Experience of information provision at the stroke unit from the perspective of relatives to stroke survivors

Oh God, measuring the delivery of information rather than the actual recovery delivered.  Since there was no delivery of 100% stroke recovery protocols you're completely not doing anything useful. Every single relative should have reamed them out for not providing any information to get them recovered.

 Experience of information provision at the stroke unit from the perspective of relatives to stroke survivors

Rehabilitation Process and Outcome , Volume 8

NARIC Accession Number: J85749.  What's this?
ISSN: 1179-5727.
Author(s): Kristensson, Linda ; Björkdahl, Ann.
Publication Year: 2021.
Number of Pages: 8.

Abstract: 

Study explored how relatives of stroke survivors perceived the information they received while the stroke survivor was in the stroke unit. Semi-structured interviews were conducted with 14 relatives of people who sustained a stroke and were admitted to any of the three stroke units at Sahlgrenska University Hospital in Gothenburg, Sweden. Qualitative content analysis served to analyze the transcribed interview texts. The content analysis yielded four categories, each with 2 to 3 subcategories. The overall theme was “to be acknowledged or not”; it encompassed the underlying meaning and the relationships between the categories. The four categories were: (1) shifting information needs, (2) striving for information, (3) lacking continuity and structure, and (4) taking part and being acknowledged. The results showed that the relatives of stroke survivors have a strong need for information and showed that the relatives experienced that they did not always feel satisfactorily informed and supported by the healthcare professionals in the stroke unit. A challenge for the healthcare professionals was to be able to give the right information at the right time and in the appropriate way. The study also showed that when the relatives were acknowledged and invited to participate in the rehabilitation process, they were less anxious of the discharge.
Descriptor Terms: COMMUNICATION, FAMILY-CENTERED CARE, HEALTH CARE, HOSPITALS, INTERNATIONAL REHABILITATION, QUALITATIVE ANALYSIS, REHABILITATION, STROKE.


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Citation: Kristensson, Linda , Björkdahl, Ann. (2021). Experience of information provision at the stroke unit from the perspective of relatives to stroke survivors.  Rehabilitation Process and Outcome , 8 Retrieved 4/23/2021, from REHABDATA database.

Full medical support for intracerebral hemorrhage - DNR orders

You'll have to hope your medical team has read this or your relatives like you enough so they don't sign immediate Do Not Resuscitate orders.
http://www.neurology.org/content/early/2015/03/27/WNL.0000000000001525.short?rss=1

1. Lewis B. Morgenstern, MD,
2. Darin B. Zahuranec, MD, MS,
3. Brisa N. Sánchez, PhD,
4. Kyra J. Becker, MD,
5. Madeleine Geraghty, MD,
6. Rebecca Hughes, BA,
7. Gregory Norris, MD and
8. J. Claude Hemphill III, MD, MAS

+Show Affiliations

| + Show Full Disclosures

1. Correspondence to Dr. Morgenstern: lmorgens@umich.edu

1. Published online before print March 27, 2015, doi: 10.1212/WNL.0000000000001525 Neurology 10.1212/WNL.0000000000001525

• Abstract
• Full Text (PDF)

1. Also available:
2. Data Supplement

Abstract

Objective: This study tested the hypothesis that patients without placement of new do-not-resuscitate (DNR) orders during the first 5 days after intracerebral hemorrhage (ICH) have lower 30-day mortality than predicted by the ICH Score without an increase in severe disability at 90 days.

Methods: This was a prospective, multicenter, observational cohort study at 4 academic medical centers and one community hospital. Adults (18 years or older) with nontraumatic spontaneous ICH, Glasgow Coma Scale score of 12 or less, who did not have preexisting DNR orders were included.

Results: One hundred nine subjects were enrolled. Mean age was 62 years; median Glasgow Coma Scale score was 7, and mean hematoma volume was 39 cm³. Based on ICH Score prediction, the expected overall 30-day mortality rate was 50%. Observed mortality was substantially lower at 20.2%, absolute average difference 29.8% (95% confidence interval: 21.5%–37.7%). At 90 days, 27.1% had died, 21.5% had a modified Rankin Scale score = 5 (severe disability). A good outcome (modified Rankin Scale score 0–3) was achieved by 29.9% and an additional 21.5% fell into the moderately severe disability range (modified Rankin Scale score = 4).

Conclusions: Avoidance of early DNR orders along with guideline concordant ICH care results in substantially lower mortality than predicted. The observed functional outcomes in this study provide clinicians and families with data to determine the appropriate goals of treatment based on patients' wishes.