Changing stroke rehab and research worldwide now.Time is Brain! trillions and trillions of neurons that DIE each day because there are NO effective hyperacute therapies besides tPA(only 12% effective). I have 523 posts on hyperacute therapy, enough for researchers to spend decades proving them out. These are my personal ideas and blog on stroke rehabilitation and stroke research. Do not attempt any of these without checking with your medical provider. Unless you join me in agitating, when you need these therapies they won't be there.

What this blog is for:

My blog is not to help survivors recover, it is to have the 10 million yearly stroke survivors light fires underneath their doctors, stroke hospitals and stroke researchers to get stroke solved. 100% recovery. The stroke medical world is completely failing at that goal, they don't even have it as a goal. Shortly after getting out of the hospital and getting NO information on the process or protocols of stroke rehabilitation and recovery I started searching on the internet and found that no other survivor received useful information. This is an attempt to cover all stroke rehabilitation information that should be readily available to survivors so they can talk with informed knowledge to their medical staff. It lays out what needs to be done to get stroke survivors closer to 100% recovery. It's quite disgusting that this information is not available from every stroke association and doctors group.

Showing posts with label blogs. Show all posts
Showing posts with label blogs. Show all posts

Friday, April 4, 2025

30,000 blog posts

 

When I first started writing this blog 15+ years ago as suggested by Peter Levine, my only goal was to beat him in number of views and find and report on useful rehab. Did that in about 1.5 years. The goal changed to document all the ways survivors could be treated better and get a lot more recovery. This would be quite easy to do if we had the strategy, leadership and foundation money to followup the thousands upon thousands of promising research trials and translate them into valid stroke rehab intervention protocols.
I can't tell if this blog is doing one damn bit of good, not a single doctor that I know of has even commented on this. And the presidents of our fucking failures of stroke associations  haven't contacted me.  I'm sure some employees of those associations know about this but are too scared to tell their president.
I know I have at least 10,000 more posts coming since stroke research is never correlated to any stroke strategy.  I don't see stroke being solved to 100% recovery in the 31 years I have left(age 100).

10,000 posts took from Sept. 2010 to May 2016

The next 10,000 took from May 2016 to Sept. 2020

The next 10,000 took from Sept. 2020 to April 2025  

Sunday, March 12, 2023

I'm getting flagged: Misleading content related to harmful health practices:

 Misleading content related to harmful health practices: misleading health or medical content that promotes or encourages others to engage in practices that may lead to serious physical or emotional harm to individuals, or serious public health harm.

Your post titled "Long-term treatment with methylphenidate for fatigue after traumatic brain injury" has been deleted

Your post titled "Comparative Effectiveness of Pre-stroke Aspirin on Stroke Severity and Outcome" has been deleted

 No clue what was wrong, so as my posts get deleted you'll have to remember them yourselves.

Wednesday, September 2, 2020

20,000 blog posts

 When I first started writing this blog 10 years ago as suggested by Peter Levine, my only goal was to beat him in number of views and find and report on useful rehab. Did that in about 1.5 years. The goal changed to document all the ways survivors could be treated better and get a lot more recovery. This would be quite easy to do if we had the strategy and foundation money to followup the thousands upon thousands of promising research trials and translate them into valid stroke rehab intervention protocols.
I can't tell if this blog is doing one damn bit of good, not a single doctor that I know of has even commented  on this. And the presidents of our fucking failures of stroke associations  haven't contacted me.  I'm sure some employees of those associations know about this but are too scared to tell their president.
I know I have at least 10,000 more posts coming since stroke research is never correlated to any stroke strategy. 

10,000 posts took from Sept. 2010 to May 2016

The next 10,000 took from May 2016 to Sept. 2020

Wednesday, May 29, 2019

Wednesday, May 15, 2019

10 habits that are aging you prematurely

Well, I'm not meditating, but retirement is putting different stresses out there, sleep is much better, when working I sometimes got only 3-4 hours.  Keeping this blog updated takes hours every day.

10 habits that are aging you prematurely

Naveed Saleh, MD, MS, for MDLinx | April 15, 2019
Quests for youth date back millennia. Alexander the Great was fabled to have found a healing “river of paradise” in the fourth century BC. During the Middle Ages, people believed that the mythical king Prester John ruled over a kingdom that was home to not only a fountain of youth, but also a river of gold. And the indigenous Taíno of the Caribbean spread word of a magic fountain and rejuvenating river that lay north of Cuba. Such tales led people to speculate that when Ponce de León set out for Florida, he was looking for the fountain of youth. He was, however, more likely looking for riches and political influence.

Science is informing us that certain behaviors can have premature aging effects on our bodies and minds, including holding grudges.
Although most people no longer believe in elixirs of youth, science is informing us that certain behaviors can have premature aging effects on our bodies and minds. The real fountain of youth may, therefore, lie—in part—in curbing some of these lifestyle choices.
  1. Watching too much television
We live in the golden age of television, and binge watching has never been better. But there are limits on the amount of Netflix or Hulu that your health can bear.
In an article published in JAMA Psychiatry, Hoang and colleagues found that watching ≥ 3 hours a day of television combined with low levels of physical activity in early adulthood were correlated with reduced executive function and processing speed in middle age. The authors suggested that curbing these behaviors might prevent cognitive aging.
  1. Having poor sleep habits
Early morning routines followed by burning the midnight oil can take its toll on your skin. Poor sleep was linked to premature skin aging, according to a study supported by Estée Lauder and conducted by researchers at the University Hospitals Case Medical Center. Poor sleepers demonstrated more signs of skin aging and slower recovery from environmental stressors, including disruption of the skin barrier or ultraviolet radiation. Poor sleepers also had impaired insight into their own skin and facial appearance.
  1. Making unhealthy choices
In a high-powered cohort study, Australian researchers found that smoking, physical inactivity, high alcohol intake, poor diet, prolonged sitting, and unhealthy (short or long) sleep duration worked synergistically to increase risk for all-cause mortality.
“This analysis investigated four established and two novel risk factors, namely, prolonged sitting and unhealthy sleep duration, which may be added to behavioral indices or risk combinations to quantify health risk,” concluded the researchers. “The prevalent combinations of risk factors suggest new strategic targeting for chronic disease prevention.”
  1. Not feeling your age
For those who believe that age is just a number, this study is for you. People who felt older than they actually were had increased rates of hospitalizations, according to a study published in Health Psychology. This effect held up after controlling for age, sex, race, education, and to a lesser extent, disease burden and depression.
  1. Holding grudges
With respect to your lifespan, it’s probably a good idea to let grudges go. The conditional forgiveness of others—as opposed to unconditional forgiveness—is associated with higher mortality, according to research published in the Journal of Behavioral Medicine. The researchers concluded that “the mortality risk of conditional forgiveness may be conferred by its influences on physical health.”
  1. Barbecuing
However delicious, barbecuing might burn away years of your life. Chemicals called heterocyclic amines (HCAs) and polycyclic aromatic hydrocarbons (PAHs) form when muscle meat—including beef, pork, fish, or poultry—are cooked using high-temperature methods, such as barbecuing or frying. HCAs and PAHs are mutagenic and may, therefore, increase cancer risk.
In various epidemiologic studies, investigators have examined the relationship between meat consumption and cooking methods using detailed surveys. Some have found that well-done, fried, or barbecued meats are linked to the highest risks of colorectal, pancreatic, and prostate cancers. Other researchers, however, have failed to show these links.
And, while we’re on the topic of barbecuing, let’s add that in 2015, the International Agency for Research on Cancer (IARC) judged the consumption of red meat to be “probably carcinogenic to humans” based on data from the epidemiologic studies and compelling evidence from mechanistic studies.
  1. Eating sugary foods
Here’s another reason to pass on sugary snacks. Highly processed, sugar-added foods contain advanced glycation end products (AGEs). In animal models, accumulation of AGEs in various tissues has been associated with peripheral insulin resistance and alterations in lipid metabolism. Furthermore, on a cellular level, AGEs interfere with lipid synthesis, inflammation, antioxidant defenses, and mitochondrial metabolism. Via impact on different signaling patterns, AGEs may also contribute to liver, skeletal muscle, cardiac muscle, and brain damage, as well as metabolic disease.
“Indeed, the most recent reports on the effects of high sugar consumption and diet-derived AGEs on human health reviewed here suggest the need to limit the dietary sources of AGEs, including added sugars, to prevent the development of metabolic diseases and related comorbidities,” wrote the authors of a review published in Nutrients.
  1. Not meditating
If you wish to counteract the effects of aging on the brain, you may want to start thinking about meditation. Researchers at the University of California, Los Angeles (UCLA) found that meditation might help preserve gray matter in the brain, which contains neurons. This preservation could protect against mental illness and neurodegenerative diseases.
  1. Not detoxing
Cognition relies on the central nervous system (CNS) to maintain high rates of energy production at all times. A healthy internal electrochemical environment is necessary for cognitive longevity. During oxidative stress, the CNS is exposed to reactive oxygen species, which deregulate the supply of oxygen to the CNS. Reactive oxygen species also result in mitochondrial decay. The combined effects of oxidative stress and mitochondrial decay lead to a process similar to cognitive aging.
In a literature review published in Nutrition, Michael J. Glade, PhD, recommended dietary supplementation with antioxidants and other neuroprotective nutrients as a means of neuroprotection. “Maintenance of redox balance within the [CNS] can forestall cognitive decline and promote cognitive longevity,” he wrote.
  1. Over-working
Work-related exhaustion may be associated with shorter leukocyte telomere length, according to the results of a Finnish study published in PLOS ONE. In turn, shortened telomeres can accelerate aging and reduce longevity. If you’re feeling overworked, maybe it’s time to cut back some.

Monday, January 28, 2019

Top 25 Stroke Blogs and Websites To Follow in 2019

I made #4 on this list, probably not higher since I don't do Facebook, Twitter, Instagram. Didn't even crack the The 10 best stroke blogs - Medical News Today.

But I bet I have more views than all of these combined. 

My blog is not to help survivors recover, it is to have the 10 million yearly stroke survivors  light fires underneath their doctors, stroke hospitals and stroke researchers to get stroke solved. 100% recovery.  The stroke medical world is completely failing at that goal, they don't even have it as a goal. 

Top 25 Stroke Blogs and Websites To Follow in 2019

Thursday, November 8, 2018

4 million views of this blog

I must still be interesting to some people. I have never received any direct communications from any stroke medical professionals. Are they scared to talk to me?
First million took from Aug. 2010  to Sept. 2014
Second million from Sept. 2014 to May 2016
Third million from May2016 to March 2017
Fourth million from March 2017 to November 2018
The first post was:


What my doctor should have told me about stroke recovery

Still has the same relevance today. And I'm still as arrogant and opinionated as ever.



Pageviews yesterday 
631
Pageviews last month 
21,846
Pageviews all time history 
4,000,203
Followers
  37


Tuesday, December 12, 2017

Top 25 stroke blogs

Made  #4 right after Peter Levines. Although the posting frequency of 4 times a week is completely wrong. I average 8-10 posts a day. Amy, Rebecca, Joyce, Jenni, Rose are also in there.
https://blog.feedspot.com/stroke_blogs/

Thursday, September 21, 2017

Using Blogs to explore the lived experience of life after Stroke: 'A journey of discovery I never wanted to take

I do wish they had identified the 8 blogs.
https://www.ncbi.nlm.nih.gov/pubmed/28910496

Abstract

AIMS:

To explore the lived-experiences of stroke survivors as expressed in blogs and to discover the role the blogs play in the writers' lives.

BACKGROUND:

Stroke can be a devastating, life changing event. Previous qualitative studies tend to examine one aspect of life after stroke. As stroke often has multiple effects it is necessary to look widely at its lived-experience. New resources which can enable researchers to explore the lived-experience of stroke are blogs.

DESIGN:

Phenomenological exploration using an interpretive thematic analysis.

METHODS:

The internet was searched for stroke survivors' blogs (January - March 2016) using pre-set criteria, seeking blogs with entries over an extended time (>1 year). Suitable blogs were identified and codes of meaning were identified and developed into categories, sub-themes and themes.

FINDINGS:

Eight blogs were identified for analysis. Of the 40 categories, eight sub-themes were assimilated; internal dialogue, emotions, transition, stroke effects, healthcare, 'in the world', relationships, rehabilitation. Two main themes were identified related to perspectives of lived-experience; Internal relationship with 'self' and External relationship with 'the world'. Participants expressed loss and initially strove to regain their 'old' lives, their focus being recovery and independence.

CONCLUSION:

Stroke survivors must transition from their previous life to a new and initially unwelcome way of being. Rehabilitation should respect this process and support stroke survivors as they undertake this individual journey. This article is protected by copyright. All rights reserved.

KEYWORDS:

Blogs; Patients; Stroke; life changing; nursing; qualitative research; thematic analysis
PMID:
28910496
DOI:
10.1111/jan.13457

Thursday, August 3, 2017

The 10 best stroke blogs

Well, I didn't make it. The worthless WSO one did, Joyce Hoffman, Rebecca Dutton and Peter Levine are in the top 10.  I bet I have more page views than all of these 10 combined.Oh well, I'll continue shouting into the void.  Friends could comment to
http://www.medicalnewstoday.com/articles/318800.php

Monday, May 29, 2017

Which #PatientLeader Will You Nominate for "Best in Show: Blog"?

WEGO Health awards.

Which #PatientLeader Will You Nominate for "Best in Show: Blog"?
 
Who's blog do you absolutely love? Who has the best information, raises awareness, and goes the extra mile for patients and/or caregivers? Which blog do you believe truly raises the bar? This #PatientLeader may be active on numerous social platforms, but their blog is the bread and butter of how they advocate.

The winner of this category embodies the essence of what a great blogger should aspire to be.  Visit the WEGO Health Awards website to learn about all 16 award categories and nominate NOW if you haven’t already.


Monday, August 29, 2016

Some statistics on my blog

This site gave me the instructions to find this:
http://www.problogger.net/how-to-build-22938-links-to-your-blog/
Total external links to my blog: 93,446

Who links the most


blogspot.com    86,921

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