Changing stroke rehab and research worldwide now.Time is Brain! trillions and trillions of neurons that DIE each day because there are NO effective hyperacute therapies besides tPA(only 12% effective). I have 523 posts on hyperacute therapy, enough for researchers to spend decades proving them out. These are my personal ideas and blog on stroke rehabilitation and stroke research. Do not attempt any of these without checking with your medical provider. Unless you join me in agitating, when you need these therapies they won't be there.

What this blog is for:

My blog is not to help survivors recover, it is to have the 10 million yearly stroke survivors light fires underneath their doctors, stroke hospitals and stroke researchers to get stroke solved. 100% recovery. The stroke medical world is completely failing at that goal, they don't even have it as a goal. Shortly after getting out of the hospital and getting NO information on the process or protocols of stroke rehabilitation and recovery I started searching on the internet and found that no other survivor received useful information. This is an attempt to cover all stroke rehabilitation information that should be readily available to survivors so they can talk with informed knowledge to their medical staff. It lays out what needs to be done to get stroke survivors closer to 100% recovery. It's quite disgusting that this information is not available from every stroke association and doctors group.

Showing posts with label crowdfunding. Show all posts
Showing posts with label crowdfunding. Show all posts

Monday, May 27, 2019

PSA on Crowdfunding Aphasia film

The campaign video can be viewed here, which also includes a video about PACT(Philadelphia Aphasia Community at Temple): https://www.indiegogo.com/projects/buried-words-stroke-survivor-film-fundraiser#/
The goal of the film is to raise awareness and funds to support aphasia therapy groups. We have recently launched a crowdfunding campaign on Indiegogo, just ahead of National Aphasia Awareness Month in June, where 50% of all contributions raised in the campaign will be given to a Philadelphia-based organization that provides free support groups and therapy to patients with aphasia, the Philadelphia Aphasia Community at Temple (PACT).
This is one of the few times I promote something else.  I can be a good boy instead of the raging arrogant stiff I present as. 

Saturday, October 22, 2016

American Brain Foundation strategy change

At least they came up with the idea of crowdfunding research even after they denied my application to become one of their directors, they wanted a money tree shaker rather than an idea person.  Now if they actually come up with a strategy on how to solve all the problems in stroke and dementia.
http://abf.convio.net/site/MessageViewer?em_id=2982.0&dlv_id=8827&pgwrap=n
Dear Supporters,
As we head into the last few months of 2016, I wanted to share a few things.
First, we have adopted a new strategic plan in 2016. This plan will set us up to increase funding for brain disease research in the coming years, starting with a re-design of our website and launch of a crowdfunding platform in 2017. Stay tuned for more information! 
I hope you'll consider supporting us again with your gift as we prepare for these exciting changes. If you haven't made a gift before, now is a great time to join us as we prepare to do even more in the fight against brain disease.
Lastly, don't forget our third annual Standing Strong Fundraiser: An Evening Benefitting Brain Disease Research is coming up on Wednesday, October 26. This year's event will feature a concert by former Superbowl champion Ben Utecht and remarks from Susan Schneider Williams, wife of beloved late actor Robin Williams. For tickets and more information please visit our website. 
Thank you,
Jane Ransom's signature (Blue).jpg
Jane Ransom
Executive Director

Healthy Brain Features from Neurology Now® 
Self-Diagnose Successfully
Patients sometimes understand their baffling conditions better than their physicians. Learn how to build a convincing case and work with your doctor to find answers. Read more.
9 Questions to Ask Before NeurosurgeryBefore scheduling neurosurgery, consider asking your doctor these important questions. Read more. Raising Funds for Medical Bills Faced with mounting medical payments, some people turn to crowdfunding for financial help. Read more.
Success Stories from Neurology Now® 
Shining a LightActress Kimberly Williams-Paisley wants to help other families dealing with primary progressive aphasia avoid the mistakes she and her family made in caring for her mother. Read more.
Stronger After Stroke Fifty years ago, doctors and researchers thought recovery after stroke was limited. Today, they know that survivors have a lot more control over their own recovery. Read more.
Appalling that they appropriated the title of Peter Levines' book without attribution.
Tuned InAfter a researcher approached a group of people with Parkinson's disease to start a choir, a series of small miracles unfolded. Read more.
 
Neurology in the News
Robin Williams' widow joins forces with the American Brain Foundation. Read more.
New concussion training for NFL players ahead of this year's season opener. Read more. 
Excess weight in women has different effects on different types of stroke. Read more. 

Thursday, January 21, 2016

Crowdfunded Pocket Device Determines Risk for Stroke and Sudden Cardiac Arrest

If our stroke associations were doing anything worthwhile at all they would be analyzing this device to see how useful it is for stroke and which stroke risks(AF only) it is monitoring. But nothing like that will occur, we are in the caveat emptor stage. You are totally on your own.
https://www.indiegogo.com/projects/wiwe-risk-for-stroke-and-sudden-cardiac-arrest#/

Thursday, April 24, 2014

Problems of Patent Financed Drug Research #43,783, Ignoring Non-Patentable Treatments

This I'm sure will also become a problem for stroke treatments. I'm sure fish oil is not patentable. Something for that great stroke association to figure out. Maybe crowdfunding?
http://www.cepr.net/index.php/blogs/beat-the-press/problems-of-patent-financed-drug-research-43783-ignoring-non-patentable-treatments?
In principle we might think that researchers should be examining the most promising options for treating disease. But the patent system only provides incentives to pursue treatments that are expected to lead to a patentable drug. Therefore we may see many potentially effective treatments ignored, as appears to be the case with the cancer treatment featured in this Pro Publica piece.
Comments (3)Add Comment
Where's the Crowding Out Crowd When You Need Them?
written by Last Mover, April 23, 2014 4:50

Sock puppets for the medical industrial complex will never frame the issue this way - as a trade-off between treatments that command extortionist payments per dose compared to non-patent alternatives. They will never admit the former crowds out the latter.

Instead they will claim that resources used to develop patented drugs are over and above that available for alternatives in a phony "let many flowers" bloom context that saves the maximum number of lives with the total resources available.

They will be wrong. Many will die or live a shorter life because of resources lured into producing rent seeking patented drugs and treatments that save fewer lives than the many lives that could have been saved by the same resources used far more productively to produce both kinds of drugs and treatments absent monopoly rent profit.

Any other time the sock puppets would be crowing how government crowds out the private sector, but when it comes to how government patent protection abuse crowds out efficient health care with over the top bloated monopoly profit they conveniently go mute.

Thursday, February 6, 2014

Crowdfunding research

This sounds exactly like what we need to do. The ASA, NSA and WSO don't seem to be doing anything useful concerning research except to write press releases. The US government will soon stop funding any research at all.
Behind a paywall at the Wall Street Journal.
Scientist's Experiment in Fundraising Scientist Plans to Raise $1.5 Million Through Online Solicitations