Help Provide Hope After Stroke - National Stroke Association

Begging for money. I don't see any correlation between the NSA and what a great stroke association
should be doing. Up to you if you want to donate. Robyn is obviously too scared to talk to stroke survivors, I have never been contacted. If she doesn't know who her greatest critic is she is incompetent.
http://support.stroke.org/site/R?i=3TYkW2T4VLwz012Zx67YHA

View this message on our website.

Donate today

Dear dean, Because of people like you who generously support the National Stroke Association, there is hope after stroke for the nation’s seven million stroke survivors. For more than 30 years, the National Stroke Association has been the leading nonprofit organization 100% dedicated to stroke. We take great pride in the work we do to fulfill our mission: to reduce the incidence and impact of stroke by delivering education and programs focused on prevention, treatment, rehabilitation and support for all impacted by stroke. The hope-filled programs highlighted below are made possible because of you and your support: Through our Certified Stroke Rehabilitation Specialist program, hundreds of therapists across the country have completed a rigorous set of clinical courses and a comprehensive exam to earn the CSRS certification. Currently in study phase, the Stroke Recovery Navigator was created in 2015 to determine what benefits could be achieved by stroke survivors and caregivers when they are connected to a variety of consistent and dedicated support systems over a six-month period of time. Not only do we want to provide hope after stroke to stroke survivors, but also to the thousands of caregivers who are critical to a stroke survivor’s post-stroke journey.  A goal of many stroke survivors is to return to work, enabling them to become independent again. In 2016, the National Stroke Association supported the Return to Work Awareness Act of 2016, and created the Return to Work Toolkit. Knowing the signs and symptoms of a stroke is the first step to ensuring medical help is received immediately. The FAST program-in-a-box, a bi-lingual education and awareness program, ensures more people know how to recognize potential signs and symptoms of stroke and how to call for help quickly. The National Stroke Association has made great strides in reaching and helping millions of stroke survivors find hope after stroke - but there is still much more that we must accomplish. Will you consider taking a moment and making a donation today? Donate today On behalf of the 7 million stroke survivors across the nation, their caregivers and members of the healthcare community, we sincerely thank you for your ongoing support and trust in the National Stroke Association. Thank you for making a difference and supporting the National Stroke Association. Sincerely, Robyn Moore Chief Executive Officer

9707 E. Easter Lane · Suite B Centennial, CO 80112 1-800-STROKES (787-6537)

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May is National Stroke Awareness Month

So you need to be aware that everything in stroke is a complete failure. And the National Stroke Association is doing NOTHING to solve any of these problems. Fucking lazy awareness campaigns are good enough for them. Not good enough for ANY stroke survivor. It is why stroke survivors need to take over stroke associations.  I bet Robyn Moore will never work up enough courage to contact me, email on side column Robyn or comment on post. A great stroke association president would be contacting all their critics for insight to survivor needs.

1. Only 10% of patients get to full recovery.
2. tPA only fully works to reverse the stroke 12% of the time. Known since 1996.
3. No protocols to prevent your 33% dementia chance post-stroke from an Australian study.
4. Nothing to alleviate your fatigue.
5. Nothing that will cure your spasticity.
6. Nothing on cognitive training unless you find this yourself.
7. No published stroke protocols.
8. No way to compare your stroke hospital results vs. other stroke hospitals.

May is National Stroke Awareness Month

Some 65,000 Americans will experience a stoke during the month of May with many unaware that they were even at risk of having a stroke. Less than a third will arrive in the emergency room within three hours, the optimal time period for better outcomes. It is critical we elevate the conversation around stroke symptoms and risk factors. This year, we will be amplifying the voices of thousands of stroke supporters to release a single unified message across social media on May 23. You can help us raise stroke awareness during the month of May by joining our Thunderclap. Throughout the month we encourage everyone to take a look at their stroke risk factors, and make a pledge to reduce one modifiable risk factor during the month. One of the easiest ways to reduce your stroke risk is to become more active. Physically active people have a 25% – 30% lower risk of stroke than less active individuals. Join us for the Steps to Stop Stroke step challenge, where participants can log their daily steps for a chance to win some great prizes while they train for an upcoming Comeback Trail 5K. Please consider adding your voice to ours during National Stroke Awareness Month as we raise awareness for stroke risk factors, stroke symptoms, and the need to call 9-1-1 if you suspect a stroke. The life you save just might be your own or a loved one’s. Sincerely,

9707 E. Easter Lane · Suite B Centennial, CO 80112 1-800-STROKES (787-6537)

Think FAST Games - stupid, stupid, stupid

This is the best the National Stroke Association can do? Fucking lazy awareness video games? You do realize there are millions of stroke survivors out there waiting for you to solve all  the problems in stroke? Or do you not care? Stroke in your name means nothing? I've even listed out what needs solving and awareness doesn't make the list. Robyn Moore as CEO I dare you to contact me for what needs to be done to solve stroke. It's not that difficult, give me a couple dozen researchers and I can get it done in 10 years. 

Think FAST Games - stupid, stupid, stupid

Play your way to better stroke awareness. How much do you know about stroke? We challenge you to play our Think FAST! games and test your knowledge in four different games. Dare your friends and family to beat your high score!

Creating discomfort in the stroke world

How uncomfortable does your doctors, therapists and hospital have to get before they actually start solving all the problems in stroke?  I don't care that these are BHAGs(Big Hairy Audacious Goals) Obviously they are not uncomfortable now since nothing is being done. I've proven thousands of times that there is lots that can be done or researched that would make stroke recovery much more likely. But no one in power seems to give a shit.
WSO - President - Werner Hacke (Germany) What the fuck have you done?
NSA - Robyn Moore as Chief Executive Officer (CEO) What the fuck have you done?
James Postl - American Heart Association’s new chairman. What the fuck have you done?
Are you all that intimidated that you will not talk to me, a stroke-addled survivor?
Creating discomfort post by Seth Godin. I love his stuff.

Raising Stroke Awareness in May - National Stroke Association

This is why our stroke associations are fucking failures. No survivor really gives a fuck about awareness, they want 100% recovery. Have you never talked to any survivors? No mention of any of the problems in stroke.
Robyn Moore as CEO of the National Stroke Association is obviously doing nothing to solve anything. Status quo which is a complete failure. Call me, I'll give you an earful, or are you afraid?
1. Only 10% of patients get to full recovery.
2. tPA only fully works to reverse the stroke 12% of the time. Known since 1996.
3. No protocols to prevent your 33% dementia chance post-stroke from an Australian study.
4. Nothing to alleviate your fatigue.
5. Nothing that will cure your spasticity.
6. Nothing on cognitive training unless you find this yourself.
7. No published stroke protocols.
8. No way to compare your stroke hospital results vs. other stroke hospitals. 
http://www.strokesmart.org/May-Awareness

Posted by Lynn Bronikowski Apr 26 2017

 

There was a 44% spike in the number of young Americans (under 45 years old) hospitalized due to stroke over the last decade. Yet 73% of younger Americans are not familiar with stroke symptoms and the need for urgent medical attention.
About 800,000 people will have a stroke in the U.S. this year and over 130,000 will die from it.
In honor of National Stroke Awareness Month in May, the National Stroke Association created a website with a plethora of free resources that allows the public to become an advocate for stroke and educate themselves and others.
Visit www.stroke.org/NSAM to learn more about stroke and how to spot it by viewing educational videos, downloading materials and other tools, and using community presentations to help spread the word this May.
At the heart of the May stroke awareness campaign is an animated video titled “Young Stroke: An Unexpected Reality,” which offers insight about stroke and resources for stroke survivors and families.
“It is critical that we get the word out and educate younger Americans about stroke. Stroke is the fifth leading cause of death in the U.S., a leading cause of serious, long-term disability in adults, and it can happen to anyone,” said Robyn Moore, CEO of the National Stroke Association. “A stroke is a ’brain attack’ that occurs when blood flow to the brain is interrupted by a blood clot or broken blood vessel and can be caused by a number of factors. It is a myth that stroke only happens to the elderly. At the heart of the May stroke awareness campaign is an interactive video titled “Young Stroke: An Unexpected Reality,” which offers special insight about stroke in younger adults and outlines resources for younger stroke survivors and families.
Everyone’s help is needed right now to continue spreading the word about identifying stroke symptoms, since every second counts when a stroke occurs, and spotting a stroke correctly is the first step towards saving lives. One way to properly identify a potential stroke is via the FAST method.
FACE: Ask the person to smile. Does one side of the face droop?
ARMS: Ask the person to raise both arms. Does one arm drift downward?
SPEECH: Ask the person to repeat a simple phrase. Is their speech slurred or strange?
TIME: If you observe any of these signs, call 9-1-1 immediately.
Moore said the association’s online resources ask the public to help spread stroke awareness through several channels, ranging from social media, email, and presentations that can be used to learn more about this devastating disease.
Looking for ideas on how you, personally, can play a part in raising stroke awareness? A unique idea generator tool asks a few questions and then suggests a good fit for getting involved with the stroke community.
“Our 2017 campaign primarily focuses on younger stroke survivors, but it also gives people of any age the tools to become informed and spread our message about stroke,” said Moore. “Even something as simple as posting on Facebook or sending one of our colorful E-cards about stroke risks to family members, co-workers and friends will make a difference in getting everyone to wise up about the symptoms of stroke and prevention.”

National Stroke Association Letter to Congress on Health Care Reform

She missed an incredible opportunity to push for a National Stroke Plan, similar to the National Alzheimers Plan. No mention of what it would take to solve all the fucking problems in stroke. Robyn Moore is obviously just a caretaker Stroke president. NO initiatives, NO innovation, NO leadership, just tweak the status quo. If this isn't enough to get her or the board of directors to contact me I don't know what is.
http://www.prnewswire.com/news-releases/national-stroke-association-letter-to-congress-on-health-care-reform-300392975.html

Multiple Sclerosis @Point of Care app with Dr. Watson

Another disease is being helped by IBMs' Dr. Watson. When the hell will stroke leaders acknowledge that they know fucking nothing about stroke rehab and recovery and let an expert in to solve those problems? 10% full recovery is disastrous failure in any endeavor. Never I bet until our fucking failures of stroke associations are destroyed and rebuilt to help survivors.
Care to answer these simple questions?
WSO - President - Werner Hacke (Germany)
NSA - Robyn Moore Chief Executive Officer
ASA - Mariell Jessup, MD - AHA/ASA President

Other uses for the doctor here:

IBM's Watson Supercomputer May Soon Be The Best Doctor In The World

Don't you want the best doctor in the world working or your behalf? Or would you rather stay with your doctor who can't tell you any way to get to 100% recovery?

VA partners with IBM to use supercomputer Watson to treat cancer

MD Anderson Cancer Center to Use IBM Watson

IBM Watson, Boston Children’s team on rare pediatric diseases

The article extolling the virtues:

IBM's Watson Comes to the Bedside

The app and what it can do here:

The @Point of Care™ platform

Improve access to care in your community - National Stroke Association idea

My God, if you would ever actually talk to stroke survivors you would realize they care not one iota of shit about care, they want results, you godammed idiots. I will not be polite to the medical world until they actually prove they are professionals and deserve it. The first step to that is to acknowledge stroke is a massive fucking problem.
Big fucking whoopee.
http://support.stroke.org/site/R?i=edg0qyr7lKnJ0pDocPi-tw

Dear dean, Thank you for being a generous and active member of our community. Each year, we work tirelessly to meet your growing and changing needs. In 32 years, we’ve made great progress in improving the lives of stroke survivors and caregivers and creating greater awareness for stroke. But we know you want us to do more: Improve access to care in your community Provide greater support and resources for life-long recovery   Deliver more opportunities to increase stroke awareness in your community We need your help to make these goals a reality! By making a gift to the National Stroke Association today, you will help us continue our life-saving and life-improving work in communities across the U.S. Because of your support, our programs are making a difference. For example: through our Stroke Recovery Navigator℠ program, we’ve proven the value of having a one-on-one relationship with a trained navigator for survivors once they return home from the hospital. Your gifts allow this program, and many others, to expand into its next phase and reach more survivors. Please stand with us today by making a gift. Together, we will take the next step in moving the needle for stroke survivors and their families. Thank you again for your continued support, it means so much!

With thanks, Robyn Moore CEO Robyn, Why haven't you contacted me yet? I'm positive at least some of your staff knows about their greatest critic.  Are you afraid of a simple minded stroke addled survivor?

Colorado Governor Names National Stroke Association CEO to Statewide Board

If you are a survivor in Colorado ask to be named to this board. The NSA CEO will not propose any  BHAGs(Big Hairy Audacious Goals) only fucking lazy status quo ideas like press releases and awareness. 

Colorado Governor Names National Stroke Association CEO to Statewide Board

Colorado Gov. John Hickenlooper named Robyn Moore, CEO of National Stroke Association to his Stroke Advisory Board to help shape the future of stroke programs statewide and improve quality of care for stroke patients.

Stroke is the fifth leading cause of death in the United States and a leading cause of severe disability; however, many people are unaware of the signs and symptoms of a stroke. Stroke threatens millions of lives and can have devastating effects on survivors and their families; yet more than 80 percent of strokes can be prevented.

"Every day I hear stories about how stroke has affected survivors and their families and am touched deeply by their courage and determination. It is an honor to be their voice on the Stroke Advisory Board and help pave Colorado's statewide efforts to improve stroke care," said Moore. "I also look forward to working with the board to develop strategies for prevention of Colorado's and the nation's fifth leading cause of death and a leading cause of adult disability."

Moore will represent the Centennial, Colo. based National Stroke Association – www.stroke.org - which aims to reduce the incidence and impact of stroke through education and programs focused on prevention, treatment, rehabilitation and support for all impacted by stroke.

The 18-member Stroke Advisory Board—signed into law by Gov. Hickenlooper in 2013— each year makes recommendations to improve stroke care to the Colorado Department of Health and Environment and committees of the State House of Representatives and State Senate.

The board's recommendations, in part, will center on:

• Prevention and treatment of stroke
• Rural and urban coordination of care
• Creating a statewide database for stroke care and data collection

Founded in 1984 as the only national organization devoted 100 percent to stroke prevention and rehabilitation, National Stroke Association offers education, resources and advocacy focused on prevention, acute treatment and rehabilitation; visit www.stroke.org for more information or to get involved.

CONTACT: Lynn Bronikowski, 303-649-9299, lbronikowski@stroke.org

National Stroke Association new CEO - Robyn Moore

You can see immediately that she doesn't seem to be the leader(fundraiser?) stroke needs. Her first mention is of awareness. Not solving all the problems in stroke or even acknowledging that there are problems in stroke. Will have to see if I can find her email address, stroke survivor Matt Lopez did not last long. James Baranski and Matt Lopez seemed to do nothing so I really wonder if the problem is the board of directors incompetence in not giving out correct goals and objectives. Awareness is just a complete fucking code word for doing nothing.

National Stroke Association has appointed veteran nonprofit leader Robyn Moore as Chief Executive Officer (CEO). Moore brings more than 20 years of experience in the nonprofit healthcare industry to the only nonprofit dedicated 100 percent to stroke. Moore most recently was chief development officer at the Alzheimer’s Association of Colorado where for 10 years she oversaw all fundraising efforts and special events. A native of Villa Park, Calif., Moore spent nine years as director of development for the Irvine regional office of City of Hope Cancer Center prior to joining the Alzheimer’s Association.
For more than 30 years National Stroke Association has made significant strides in the stroke community through programs of prevention treatment and post-stroke care and has empowered survivors and their circle of care to thrive after stroke.
Moore is passionate about stroke having witnessed first-hand the impact of stroke when her own father experienced a stroke. He was a Marine fighter pilot for 21 years and later an entrepreneur, who was extremely healthy, walking five miles a day and on his 75^th birthday hiked to the top of Half Dome in Yosemite National Park.
“The effects of stroke on his life at 79 years old have been monumental for him, my step mom and our entire family,” said Moore. “I’m excited to blend my development and nonprofit background with my personal passion for stroke in leading a team that creates support systems and other resources for stroke survivors and their road to recovery.”
Moore said she’s aware of the stroke community’s critical need for awareness of life-saving stroke warning signs, resources to guide and support survivors and their caregivers and professional education for healthcare providers.
Dr. Michael D. Walker, Chairman of National Stroke Association Board of Directors, said the board was impressed by Moore’s passion for stroke and expertise in both philanthropy and healthcare.
“We’re thrilled that Robyn is taking the helm of our national organization,” said Walker. “She not only brings a passion to make a difference in the stroke community but will lead the next phase of our strategic growth on a national scale.”