to set targets for the development of stroke care for the decade to follow.
The ESAP adheres to the format of the Helsingborg Declarations, presenting a review of the ‘state of the art’, the state of current services, research and development priorities, and targets for the main domains in stroke care (Primary Prevention, Organisation of Stroke Services, Management of Acute Stroke, Prevention, Rehabilitation, Evaluation of Stroke Outcome and Quality Assessment, and Life After Stroke).
For each domain of the European Stroke Action Plan 2018 to 2030, specific targets were set. Beyond these targets, four over-arching targets for 2030 were identified:
  1. To reduce the absolute number of strokes in Europe by 10%
  2. To treat 90% or more of all patients with stroke in Europe in a dedicated stroke unit as the first level of care (Care, NOT results)
  3. To have national plans for stroke encompassing the entire chain of care from primary prevention to life after stroke
  4. To fully implement national strategies for multisector public health interventions to promote and facilitate a healthy lifestyle, and reduce environmental (including air pollution), socioeconomic and educational factors that increase the risk of stroke.
Speaking to Health Europa, ESO’s Bart van der Worp, Valeria Caso, and Bo Norrving discuss the European Stroke Action Plan in more detail and consider what can be done to improve stroke treatment and care in Europe.

Stroke remains one of the leading causes of death and disability in Europe despite being preventable – do you think this is indicative of a lack of commitment to address the disease on the part of policymakers and health authorities?

The prevention of stroke(Fuck, stop talking about prevention. Is curing stroke too hard? You aren't a leader and aren't willing to tackle any of the

BHAGs(Big Hairy Audacious Goals) of 100% recovery for all survivors? Then step aside and let survivors lead.)

is a commitment shared between governmental bodies/ministries of health, healthcare planners and administrators, and healthcare professionals. The activities of all of these actors have for a long time been insufficient, and changes have been slow, as shown by the follow-up of the WHO Global Action Plan on non-communicable diseases. Governmental actions are important as they can lead to population changes in lifestyle factors like physical activity, smoking, alcohol use, and diet.
But the lesson learnt is that implementing health-promoting changes is difficult and may be counteracted by economic interests from industry and a political inertia to taxations and legislations that may meet resistance from voters. Nevertheless, case studies have shown that governmental actions are indeed possible and can lead to substantially reduced risk of stroke.

What main actions will be needed to successfully reduce the absolute number of strokes in Europe by 10%, and do you believe this is a realistic target?

The actions needed are set out in the European Stroke Action Plan, and include primary preventive actions on lifestyle risk factors on a population level and blood pressure control, as well as secondary preventive therapies like antiplatelet therapy, other antithrombotics, carotid surgery, lipid-lowering treatment, and blood pressure control.
An important component in reducing the risk of stroke is treating patients with atrial fibrillation with anticoagulants, both before a first stroke occurs and after an ischaemic stroke.
The absolute number of strokes is influenced by three main factors: population growth, population ageing, and the risk of having a stroke. Recent data have shown that the effects on population growth and ageing can indeed be counterbalanced by a reduction in the risk of stroke (by better primary and secondary prevention), resulting in a decrease in the absolute number of strokes.
For example, in Sweden, the absolute number of ischaemic strokes decreased by 17% from 2010 to 2017, providing a proof-of-principle that it is possible to make changes of the magnitude targeted in the action plan. Reducing the absolute number of strokes will be needed to prevent the capacity of the health systems from ‘flooding’.

What can be done to widen access to and reduce variations in quality stroke care?

A first step is to have reliable information on the quality of stroke care. In some European countries, national quality registers for stroke are in place, and similar registers need to be established in all the European countries. You cannot follow a development, the progress of implementation, and changes in inequalities without robust data.
ESO started a quality improvement programme3 which is composed of the following pillars in order to reduce inequalities in European stroke care:
  1. ESO-EAST (Enhancing and Accelerating Stroke Treatment),4 which is the first comprehensive programme for improving stroke care in Eastern Europe through the participation of stroke professionals, professional organisations and local authorities in these countries. ESO-EAST is planned to run at a minimum for the period 2015-2019
  2. Endorsement of the Angels Initiative in 2016 which has the declared mission of increasing the number of patients treated in stroke-ready hospitals and to optimise the quality of treatment in all existing stroke centres
  3. Stroke Unit and Stroke Centre Certification based on standardised application forms and guidelines for national and international auditors. Key features of this certification are the availability of trained personnel, diagnostic equipment, acute treatment and collaboration with other stroke caregivers.

How did you arrive at the research priorities outlined in the Action Plan for Stroke in Europe 2018-2030?

This was a sequential process. For each domain, two persons had a main task to draft potential research areas. These were then further developed within each domain, and later on co-ordinated and aligned across all the different domains.
The entire process was transparent, open to public comments and input, and free from involvement of the industry. A separate working group identified research priorities for translational stroke research.

What are the next steps with the European Stroke Action Plan?

After the preparation and release of the ESAP in 2018, the implementation phase has now started and is currently being set up by ESO. In the pipeline are promotion of quality registers, monitoring of progress, establishing networks of national societies, and much advocacy work.
The ESO is confident that the ESAP will have a major influence as it builds on two important established facts: stroke is highly preventable and stroke is highly treatable.

Wednesday, May 23, 2018

The Stroke Action Plan for Europe launched at 2nd EU Stroke Summit

What a fucking pile of lazy shit. NOTHING to address these many problems in stroke. 
And these are our stroke 'leaders'?

1. Only 10% of patients get to full recovery.
2. tPA only fully works to reverse the stroke 12% of the time. Known since 1996.
3. No protocols to prevent your 33% dementia chance post-stroke from an Australian study.
4. Nothing to alleviate your fatigue.
5. Nothing that will cure your spasticity.
6. Nothing on cognitive training unless you find this yourself.
7. No published stroke protocols.
8. No way to compare your stroke hospital results vs. other stroke hospitals.

http://www.safestroke.eu/2018/05/23/the-stroke-action-plan-for-europe-launched-at-2nd-eu-stroke-summit/
The Stroke Action Plan for Europe 2018-2030 was launched today in the EU Parliament within the 2nd Stroke Summit.
Last year, in May 2017, SAFE launched the Burden of Stroke Report which unveiled shocking disparities between and within European countries along the entire stroke care pathway. In order to take action, SAFE and the European Stroke Organisation (ESO) decided to formalise their partnership which has led, after extensive consultation and tireless work, to the creation of the Stroke Action Plan for Europe 2018-2030.
This document sets important targets covering seven key pillars, from primary prevention to life after stroke. The report was launched today at the 2nd Stroke Summit in the European Parliament in front of around 70 key stakeholders including patients, healthcare professionals and policy-makers. The event was co-hosted by MEP Elena Gentile (S&D, IT), who showed her support to stroke survivors and stroke-related issues across Europe.
All the speakers welcomed the Stroke Action Plan and saluted the effort made by SAFE and ESO in making the Stroke Action Plan for Europe possible. It provides a clear road map and outlines recommendations and targets for 2030 so that all relevant stakeholders take action to improve the stroke care pathway and reverse the current trends.
Currently, an increase of 34% in the absolute number of strokes is expected by 2035 in Europe, along with a 45% increase in the number of stroke deaths, and a 25% increase in the number of survivors living with the long-lasting effects of stroke. Action needs to be taken to prevent stroke more efficiently, provide timely and adequate treatment and rehabilitation to those who need it, and last but not the least, to improve the lives of stroke survivors and their families across Europe by providing the right level of support in their Life After Stroke.
Please see the Agenda of the 2nd Stroke Summit here.

The speakers at the 2nd Stroke Summit

Elena GENTILE, Member of the European Parliament (S&D, IT)
Jon BARRICK , President, Stroke Alliance for Europe
Bart VAN DER WORP, President, European Stroke Organisation
Tairi TAHT – Counsellor for Health Affairs, Permanent Representation of Estonia to the EU
Grethe LUNDE – Treasurer, Stroke Alliance for Europe
Tamsin ROSE – Facilitator and Trainer
Silvia VILLANUEVA – Project Officer of Scientific Research, Unit E4 – Non-communicable diseases and the challenge of healthy ageing, DG for Research and Innovation (DG RTD)
Zinta PODNIECE – Deputy Head of Unit, Unit B3 – Health and Safety, DG for Employment, Social Affairs & Inclusion (DG EMPL)
You can see all speakers’ biographies on this link.
You can download the Stroke Action Plan for Europe 2018-2030 Recommendations by clicking on this image below.