Changing stroke rehab and research worldwide now.Time is Brain! trillions and trillions of neurons that DIE each day because there are NO effective hyperacute therapies besides tPA(only 12% effective). I have 523 posts on hyperacute therapy, enough for researchers to spend decades proving them out. These are my personal ideas and blog on stroke rehabilitation and stroke research. Do not attempt any of these without checking with your medical provider. Unless you join me in agitating, when you need these therapies they won't be there.

What this blog is for:

My blog is not to help survivors recover, it is to have the 10 million yearly stroke survivors light fires underneath their doctors, stroke hospitals and stroke researchers to get stroke solved. 100% recovery. The stroke medical world is completely failing at that goal, they don't even have it as a goal. Shortly after getting out of the hospital and getting NO information on the process or protocols of stroke rehabilitation and recovery I started searching on the internet and found that no other survivor received useful information. This is an attempt to cover all stroke rehabilitation information that should be readily available to survivors so they can talk with informed knowledge to their medical staff. It lays out what needs to be done to get stroke survivors closer to 100% recovery. It's quite disgusting that this information is not available from every stroke association and doctors group.

Showing posts with label patient. Show all posts
Showing posts with label patient. Show all posts

Tuesday, November 3, 2015

How do patients define quality medical care?

One view here from a doctor.
How do patients define quality medical care?
At the risk of hubris, I will offer some thoughts:

Deans' thoughts in red
  1. Patients want a physician to listen carefully, look them in the eye, and address their concerns.
  2. Patients want correct diagnoses. This one fails a fair number of times in young person strokes. It fails all the time in an objective damage diagnosis. With no damage diagnosis you can never correlate interventions to results with any accuracy.
  3. Patients want to understand "the plan" - what is the diagnosis, what is the proposed treatment, what diagnostic tests are ordered and why.  There is no plan in stroke rehabilitation, it is all winging it. Why do you think you are told; 'All strokes are different, all stroke recoveries are different?'
  4. Patients want access to their physician - timely appointments, email, text, phone calls - and do not want unnecessary visits scheduled
  5. Patients want to avoid medication side effects. Statins, warfarin and blood pressure meds.
  6. Patients want cost considered when at all possible. Really!

Monday, October 14, 2013

Get With The Guidelines-Stroke hospitals more likely to provide guideline-recommended treatment

God the arrogant stupidity in full flower here. No one can even see what the guidelines are so we patients can prove that they are way too little and totally out-of-date. This just proves once again what Amy Farber has to say.
For the past five years Farber has been battling not only her own disease but also the wall of resistance erected by those who believe that a patient can make about as much of a meaningful contribution to the process of scientific discovery as a laboratory rat.
Hell the rats know more than those who hide guidelines like this.
http://www.sciencecodex.com/get_with_the_guidelinesstroke_hospitals_more_likely_to_provide_guidelinerecommended_treatment-120966

Thursday, June 7, 2012

Information, at the point where it’s needed, can save a life

For all us patients, Dave has some good points to make.
http://epatientdave.com/2012/06/03/information-at-the-point-where-its-needed-can-save-a-life-new-speech/
The Kanter Family Foundation “was born of the frustrations [Joseph Kanter] faced as a prostate cancer patient unable to obtain scientific evidence about ‘what works best’ in health care, based on the collective real-world experiences of other patients – evidence that would have helped me, and others like me, make better informed, life-or-death health decisions.”
This sounds exactly like what is wrong with stroke care. With only a 10% success rate for full recovery, we need Dr. Algorithm.