Changing stroke rehab and research worldwide now.Time is Brain! trillions and trillions of neurons that DIE each day because there are NO effective hyperacute therapies besides tPA(only 12% effective). I have 523 posts on hyperacute therapy, enough for researchers to spend decades proving them out. These are my personal ideas and blog on stroke rehabilitation and stroke research. Do not attempt any of these without checking with your medical provider. Unless you join me in agitating, when you need these therapies they won't be there.

What this blog is for:

My blog is not to help survivors recover, it is to have the 10 million yearly stroke survivors light fires underneath their doctors, stroke hospitals and stroke researchers to get stroke solved. 100% recovery. The stroke medical world is completely failing at that goal, they don't even have it as a goal. Shortly after getting out of the hospital and getting NO information on the process or protocols of stroke rehabilitation and recovery I started searching on the internet and found that no other survivor received useful information. This is an attempt to cover all stroke rehabilitation information that should be readily available to survivors so they can talk with informed knowledge to their medical staff. It lays out what needs to be done to get stroke survivors closer to 100% recovery. It's quite disgusting that this information is not available from every stroke association and doctors group.

Showing posts with label feet to the fire. Show all posts
Showing posts with label feet to the fire. Show all posts

Sunday, May 3, 2026

FDA Declines Stroke Drug Over Manufacturing and Packaging Issues

 Have your doctor and hospital follow this research. They won't know about it or follow it unless YOU put their feet to the fire.

FDA Declines Stroke Drug Over Manufacturing and Packaging Issues

April 23 (Reuters) - Grace Therapeutics said on Thursday the U.S. Food and Drug Administration declined to approve its drug ⁠for a rare type of stroke, citing deficiencies in chemistry, manufacturing and controls and non-clinical data.

Shares of the ⁠Princeton, New Jersey-based company were down 43%.

In its complete response letter, the FDA referenced specific ⁠issues in the chemistry, manufacturing ‌and controls (CMC) and non-clinical sections of the company's application. Grace said it can address these in a resubmission.

Those issues relate to leachables data for product packaging, non-clinical product toxicology risk assessments and product manufacturing deficiencies at the contract manufacturing organization, ‌the company said.

Leachables are chemical compounds that migrate from packaging, manufacturing equipment ​or delivery ‌systems into a drug.

The company said ‌it intends to request a meeting with the FDA to clarify the path forward and determine ⁠the appropriate next steps.

"Potential FDA approval of ... GTx-104 ‌for the treatment of ⁠aSAH would represent the first ​meaningful innovation in the standard of ‌care for these patients in more than 40 years," said Prashant Kohli, Grace's CEO.

The drug GTx-104 is for the treatment of aneurysmal subarachnoid hemorrhage, a critical, ​often fatal form of stroke caused by a ‌ruptured ‌brain aneurysm.

Grace said it is a relatively uncommon type of stroke that accounts for ‌about 5% of all ​strokes and an estimated 42,500 hospital-treated patients in the U.S.

GTx-104 is an injectable formulation of nimodipine, the only FDA-approved drug for aneurysmal subarachnoid ⁠hemorrhage, for intravenous infusion. The IV delivery has the potential to ‌lower drug-to-drug interactions and eliminate potential dosing errors, Grace added.

(Reporting by Puyaan Singh ​in Bengaluru; Editing by Tasim Zahid)

Wednesday, May 7, 2025

Chronic Stroke Survivors Demonstrate Long-Term Improvement in Motor Impairment with Vivistim Therapy

 Notice the precise wording signifying failure; 'improvement' NOT RECOVERY!  We have to hold feet to the fire for complete incompetence in stroke!

Chronic Stroke Survivors Demonstrate Long-Term Improvement in Motor Impairment with Vivistim Therapy

A 1-Year Follow-Up Study Published in the Peer-Reviewed Journal Stroke Validates Effectiveness of Paired Vagus Nerve Stimulation Therapy for Improved Upper Limb Function(Your definition of effectiveness is obviously completely wrong. No survivor that hasn't been bamboozled into accepting failure would consider this effective!)

AUSTIN, Texas, May 7, 2025 /PRNewswire/ -- MicroTransponder®, Inc., a commercial-stage medical technology company and developer of the breakthrough Vivistim® Paired VNS™ System for chronic stroke recovery, today announced the publication of new findings in the peer reviewed medical journal Stroke validating the beneficial long-term outcomes of Paired VNS™ Therapy. The findings demonstrate that stroke survivors treated with paired vagus nerve stimulation (VNS) for upper extremity deficits post-stroke had improvements in impairment, activity, participation and quality of life for at least one year after completing therapy.

"Long-Term Outcomes of Vagus Nerve Stimulation Paired with Upper Extremity Rehabilitation after Stroke," as published in the May 2025 issue of Stroke, is a long-term analysis of VNS-REHAB, the pivotal, multicenter, triple-blinded, randomized controlled clinical trial published in The Lancet that served as the basis for FDA premarket approval of the Vivistim® Paired VNS™ System in 2021.

One year after completing Paired VNS Therapy participants maintained significant and clinically meaningful improvements in motor impairment and functional activity as measured by the Fugl-Meyer Assessment –Upper Extremity (FMA-UE) and the Wolf Motor Function Test (WMFT), respectively. Additional patient-reported outcomes demonstrated improvements in activity, participation in daily life and quality of life.

  • Average improvement from baseline was FMA-UE: 5.23; WMFT: 0.50
  • 66.2% of the 74 participants responded positively to Paired VNS™ Therapy
  • Participants reported significant improvements across multiple validated measures:
    • Motor Activity Log (amount/quality of upper extremity use in daily activities)
    • Stroke Impact Scale - Activities of Daily Living (perceived performance in daily tasks)
    • Stroke Impact Scale - Hand (perceived hand function)
    • Stroke Specific – Quality of Life Scale (stroke-specific quality of life)
    • EQ-5D (overall health-related quality of life)

"These long-term clinical and quality of life outcomes of Paired VNS Therapy are particularly notable because sustained, comprehensive benefits are rarely shown in chronic stroke recovery," said Teresa Jacobson Kimberley, PT, Ph.D., FAPTA, the lead researcher on the study and director of the Brain Recovery Lab at the MGH Institute of Health Professions. "Most stroke survivors need improved hand and arm function because it is essential for nearly every task in daily life, and Vivistim may be the boost that helps get them there."

Collaborating researchers on the follow-up study include Steven C. Cramer, MD, a stroke neurologist at UCLA and medical director of research at California Rehabilitation Institute; Steven Wolf, Ph.D., FAPTA, professor emeritus at Emory University School of Medicine; Charles Liu, MD, Ph.D., director of the USC Neurorestoration Center at Keck Medicine; Perman Gochyyev, Ph.D., statistician at University of California Berkeley; Jesse Dawson, MD, professor of stroke medicine at the University of Glasgow; and the VNS-REHAB Pivotal Trial Group.

Manufactured by MicroTransponder®, Inc., Vivistim was approved in 2021 with the FDA's Breakthrough Device Designation and is the first and only intervention clinically proven to help chronic ischemic stroke survivors regain 2-3 times more upper extremity function than high-intensity stroke therapy alone. In current clinical practice, the Vivistim device is implanted in stroke survivors, enabling therapists to use a wireless remote that communicates with the device to pair vagus nerve stimulation with high-repetition, goal-oriented functional activities to increase neuroplasticity. The standard protocol is for stroke survivors to participate in in-clinic Vivistim Therapy during 90-minute sessions three times a week for six weeks.

This in-clinic Paired VNS Therapy is complemented by self-initiated Vivistim Therapy, which allows stroke survivors to swipe a magnet across the implant to activate vagus nerve stimulation while doing daily activities at home or in the community. The one-year study analysis demonstrates that self-initiated Paired VNS Therapy may facilitate the continued refinement and consolidation of behaviorally relevant activities, resulting in long-term, persistent improvements.

"The growing clinical and real-world evidence supporting Vivistim emphasizes that stroke recovery needs to extend beyond acute intervention. While patients who have lost mobility in their hands and arms following ischemic stroke have previously been limited in their treatment options, the Vivistim Paired VNS Therapy is a breakthrough intervention in establishing a new standard in the stroke continuum of care," said Richard Foust, MicroTransponder's CEO. "With this data, healthcare professionals, including neurologists, physiatrists, neurosurgeons, occupational therapists and physical therapists, can confidently pursue Vivistim Therapy as an evidence-based, clinically proven intervention for ischemic stroke survivors who are 6 months or more post-stroke."

The pivotal VNS-REHAB trial was conducted between October 2017 and June 2022. Researchers note that some therapy and assessments occurred during the COVID-19 pandemic, but improvements were sustained despite how the pandemic may have impacted participants' lives unfavorably. Sex, age, side of stroke, and time since stroke did not significantly impact FMA-UE or WMFT outcomes. No long-term serious adverse events related to therapy or stimulation were reported.

To learn more about the Vivistim® Paired VNS™ System, visit Vivistim.com/health-pros. Tap to review the clinical bibliography and safety information.


Monday, August 28, 2023

Our research project is looking for stroke survivors to participate in a personalised physical activity program in Australia

Get involved and DEMAND  they create 100% recovery protocols. YOU have to hold their feet to the fire or they won't even try for 100%. Screaming may be required; DO NOT BACK DOWN! Go all the way up to the hospital president if need be.

Our research project is looking for stroke survivors to participate in a personalised physical activity program

Find out more here:

 

Wednesday, August 23, 2023

John Penrose MP welcomes diagnostic centre and stroke rehab investment - Weston-super-Mare, England

So be a pain in the ass and ask VERY SPECIFICALLY HOW THEY ARE GOING TO GET STROKE SURVIVORS 100% RECOVERED. Do not let them pooh pooh your question and suggest you aren't qualified to even ask such a silly question. Screaming may be required. Unless we hold their feet to the fire they will never solve stroke; they are that incompetent.

John Penrose MP welcomes diagnostic centre and stroke rehab investment

This is thanks to the recent announcement that a new Community Diagnostic Centre (CDC) is set to open next year.

Initially the CDC will operate from mobile facilities based at the Healthy Living Centre on the Bournville Estate, before the opening of a purpose-built facility.

Local MP John Penrose explained that the new centre would make a real difference to local people by reducing waiting times, which escalated during the pandemic. 

He went on to say that fast diagnosis is reassuring to patients, enabling treatment to start much sooner and thus save lives.

John Penrose has welcomed news that Weston Hospital will also receive £4.9M of Government funds to provide a new Stroke Rehabilitation Centre.

The Rehabilitation Centre is expected to increase capacity and enable the hospital to treat more patients for a wider variety of illnesses. It should also free up 12 much needed beds to reduce pressure.

John is in favour of the opportunity for local stroke patients to get “the all-important rehabilitation they need” much closer to home.

He went on to say that this further recent investment to expand local healthcare provision “makes huge sense for a growing town like Weston."

 

Sunday, June 19, 2022

Paying it forward

 I got slightly criticized for providing questions for your doctor on the first day. While true that lots of stroke patients are not mentally capable of understanding what occurred to them in the first days. The whole point is to ask your doctor, therapists and hospital what they are doing in the first days to get you recovered. Even if you can't ask that question immediately, it should be asked and demand an answer so future stroke patients will have a better chance of recovery than you had.  If WE don't hold the stroke medical world's feet to the fire NOTHING WILL EVER GET BETTER!

What to do the first day after your stroke Blog post I wrote October 2013

 

Saturday, June 4, 2022

Review of Long-Term Blood Pressure Control After Intracerebral Hemorrhage: Challenges and Opportunities

So we still have NO FUCKING CLUE what a blood pressure management protocol is. Hope you don't mind dying because of the cesspools of incompetence of the complete stroke medical world.  Unless YOU hold your stroke hospital's feet to the fire you are allowing your children and grandchildren to die or become disabled from their strokes.

5 years and still incompetent leadership in stroke.

 

Review of Long-Term Blood Pressure Control After Intracerebral Hemorrhage: Challenges and Opportunities

Originally publishedhttps://doi.org/10.1161/STROKEAHA.121.036885Stroke. 2022;0:10.1161/STROKEAHA.121.036885

Blood pressure (BP) is the most important modifiable risk factor for intracerebral hemorrhage (ICH). Elevated BP is associated with an increased risk of ICH, worse outcome after ICH, and in survivors, higher risks of recurrent ICH, ischemic stroke, myocardial infarction, and cognitive impairment/dementia. As intensive BP control probably(NOT GOOD ENOUGH! Survivors need a protocol! GET THERE!) improves the chances of recovery from acute ICH, the early use of intravenous or oral medications to achieve a systolic BP goal of <140 mm Hg within the first few hours of presentation is reasonable for being applied in most patients. In the long-term, oral antihypertensive drugs should be titrated as soon as possible to achieve a goal BP <130/80 mm Hg and again in all ICH patients regardless of age, location, or presumed mechanism of ICH. The degree of sustained BP reduction, rather than the choice of BP-lowering agent(s), is the most important factor for optimizing risk reduction, with varying combinations of thiazide-type diuretics, long-acting calcium channel blockers, ACE (angiotensin-converting enzyme) inhibitors or angiotensin receptor blockers, being the mainstay of therapy. As most patients will require multiple BP-lowering agents, and physician inertia and poor adherence are major barriers to effective BP control, single-pill combination therapy should be considered as the choice of management where available. Increased population and clinician awareness, and innovations to solving patient, provider, and social factors, have much to offer for improving BP control after ICH and more broadly across high-risk groups. It is critical that all physicians, especially those managing ICH patients, emphasize the importance of BP control in their practice.

Footnotes

For Sources of Funding and Disclosures, see page xxx.

Correspondence to: Craig S. Anderson, MD, PhD, The George Institute for Global Health, Post PO Box M201, Missenden Rd, Camperdown, NSW 2050 Australia. Email

Wednesday, May 18, 2022

Association of Systolic Blood Pressure and Cerebral Collateral Flow in Acute Ischemic Stroke by Stroke Subtype

So we still have NO FUCKING CLUE what a blood pressure management protocol is. Hope you don't mind dying because of the cesspools of incompetence of the complete stroke medical world.  Unless YOU hold your stroke hospital's feet to the fire you are allowing your children and grandchildren to die or become disabled from their strokes.

5 years and still incompetent leadership in stroke.

 

Association of Systolic Blood Pressure and Cerebral Collateral Flow in Acute Ischemic Stroke by Stroke Subtype

 

  • Department of Neurology, Samsung Medical Center, Sungkyunkwan University School of Medicine, Seoul, South Korea

Background and Purpose: Collateral flow in acute ischemic stroke is known as a predictor of treatment outcome and long-term prognosis. However, factors determining the initial collateral flow remain unclear. We investigated factors related to collateral flow in patients with acute ischemic stroke caused by large vessel occlusion (AIS-LVO) and further analyzed the results according to stroke etiology.

Methods: This was a retrospective study using prospective stroke registry data from a single university hospital from October 2014 to May 2021. AIS-LVO with middle cerebral artery M1 occlusion identified by pre-treatment multiphasic computed tomography angiography was included. Collateral flow score was graded on a 6-point ordinal scale according to pial arterial filling.

Results: A total of 74 patients [cardioembolism (CE): 57; large artery atherosclerosis (LAA): 17] was included. The mean age of all patients was 72.2 ± 11.7 years, and 37.8 % (n = 28) were men. Multivariate regression analysis showed that initial SBP [odds ratio (OR): 0.994; 95% confidence interval (CI): 0.990–0.998; p = 0.002] and stroke etiology (OR: 0.718; 95% CI: 0.548–0.940; p = 0.019) were independent factors of the collateral flow grade. Collateral flow grade was independently associated with initial SBP in the CE group (OR: 0.993; 95% CI: 0.989–0.998; p = 0.004) but not in the LAA group (OR: 0.992; 95% CI: 0.980–1.004; p = 0.218). Initial SBP was significantly correlated with NIHSS score in the CE group but not in the LAA group (r2= 0.091, p = 0.023; r2 = 0.043, p = 0.426, respectively).

Conclusions: Elevated initial SBP was associated with poor cerebral collateral flow and more severe symptoms in the CE group, but not in the LAA group in patients with AIS-LVO. These findings suggest differential effects of initial SBP elevation on collateral flow by stroke subtypes.

Introduction

Collateral flow is an important feature of cerebral circulation when major arteries are occluded, which varies depending on individuals. Collateral flow in acute ischemic stroke is known as a predictor of acute thrombolytic and endovascular therapy outcome as well as long-term prognosis (1–5). Patients with a cervical large artery atherosclerosis (LAA) have a more extensive cerebral collateral circulation and a better functional outcome at 90 days than those with a cardioembolic (CE) stroke (6). Previous studies have also suggested that LAA stroke is associated with better collateral flow than CE stroke (6–9). Theoretically, LAA in humans develops over decades, which might promote the gradual development of cerebral collateral flow. For example, patients with a severe (71–99%) stenosis have a better collateral flow than those with a moderate (51–70%) stenosis (6). In contrast, since CE stroke is not accompanied by chronic cerebral hypoperfusion, the chances of collateral artery formation and recruitment are less likely to occur in these patients.

Although the importance of collateral flow has attracted more attention over the past decade, studies on the factors which determine collateral flow are not well understood. The potential relationship of collateral flow with history of cardiovascular risk factors, such as hypertension, congestive heart failure, hyperlipidemia, and diabetes might exhibit complex interactions. Calleja et al. have reported that diabetes is significantly associated with poorer collateral flow on admission (1).A history of hypertension has also been more frequently found among patients with poor collateral flow (2, 10, 11). Menon et al. have found that metabolic syndrome, hyperuricemia, and age are associated with poor collateral flow in patients with acute ischemic stroke (12). In case of coronary collateral flow, eGFR is an independent affecting factor (13).

We hypothesize that factors related to collateral flow in patients with acute ischemic stroke caused by large vessel occlusion (AIS-LVO) are different according to stroke etiology. In this study, we investigated the extensive physiologic, laboratory, and imaging parameters which have been reported to be possibly related with collateral flow in patients with AIS-LVO. We further analyzed the results according to stroke etiology with the assumption that stroke subtype may influence the collateral development.

More at link.

Friday, May 6, 2022

Japan Stroke Society Guideline 2021 for the Treatment of Stroke

 Nothing in Chapter 7. Rehabilitation for subacute to chronic stroke;  even remotely suggests any path to 100% recovery. So you are screwed along with your children and grandchildren. Until we start holding stroke persons feet to the fire nothing will improve.

Japan Stroke Society Guideline 2021 for the Treatment of Stroke

First Published April 20, 2022 Research Article Find in PubMed 

The revised Japan Stroke Society Guidelines for the Treatment of Stroke were published in Japanese in July 2021. In this article, the extracted recommendation statements are published. The revision keeps pace with the great progress in stroke control based on the recently enacted Basic Act on Stroke and Cardiovascular Disease in Japan. The guideline covers the following areas: primary prevention, general acute management of stroke, ischemic stroke and transient ischemic attack, intracerebral hemorrhage, subarachnoid hemorrhage, asymptomatic cerebrovascular disease, other cerebrovascular disease, and rehabilitation.

The Japan Stroke Society Guideline 2021 for the Treatment of Stroke is a totally revised version that is developed every 6 years, with two yearly updates in the intervening periods. The guidelines have been developed in conjunction with Japan Neurosurgical Society, the Japanese Society of Neurology, the Japanese Association of Rehabilitation Medicine, the Japanese Society of Neurological Therapeutics, the Japanese Society on Surgery for Cerebral Stroke, and the Japanese Society for Neuroendovascular Therapy. The guideline comprises 300 pages in Japanese. In this English version, recommendations of each topic are extracted and introduced. The guideline consists of seven chapters. Of these, the chapters for ischemic stroke, intracerebral hemorrhage (ICH), and subarachnoid hemorrhage are introduced in the main text and the other four chapters, as part of the full guideline, are presented in the supplemental material.

The Committee for Stroke Guideline 2021, selected from the members of the Japan Stroke Society(Notice no survivors were involved so the conclusions presented are invalid.), developed the present guideline based on the literature searched for the guidelines up to the 2019 version (papers published up to December 2017) and additional papers published between January 2018 and December 2019. In the Committee, there was no distinction between those who reviewed the literature and those who wrote the recommendations.

Taking into consideration the level of evidence, the balance between “benefit” and “harm” of the intervention, the influence of patient values and other factors, and the cost of the intervention and medical resources, the Committee members determined the grade of recommendations (Table 1). The level of bodies of evidence for the recommendations was determined by the Committee members after integrating the evidence of the relevant references (Table 2). Detailed explanation is described in “Level of Evidence and Grade of Recommendation” in the full article in the supplemental material.

Table

Table 1. Classification of grade of recommendation by the Committee (2021).

Table 1. Classification of grade of recommendation by the Committee (2021).

Table

Table 2. Classification of level of evidence (LOE) of the recommendations by the Committee (2021).

Table 2. Classification of level of evidence (LOE) of the recommendations by the Committee (2021).


Chapter 7. Rehabilitation for subacute to chronic stroke

(Refer the full article as the supplemental material)

Declaration of conflicting interests
The author(s) declared no potential conflicts of interest with respect to the research, authorship, and/or publication of this article.

Funding
The author(s) received no financial support for the research, authorship, and/or publication of this article.

Disclosures
All the authors completed the declaration of their conflicts of Interest (COIs) to the office of the Japan Stroke Society. COIs for all the authors are below the maximum amount for the inauguration of committee members of guidelines in the Japanese Association of Medical Sciences COI Management Guideline.

 

Tuesday, December 8, 2020

Motor Recovery and Cortical Reorganization After Mirror Therapy in Chronic Stroke Patients A Phase II

Well at least some semblance of a protocol, but not enough. For fingers, do I do them individually or as a group first and then individually? How many repetitions?

WHOM in stroke leadership are you contacting to get future research and protocol creation done? Specific names only, I want to hold their feet to the fire.

Motor Recovery and Cortical Reorganization After Mirror Therapy in Chronic Stroke Patients A Phase II

First Published November 4, 2010 Research Article Find in PubMed 

Objective. 

To evaluate for any clinical effects of home-based mirror therapy and subsequent cortical reorganization in patients with chronic stroke with moderate upper extremity paresis.  

Methods. 

A total of 40 chronic stroke patients (mean time post .onset, 3.9 years) were randomly assigned to the mirror group (n = 20) or the control group (n = 20) and then joined a 6-week training program. Both groups trained once a week under supervision of a physiotherapist at the rehabilitation center and practiced at home 1 hour daily, 5 times a week. The primary outcome measure was the Fugl-Meyer motor assessment (FMA). The grip force, spasticity, pain, dexterity, hand-use in daily life, and quality of life at baseline—post treatment and at 6 months—were all measured by a blinded assessor. Changes in neural activation patterns were assessed with functional magnetic resonance imaging (fMRI) at baseline and post treatment in an available subgroup (mirror, 12; control, 9).  

Results. 

Post treatment, the FMA improved more in the mirror than in the control group (3.6 ± 1.5, P < .05), but this improvement did not persist at follow-up. No changes were found on the other outcome measures (all Ps >.05). fMRI results showed a shift in activation balance within the primary motor cortex toward the affected hemisphere in the mirror group only (weighted laterality index difference 0.40 ± 0.39, P < .05).  

Conclusion. 

This phase II trial showed some effectiveness for mirror therapy in chronic stroke patients and is the first to associate mirror therapy with cortical reorganization. Future research has to determine the optimum practice intensity and duration for improvements to persist and generalize to other functional domains.

 
 

Friday, February 22, 2019

We’re looking for a Director of Stroke Support to provide strategic direction to our work in England.

YOU have to get involved in this. Otherwise the strategy created and followed will not include 100% recovery. Conquering stroke is nothing less than 100% recovery. Hold their feet to the fire to accomplish that goal. Otherwise they will allow the tyranny of low expectations creep in. Ideally this should be a stroke survivor, I don't trust currently abled people to have the drive and passion to complete that 100% goal, they haven't in the past.

We’re looking for a Director of Stroke Support to provide strategic direction to our work in England. 

Region: 
Salary: 
Competitive
Closing date: 
Sunday, 24 February, 2019
Job type: 

Ref:S495 | National (Office or home-based) | 35 hours per week

We’re looking for an exceptional individual to provide strategic direction to our work in England. You’ll develop partnerships to ensure all affected by stroke get the help they need to live the best life they can. Leading and inspiring your team of staff and volunteers, you’ll ensure we deliver excellence in all we do. And you’ll be passionate about ensuring all affected by stroke have a strong and influential voice.
Reporting to the UK Executive Director of Stroke Support, you’ll be joining the UK senior leadership team at a really exciting time as we take forward our new strategy. With proven influencing and negotiation skills, you will actively develop positive, credible relationships with all stakeholders to grow our work. You’ll be innovative in contributing to support and policy development and skilled in driving change.
Significant senior management or executive level experience in the third, social or health sectors is required, to help us make stroke the priority it needs to be and grow access to our support offerings.
It is optional for this role to be homebased, please see our homeworking agreement for full details.
This is an exciting time to join the Stroke Association. Join us and together we can conquer stroke.

Applying

We want to make the process of applying for this role as straightforward as possible. To this end, we ask that your application consist of the following three documents:
  • A supporting statement, no more than two pages in length, which addresses and provides evidence against the criteria set out in the Person Specification in the Role Profile section below. The covering letter provides you with the opportunity to explain your motivation for applying, as well as highlighting how your experience and achievements fit with the requirements of the role. As such, it is an important part of the application process.
  • A comprehensive CV.
  • Your completed Equal Opportunities Form - The information you provide in this form will not be shown to the Selection Panel and will play no part in the assessment of your application. The Stroke Association is an equal opportunities employer, to fulfil our responsibilities please email it to equalops@stroke.org.uk which is managed by our HR team.
For more information on how we use the information you have provided and the legal basis upon which we rely to process the personal information you have provided in this form, please see our job applicant privacy notice which can be viewed by clicking here
Email the completed supporting statement and CV to recruitment@stroke.org.uk by the closing date 24 February 2019. 1 stage interview to be held on 6 March 2019, London. 2 stage interview to be confirmed.
If you have any queries please email the HR team at recruitment@stroke.org.uk
If you’re still unsure about applying for a role with us or just want to get an idea of the benefits of doing so please visit the benefits page or see what we do.

Role profile

Download the role profile for the Director of Stroke Support England role.

About Us

We are the UK’s leading charity dedicated to conquering stroke.
There are over 1.2 million stroke survivors in the UK. Almost two thirds have a disability and one third rely on others for help, making stroke one of the biggest causes of disability.
We are continually working to improve the lives of stroke survivors and their families who deserve the very best treatment and care. We deliver amazing, life-changing support to over 60,000 stroke survivors and their families each year. We also fund research to find better treatments, campaign for better stroke care and help people understand how to spot and prevent stroke. This work is made possible by more than 4,000 talented volunteers and staff, our fantastic supporters and our strong relationships with the stroke clinical and research community.
We work with integrity, demonstrating our values as one combined passionate, innovative, respectful and professional team.
Together we can conquer stroke.

Tuesday, November 14, 2017

Concert pianist John Bayless, mentored by Bernstein, now performs one-handed after stroke

A complete failure of the Desert Regional Medical Center to get him 100% recovered. Call that president and ask why the result was so bad. We have to start holding feet to the fire. 
http://www.desertsun.com/story/news/2017/11/10/concert-pianist-john-bayless-mentored-leonard-bernstein-now-performs-one-handed-after-stroke/766831001/


Bayless, a renowned pianist and composer, suffered a stroke and now plays piano one-handed. (Nov. 2017)
LINKEDINCOMMENTMORE
Renowned pianist, composer and prolific recording artist John Bayless experienced a rude awakening on the first night he and his partner, Bruce Franchini, spent at their new home in the desert.
The couple had just moved from the Bay Area to a two-story residence in Indio in 2007 and were still waiting for the furniture – and John’s Steinway Concert Grand Piano – to arrive.
“I was sleeping and I had a terrible, horrific nightmare and I woke up – and something was wrong with my right arm," he said. “I jumped out of bed because it was a little hot in the bedroom, and I turned down the thermostat, got back in bed. Twenty minutes later is when I was breathing funny … that’s when Bruce woke me up. I couldn’t sit up – he had to prop me up.”
John, 53 at the time, had suffered a stroke that affected the right side of his body. He lost the ability to speak for about 24 hours. An ambulance rushed him to Eisenhower Medical Center where he spent three days before starting the grueling rehabilitation process.
An in-patient stroke rehabilitation program at Desert Regional Medical Center afforded him the opportunity to undergo occupational, speech and physical therapy daily for two weeks. Not long after he completed the program, he met local philanthropist Peggy Cravens, who, among her other charitable work in the desert, is Chairman of the Board of the Virginia Waring International Piano Competition.
“The night before I left Desert Regional, a lady came to my room – a physical therapist that had been recommended,” John said.
John was going to need in-home physical therapy, and the couple had been referred to physical therapist Kay Folmar.
“Bruce called her and said, ‘Could you please come meet John,’ and she said, ‘Yes, I’d love to,’ and she walked into my room and she said, ‘I know you.’ I said, ‘We’ve never met.’ She said, 'I have your records,’ and I started crying because I thought, ‘Oh my God, I can’t play.’”

During this time, Folmar had been working with Donald Cravens – Peggy’s husband – who had also suffered a stroke.
“She came one day and said, ‘Mrs. Cravens, I’m working with someone … aren’t you the president of an international piano competition?’” Cravens recounted. “I said, ‘Yes,’ she said, ‘Oh, you have to meet John Bayless!’”
“I said, ‘I know that name,’ and (Kay) said, ‘Yes, he’s had a fabulous career as a concert pianist and sadly, he just had a stroke and he’s paralyzed on his right side.’ And I said, ‘Oh, I’d love to meet him. Hopefully we can get him involved at the Waring.’”
“It was thrilling for me,” John said. “Talk about meant to be.”
Kay suggested he give Peggy one of his albums. He gave her an autographed copy of a Puccini album. Peggy invited John and Bruce to the competition and they attended the finals at the Indian Wells Theater on the California State University San Bernardino Palm Desert campus.
“It was pretty soon thereafter that Bruce and I were on the board,” John said.
Bruce, a producer and director who won two Daytime Emmys for directing Julia Child in "Baking With Julia" (1997) and "Julia & Jacques Cooking at Home" (2000), died in 2013 at the age of 69 of cancer. Since then, John has moved to Desert Island in Rancho Mirage, where he and Peggy are neighbors.

Composer, pianist, recording artist

John, who’s been playing the piano since the age of four, attended the Julliard School of Music and studied with Leonard Bernstein, Jules Styne, Arthur Laurents and other notables in the field of musical composition. As a performer, both solo piano and with orchestra, he’s appeared at Carnegie Hall, Lincoln Center’s Avery Fisher Hall and has appeared with the Boston Pops and New York Pops among others.
He made his recording debut in 1985 with an album entitled, “Happy Birthday Bach,” which was created in honor of Bach's 300-year birthday celebration. Two subsequent releases, “Bach meets the Beatles” and “Bach on Abby Road,” contained his improvisations on Beatles melodies.  The former was selected as one of the Top Ten Classical Crossover Recordings of the 1980's by Billboard Magazine. The Puccini Album  Arias for Piano soared to No. 1 on Billboard Magazine's Classical Crossover Chart where it remained for 18 weeks, selling over 175,000 albums. 
John grew up in the Texas panhandle town of Borger, where his dad was an automobile dealer, selling Fords and Lincoln Mercuries. His mother was a singer and, early on, both of his parents realized his musical talent and encouraged his development as a pianist.
“I went to Aspen Music School in the summer when I was 16 and 17 and met the teacher I subsequently studied with at Julliard, Adele Marcus,” John said.
John needed a high school diploma to get into Julliard, but he was also practicing the piano full time during these school years and flying from Amarillo to Houston twice a month for piano lessons. His mother explained the situation to school administrators and they put him in “easy” classes – the bare minimum required to graduate.
John practiced the piano daily before school at 6:30 a.m. and then after school from about 2:30 or 3 p.m. until 7 or 8 p.m.
He graduated in 1971 with diploma in hand. It was his ticket to Julliard, which he attended for five years. He took six months off near the end of his stay to have an operation. While he was at home, he began composing more.
“I didn’t want to play Beethoven, I didn’t want to play all that stuff anymore. I wanted to compose. Fortunately, my parents understood and they supported me a couple of years," John said.
One of the influential families that Bayless met was Nat Lefkowitz, the president of the William Morris agency, and his wife Sally. They took him under their wing.
"I was their protégé," John said. "One Saturday, Sally calls me and says, ‘You have a clean shirt?’ I said, ‘Yeah, why?’ We’re going to a dinner tonight and I want you to come and I hope they have a piano.’ They picked me up. I go to the dinner and I’m sitting there and this man across the table says, ‘How would you like to play in Carnegie Hall?’
"I flipped my wig and I said, ‘Of course, it’s a dream.’ He said, “I support a concert every year by the musician’s union for orchestras in New York and we’re having a concert in May. He said if you’ve got the Leftkowitz’s support, you’ve got to be tops.’
“So, I did. June 9, 1980 and I played Rhapsody in Blue and my own piano concerto that I wrote. That was pretty special.”