Perfect world of stroke rehab - running again

I know most of you don't think this is possible, but for those who want to try, you can see some successes here.  This is obviously something our therapists need to set up a protocol for.  I doubt I'll ever be able to run again until my spasticity is cured, and my left foot actually points straight ahead. 

If your doctor doesn't ask you about running again, they have accepted they know nothing and will do nothing to get you recovered

ACTUALLY Running Free! Yeah, She Did it!

Advocate Condell Stroke Survivor Set to Run Chicago Marathon

Stroke survivor clocks 1000 kilometres 
Have your therapist lay out a step by step process(That's called a protocol, not a guideline!) for you to accomplish this if you want to. Challenge them to use their neurons in a new and exciting way.

I bet there is zero chance your doctor and therapists have any protocol to get you running again. But if you are willing to try this dangerous activity on your own, I'd suggest the book; 'Teaching Me to Run' by Tommye-K. Mayer. Don't do this without your doctor's prescription. 

 
A year after a stroke, Mundelein man calls marathon ‘the ultimate test of my recovery’
Stroke survivor recovers to run the NYC Marathon

Perfect world of stroke rehab - recovery plan

From a conversation with another survivor points out the current situation.
Not good.

Lead, Follow, or GET OUT OF THE WAY!

Doesn't this just about sum up our feelings about the role doctors and therapists should play?

The one thing that pisses me off more than any other is this.  The identification and implementation of a recovery plan is apparently NOT the responsibility of doctors or therapists.  Isn't it ironic that they still maintain that proprietary attitude when a patient appears to be trespassing into what they perceive as their realm.  They manage to dismiss our ideas while effectively providing none of their own.

I once brought in an article on hand recovery using the Saeboflex. My doctor totally dismissed it, I don't think he had even thought or researched it at all. He was just never going to listen to a patient's ideas. I was so fucking mad I left him and went to a different doctor telling him the only reason I was using him was to get the Saeboflex even though my extension was not enough to meet the criteria for use. I really hated the Saeboflex, the bead chains for adjusting the tension are almost impossible to adjust one-handed and just getting it on was an extreme challenge. When I complained to Saeboflex their excuse was that the unit was supposed to be used with a therapists help. In my opinion, bad design since all stroke rehab implements should be able to be put on solo one handed with no outside interventions. 

Perfect World!!!

With decent scientific therapy protocols this could be resolved.  
This is the 100% recovery plan.

The perfect world of stroke rehab

If your doctor, therapists and stroke hospital are not working towards this, you have cesspools of fuckingly incompetent medical providers. This will never occur under current stroke leadership, it totally breaks the profit model your stroke medical world is working under.

1. Your doctor has a 3d rotatable map of your brain and its' dead and damaged areas. Each area is labeled with what the external effects or disabilities from the damage is.
2. Each effect/damaged area has stroke protocols attached with efficacy ratings, leading to 100% recovery.
3. Your medical wearables tell you if you are doing the suggested exercises from the protocols correctly.  No real need for actual therapist contact.
4. No real need for a doctor either.
5. And the only way that rehab has any chance of getting you recovered is if your stroke hospital has protocols for stopping the 5 causes of the neuronal cascade of death in the first week, allowing billions of neurons to die. I lost 5.4 billion neurons that first week, it is the reason I did not fully recover. 

What your perfect stroke doctor and hospital should be doing

The ambulance ride should already have determined if you had an ischemic vs. hemorrhagic stroke so as soon as you hit the ER you can get tPA if necessary. Either through the tricorder possibly thru one of these 17 ways.
Your doctor does an MRI scan to determine the extent of the dead area.
Your doctor does a PET scan to determine the penumbra or bleed damage area.
Both scans are used to create a 3d mapping of the death/damage.

Damages to organs detected in 3-D holograms

3D Brain Viewer for the Allen Atlas

That knowledge is imparted to all the therapists so they can follow the stroke protocols that will lead back to 100% recovery.
The first week will have variations on these 177 possibilities that will stop the neuronal cascade of death. MRIs will be used to validate that the neuronal cascade of death has been stopped.
For the completely dead areas neuroplasticity research has identified exactly how to relocate functions. Maybe through

The Good, the Bad and the Ugly - neurons

Dead brain rehab/chronic is discussed in this post:

http://oc1dean.blogspot.com/2014/01/what-dr-richard-harvey-of-ric-should.html 

 

Your doctor and hospital will throw out lots of excuses why this can't be done. I don't give a shit why they can't do this, if not they are totally fucking incompetent.  Scream that in their faces. Its probably the only way we will ever get to having decent stroke rehab.  I want to hear about arrested stroke patients in hospitals.
Challenge your doctor to have something better than this for a plan. 
100% recovery is the ONLY goal.

Obvious problems in the stroke world - perfect world

Anyone just by examining stroke for a while will immediately come to the conclusion that it is totally f*cked up.
1. We don't have an objective way to diagnose stroke. I have heard of waiting 30 hours in the ER to resolve to external physical symptoms.
2. The only drug usable in the first hours is tPA and that has an appalling efficacy(12%).
3. No damage diagnosis ever seems to be given. With no diagnosis there is no way to map therapy that works to the damage. Thus no repeatable protocols can be established.
4. We don't have standardized stroke therapy protocols. This can be traced directly to the canard,' All strokes are different, all stroke recoveries are different'. This stupidity needs to stop being repeated.
5. We don't have a coherent way to state how to reduce your stroke risk. Using 'Eat healthy, get exercise', is pure laziness.
6. There is no knowledge of how neuroplasticity works. We know it works, we don't know how to make it work on command. Thus making it nonrepeatable as a therapy.
7. No distinction or understanding of the differences needed to recover the penumbra functions vs. the dead brain functions. One therapist used the Shout louder and they will move protocol.
8. Our stroke associations and the world stroke organization have no clue how ineffective they are. Their heads are in the sand thinking that all they have to do is warn people about stroke risks and give them bland admonishments to exercise, eat better and promote F. A. S. T.
9. F. A. S. T. is a failure, it may save more lives but does  little for preventing disability