Changing stroke rehab and research worldwide now.Time is Brain! trillions and trillions of neurons that DIE each day because there are NO effective hyperacute therapies besides tPA(only 12% effective). I have 523 posts on hyperacute therapy, enough for researchers to spend decades proving them out. These are my personal ideas and blog on stroke rehabilitation and stroke research. Do not attempt any of these without checking with your medical provider. Unless you join me in agitating, when you need these therapies they won't be there.

What this blog is for:

My blog is not to help survivors recover, it is to have the 10 million yearly stroke survivors light fires underneath their doctors, stroke hospitals and stroke researchers to get stroke solved. 100% recovery. The stroke medical world is completely failing at that goal, they don't even have it as a goal. Shortly after getting out of the hospital and getting NO information on the process or protocols of stroke rehabilitation and recovery I started searching on the internet and found that no other survivor received useful information. This is an attempt to cover all stroke rehabilitation information that should be readily available to survivors so they can talk with informed knowledge to their medical staff. It lays out what needs to be done to get stroke survivors closer to 100% recovery. It's quite disgusting that this information is not available from every stroke association and doctors group.

Showing posts with label engagement. Show all posts
Showing posts with label engagement. Show all posts

Wednesday, January 21, 2026

When Stroke Rehab Decisions Stall

There should be zero wavering; you get an OBJECTIVE DAMAGE DIAGNOSIS(In 3d, mapping all the dead and damaged areas in both gray and white matter); that LEADS DIRECTLY TO EXACT REHAB PROTOCOLS THAT DELIVER 100% recovery! What's so fucking difficult about that? You should have been solving that for decades; but I guess incompetence interfered!

Your survivor will become very engaged and motivated when presented with protocols that deliver 100% recovery!

When Stroke Rehab Decisions Stall

Patients who had a stroke often disengaged from rehabilitation decision-making at the same time they were being asked to participate, when emotional distress and information gaps were greatest, according to a recent study.

Patients who had a stroke frequently became passive in rehabilitation decision-making when one-way clinician communication, insufficient informational support, and discontinuity between hospital and community care increased decision-making burden, according to a qualitative meta-synthesis published in BMJ Open. Across ten qualitative studies, patients reported increased decision-making burden associated with one-way communication, insufficient or poorly timed information, and discontinuity in rehabilitation services.

The researchers conducted a qualitative meta-synthesis using methodology from the Joanna Briggs Institute (JBI) and reported results in accordance with Enhancing Transparency in Reporting the Synthesis of Qualitative Research (ENTREQ) guidelines. Databases searched included Cochrane Library, PubMed, Embase, Scopus, Web of Science, China National Knowledge Infrastructure, China Biomedical Literature Database, and Wanfang Database from inception through March 1, 2025, yielding 1,502 records. Following removal of duplicates and screening, ten studies were included, all rated Grade B for moderate risk of bias. Thirty-one qualitative findings were extracted, grouped into ten categories, and synthesized into three integrated domains: patient-related factors, family-related factors, and healthcare provider or environmental factors. Analysis was guided by Social Cognitive Theory, emphasizing interactions among personal emotions, environmental context, and behavioral engagement.

At the patient level, negative emotions following stroke were reported to interfere with patients' rational thinking, cognitive processing, and participation in rehabilitation decision-making, and were associated with lower self-efficacy. Patients reported being invited to participate in rehabilitation decisions at times when emotional distress limited their capacity to engage. One participant stated, "The doctor asked me to help make decisions about rehabilitation, but my mind was blank and confused." Over time, unmet expectations regarding recovery further diminished engagement, particularly when functional improvement did not align with early hopes. Limited health literacy and lower educational attainment compounded these effects, leading many patients to defer decisions to clinicians.

Family dynamics exerted a dual influence. Emotional support from relatives enhanced confidence and facilitated engagement, whereas guilt related to family burden and financial responsibility constrained decision-making. Economic considerations were central, with long-term rehabilitation costs forcing trade-offs that narrowed perceived options.

Patients described paternalistic communication, limited bidirectional dialogue, and goal-setting processes that excluded patient preferences, alongside information gaps and fragmented transitions between hospital and community rehabilitation that increased decision fatigue and left them navigating rehabilitation decisions with limited support.

The researchers noted limitations, including the moderate risk of bias across all included studies, limited methodological transparency, and restricted geographic representation, primarily from developed countries. Despite these limitations, the synthesis identified emotional distress, clinician communication practices, and rehabilitation system factors as recurring influences on patient participation in shared decision-making, wrote lead study author Shuaiqi Zang, of Hangzhou Normal University Affiliated Hospital in China, and colleagues.

The researchers reported no competing interests, and the study was supported by the 2025 Zhejiang Provincial Health Science and Technology Program.

Source: BMJ Open

Sunday, January 2, 2022

Developing connections for engagement in stroke rehabilitation

This is so fucking simple. Survivor engagement will automatically occur when you have EXACT PROTOCOLS LEADING TO 100% RECOVERY! Guidelines are fucking worthless.

Developing connections for engagement in stroke rehabilitation

Published online by Cambridge University Press:  27 December 2021

Abstract

Background and Aims:

Engagement is increasingly recognised as important for maximising rehabilitation outcome following stroke. However, engagement can be challenging when neurological impairment impacts a persons’ ability to activate the regulatory processes necessary for engagement and in the context of a changed self. We explored engagement in stroke rehabilitation from the perspective of people with stroke with a primary focus on identifying key processes that appeared important to engagement in stroke rehabilitation.

Design and Methods:

This study drew on Interpretive Description methodology. Maximum variation and theoretical sampling were used to capture diversity in the sample and access a depth and breadth of perspectives. Data collection included semi-structured interviews with people with stroke (n = 19). Data were analysed through a collaborative and iterative process drawing on range of analytical tools including coding, memoing, diagramming and group discussions.

Findings:

Our findings highlight that engagement is a complex, nuanced, responsive, flexible and inherently two-way process. Developing connections appeared central to engagement with connections taking various forms. The most fundamental was the therapeutic connection between the person with stroke and their practitioner as it provided the foundation on which to build other connections. Connection was made possible through five collaborative processes: Knowing, Entrusting, Adapting, Investing and Reciprocating.

Conclusions:

Engagement is a social and relational process enabled through an inherently person-centred approach and active and ongoing reflexivity – highlighting the importance of a humanising approach to care where aspects of self, care and emotion are evident, for both the person with stroke and their practitioner.

 

Tuesday, April 25, 2017

Exploring relational engagement practices in stroke rehabilitation using the Voice Centred Relational Approach

How can practitioners be engaged in their patients stroke recovery when they know damn well that only 10% get to full recovery and they don't have any protocols with efficacy ratings to give their patients?  I don't give a shit how well you engage me. Get me to 100% recovery.
http://www.tandfonline.com/doi/abs/10.1080/13645579.2017.1316044


Pages 1-14 | Received 20 Oct 2016, Accepted 03 Apr 2017, Published online: 24 Apr 2017


While discussions on patient engagement commonly focus on patient behaviors, a small body of research highlights the patient-practitioner relationship as critical in engagement. Understanding this relationship might be facilitated through a relationally-oriented methodology. The Voice Centred Relational Approach is one such qualitative methodology. Within this paper, we present one turn in a long conversation about this methodology. Drawing on our longitudinal observational study of engagement practices in stroke rehabilitation in New Zealand, we explicate how a theoretical framework can inform how the Voice Centred Relational Approach is enacted in the research process, from entering the field to dissemination. We detail how we adapted the associated analytic techniques (the Listening Guide and i-poems) for use with multiple forms and sources of data. We propose that the underlying relational ontology and relational orientation of this methodology makes it a useful approach in researching relational practice in healthcare.

Sunday, February 26, 2017

Co-constructing engagement in stroke rehabilitation: a qualitative study exploring how practitioner engagement can influence patient engagement

How can practitioners be engaged in their patients stroke recovery when they know damn well that only 10% get to full recovery and they don't have any protocols with efficacy ratings to give their patients?
http://journals.sagepub.com/doi/full/10.1177/0269215517694678
First Published February 1, 2017 research-article




To explore how practitioner engagement and disengagement occurred, and how these may influence patient care and engagement.

A qualitative study using the Voice Centred Relational Methodology. Data included interviews, focus groups and observations.

Inpatient and community stroke rehabilitation services.

Eleven people experiencing communication disability after stroke and 42 rehabilitation practitioners.

Not applicable.

The practitioner’s engagement was important in patient engagement and service delivery. When patients considered practitioners were engaged, this helped engagement. When they considered practitioners were not engaged, their engagement was negatively affected. Practitioners considered their engagement was important but complex. It influenced how they worked and how they perceived the patient. Disengagement was taboo. It arose when not feeling confident, when not positively impacting outcomes, or when having an emotional response to a patient or interaction. Each party’s engagement influenced the other, suggesting it was co-constructed.

Practitioner engagement influenced patient engagement in stroke rehabilitation. Practitioner disengagement was reported by most practitioners but was often a source of shame.

Friday, November 29, 2013

Barriers and facilitators to engagement in rehabilitation for people with stroke: a review of the literature

I'm impressed with this as an undergraduate project.
http://physiotherapy.org.nz/assets/Professional-dev/Journal/2013-November/ML-Roberts-LR.pdf
Grace A MacDonald
BHSc (Physiotherapy), NZRP
Physiotherapist (Shore Physiotherapy)
Nicola M Kayes
BS
c
,
MSc(Hons), PhD
Senior Lecturer, Person Centred Research Centre, Health and Rehabilitation Research Institute, AUT University
Felicity Bright
BSLT (Hons), MHSc (Hons), MNZSTA
Speech Language Therapist, School of Rehabilitation and Occupation Studies
PhD Candidate, Person Centred Research Centre, Health and Rehabilitation Research Institute, AUT University
 
ABSTRACT
While there is a growing acknowledgement of the significant role that engagement plays in rehabilitation, there is limited knowledge
of the factors that may help or hinder engagement in stroke rehabilitation. This review drew on systematic principles and aimed
to explore what is currently known about the perceived barriers and facilitators to engagement in stroke rehabilitation. EBSCO,
SCOPUS and Google Scholar databases and reference lists were searched for papers that provided insight into the process of
engagement or disengagement in stroke rehabilitation.
Data were extracted and synthesised thematically from 17 papers. Themes
included goal setting, therapeutic connection, personalised rehabilitation, paternalism versus independence, patient centered practice,
knowledge is power, and feedback and achievement. None of the papers identified however, explicitly sought to investigate the
complexities of engagement in rehabilitation specifically within the stroke population. Future research is needed to explore this topic
in more depth from the perspective of all the key stakeholders. A more comprehensive understanding of engagement in stroke
rehabilitation may inform the development of interventions to better equip rehabilitation providers with the clinical skills to facilitate
engagement and effectively deliver rehabilitation modalities.
MacDonald GA, Kayes NM, Bright F (2013) Barriers and facilitators to engagement in rehabilitation for people with
stroke: a review of the literature New Zealand Journal of Physiotherapy 41(3): 112-121

Full 10 page paper at the link.