Changing stroke rehab and research worldwide now.Time is Brain! trillions and trillions of neurons that DIE each day because there are NO effective hyperacute therapies besides tPA(only 12% effective). I have 523 posts on hyperacute therapy, enough for researchers to spend decades proving them out. These are my personal ideas and blog on stroke rehabilitation and stroke research. Do not attempt any of these without checking with your medical provider. Unless you join me in agitating, when you need these therapies they won't be there.

What this blog is for:

My blog is not to help survivors recover, it is to have the 10 million yearly stroke survivors light fires underneath their doctors, stroke hospitals and stroke researchers to get stroke solved. 100% recovery. The stroke medical world is completely failing at that goal, they don't even have it as a goal. Shortly after getting out of the hospital and getting NO information on the process or protocols of stroke rehabilitation and recovery I started searching on the internet and found that no other survivor received useful information. This is an attempt to cover all stroke rehabilitation information that should be readily available to survivors so they can talk with informed knowledge to their medical staff. It lays out what needs to be done to get stroke survivors closer to 100% recovery. It's quite disgusting that this information is not available from every stroke association and doctors group.

Showing posts with label not cure. Show all posts
Showing posts with label not cure. Show all posts

Thursday, July 25, 2024

New Tool Shows Promise in Identifying Patients Who Need Post-Stroke Spasticity Care

 Why? You simply ask the patient if they have muscle stiffness and then tell them there is ABSOLUTELY NOTHING OUT THERE THAT WILL CURE SPASTICITY! Tell them they're screwed for the rest of their life. I've had spasticity for 18 years now and it hasn't lessened one bit.  Notice the word 'care' NOT CURE! Words matter!

New Tool Shows Promise in Identifying Patients Who Need Post-Stroke Spasticity Care

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  • New Tool Shows Promise in Identifying Patients Who Need Post-Stroke Spasticity Care

    What You Should Know: 

    – Early detection and treatment of post-stroke spasticity (PSS) are essential for improving a patient’s ability to function and overall quality of life after a stroke. 

    – To address this need, AbbVie researchers developed the PSS Referral Tool to help clinicians involved in stroke rehabilitation identify and refer patients with PSS more quickly. A recent study investigated the reliability of this tool in a clinical setting.

    Study Design and Findings

    The researchers conducted a prospective study with three phases. In the first phase, they created standardized videos showing patients undergoing clinical assessments. In the second phase, a panel of PSS experts categorized the videos into different referral categories: urgent referral, routine referral, and periodic monitoring. Finally, in the third phase, the researchers recruited clinicians, including physical therapists, non-injecting physiatrists, and neurologists, from various regions around the world. These clinicians had no prior experience with the PSS Referral Tool and were trained on how to use it before classifying referral needs for patients in the videos.

    The researchers assessed inter-rater reliability using a statistical method called the intraclass correlation coefficient (ICC). This score indicates the level of agreement between the clinicians’ ratings. An ICC score closer to 1 reflects better agreement.

    The study recruited a total of 50 clinicians from various regions, with approximately 70% having no prior experience with the PSS Referral Tool. The overall ICC for clinician ratings was 0.68, indicating good reliability. The accuracy rates for different referral categories were as follows:

    • Urgent Referral: 69.2% (173/250)
    • Routine Referral: 69.2% (173/250)
    • Periodic Monitoring: 88.0% (220/250)

    Interestingly, even clinicians with no experience using the tool were able to correctly classify a high proportion of videos. Clinicians with and without experience correctly classified 14/15 and 13/15 videos, respectively, translating to sensitivity rates of 93.3% and 86.7%.

    Friday, July 7, 2023

    Overburdened, Undertreated: Developments in the Patient-Centered Management of Spasticity in Multiple Sclerosis

    Does your doctor have enough functioning brain cells  to spend 45 minutes with this CME to see if anything here will get your spasticity cured? I see nothing useful here since they are talking 'management' NOT CURE!

    Overburdened, Undertreated: Developments in the Patient-Centered Management of Spasticity in Multiple Sclerosis

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    Overburdened, Undertreated: Developments in the Patient-Centered Management of Spasticity in Multiple Sclerosis

    Activity Overview

    Over 80% of patients with multiple sclerosis (MS) experience related spasticity. This symptom can be debilitating for both physical and non-physical daily function. Yet, despite the high prevalence and impact of spasticity, a substantial portion of affected patients remain unrecognized and undertreated.

    Even when cases are accurately identified, achieving adequate treatment is challenging. Many of the most common therapies are accompanied by unpleasant side effects (e.g., insomnia, muscle weakness) that often lead to their discontinuation. Though botulinum neurotoxin (BoNT) is among those shown to be effective, optimal timing and patient selection are needed to maximize its benefits. The current activity seeks to help clinicians circumvent unpleasant side effects and undertreatment through personalizing and adjusting therapy based on individual patient needs. In collaboration with the Multiple Sclerosis Foundation, 239 patients with MS-related spasticity were surveyed to give deeper insight into evidence-based strategies to improve patient outcomes.  


    Target Audience

    The target audience for this initiative includes general neurologists, physiatrists, nurse practitioners, physician assistants, and other healthcare professionals involved in the diagnosis and long-term management of patients with MS-related spasticity.


    Learning Objectives

    Upon completion of the educational activity, participants should be able to:

    • Identify concerns and preferences of patients with MS surrounding the experience and treatment of spasticity, and apply this information in the development of improved patient-driven management strategies
    • Assess diverse presentations of MS-related spasticity to accurately identify patients early  in the disease course and intervene accordingly
    • Determine patient-centered strategies to target individual treatment goals using both non-pharmacological and medication-based approaches
    • Analyze key considerations for the effective use of BoNT injections to maximize their benefits and ensure patient satisfaction with treatment

    Presenting Faculty

    Scott Newsome, DO, MSCS, FAAN, FANA (Chair)
    Director, Neurosciences Consultation and Infusion Center Stiff Person Syndrome Center
    Johns Hopkins Neuroimmunology and Neurological Infectious Disease Fellowship
    Co-Director, Multiple Sclerosis Experimental Therapeutics Program
    Associate Professor of Neurology
    Baltimore, MD

    Daniel S. Bandari, MD, MS
    Director, Multiple Sclerosis Center of California & Research Group
    Clinical Assistant Professor of Neurology & Neuro-immunology
    University of Southern California, Keck School of Medicine
    Laguna Hills, CA

    Lisa Fox, PA-C
    Senior Physician Assistant, Neurology/Neuroimmunology
    Associate Director, Neurology Outpatient Infusion Center
    Johns Hopkins University
    Baltimore, MD

    Friday, June 30, 2023

    Neuro Rehab and Spasticity Management | HealthCasts Season 5, Episode 13

    20 minutes, too long, didn't listen because it talked about 'management' NOT CURES!

    Thursday, October 6, 2022

    Effective Management of Post-Stroke Spasticity

    I most certainly will not be wasting my time on this.

    'Management' NOT CURE

    Effective Management of Post-Stroke Spasticity

    With the aim of improving the quality of support and educational material available globally on the topic of Life After Stroke, the World Stroke Academy invites you to participate in a free 60min webinar on the ‘Management of Post-Stroke Spasticity’.
     

    Speakers:

    • Diana Wong Ramos - Portugal AVC – Uniao de Sobreviventes, Familiares e Amigos (Portugal)
    • Theodore Wein - Assistant Professor of Neurology and Neurosurgery, Stroke Prevention Clinic,Montreal General Hospital, McGill University (Canada)
    • Richard Zorowitz - Chief Medical Informatics Officer, MedStar National Rehabilitation Network and Professor of Clinical Rehabilitation Medicine, Georgetown University School of Medicine (USA)

    Moderator:

    • Christine Roffe, Professor of Stroke Medicine, Keele University (United Kingdom)
    Description:

    With the aim of improving the quality of support and educational material available globally on the topic of Life After Stroke, the World Stroke Academy, the Educational platform of the World Stroke Organization, invites you to participate in a free 60min webinar on the ‘Management of Post-Stroke Spasticity’. This webinar will be structured in 3 segments. The first one will introduce the personal experience of spasticity after stroke in a stroke survivor. The second will cover the topic of motor impairments and activity limitations after stroke and the third one will focus on the benefits of treating spasticity early.

    This activity is funded by an unrestricted educational grant by Ipsen.

    Chair/Moderator:

    Prof. Christine Roffe (UK)

    Topics and speakers:

    Spasticity after stroke: my personal experience – Diana Wong Ramos (Portugal)
    Motor impairments and activity limitations after stroke – Theodore Wein (Canada)
    Treating spasticity early: what are the benefits? – Richard Zorowitz (USA)
    Date and time:

    2 PM CET on 11th October, 2022

    •  

    Monday, June 8, 2020

    CAUSES AND MANAGEMENT OF CIRCUMDUCTION GAIT IN HEMIPLEGIC

    2 hour 3 minute video; too long, didn't listen. 

    Two major problems with this.

    1. 'Management' NOT cure.

    2. The echo in the video made it almost impossible to understand. Only made it thru 8 minutes, it needs closed captioning.

    CAUSES AND MANAGEMENT OF CIRCUMDUCTION GAIT IN HEMIPLEGIC