Changing stroke rehab and research worldwide now.Time is Brain! trillions and trillions of neurons that DIE each day because there are NO effective hyperacute therapies besides tPA(only 12% effective). I have 523 posts on hyperacute therapy, enough for researchers to spend decades proving them out. These are my personal ideas and blog on stroke rehabilitation and stroke research. Do not attempt any of these without checking with your medical provider. Unless you join me in agitating, when you need these therapies they won't be there.

What this blog is for:

My blog is not to help survivors recover, it is to have the 10 million yearly stroke survivors light fires underneath their doctors, stroke hospitals and stroke researchers to get stroke solved. 100% recovery. The stroke medical world is completely failing at that goal, they don't even have it as a goal. Shortly after getting out of the hospital and getting NO information on the process or protocols of stroke rehabilitation and recovery I started searching on the internet and found that no other survivor received useful information. This is an attempt to cover all stroke rehabilitation information that should be readily available to survivors so they can talk with informed knowledge to their medical staff. It lays out what needs to be done to get stroke survivors closer to 100% recovery. It's quite disgusting that this information is not available from every stroke association and doctors group.

Showing posts with label challenge. Show all posts
Showing posts with label challenge. Show all posts

Wednesday, December 16, 2020

Sunday, January 14, 2018

The measure of stroke environment (MOSE): Development and validation of the MOSE in post-stroke populations with and without aphasia

No clue.
http://search.naric.com/research/rehab/redesign_record.cfm?search=2&type=all&criteria=J77368&phrase=no&rec=135306&article_source=Rehab&international=0&international_language=&international_location=
Topics in Stroke Rehabilitation , Volume 23(5) , Pgs. 348-357.

NARIC Accession Number: J77368.  What's this?
ISSN: 1074-9357.
Author(s): Babulal, Ganesh M.; Connor, Lisa T..
Publication Year: 2016.
Number of Pages: 10.
Abstract: Article describes the development and psychometric properties of a new environmental measure that identifies barriers and facilitators in receptivity, physical environment, and communication for post-stroke populations, including survivors with aphasia. The Measure of Stroke Environment (MOSE) was developed using information from semi-structured interviews and three pilot studies. It contains 47 items across 33 questions in three domains (receptivity, physical environment, and communication). The MOSE is able to determine how frequently a stroke survivor faces challenges in their environment and how that impacts his or her participation. Reliability and validity were assessed in 43 post-stroke participants. Internal consistency reliability was high (.83 to .85) across each domain and over the entire assessment (.91). Convergent validity showed moderate correlation with the Stroke Impact Scale (.33 to .37), the National Institute of Health Stroke Scale (-.31 to -.46), and the Boston Diagnostic Aphasia Examination (.55 to .61). Subjects with aphasia had significantly lower scores on the communication domain. Stroke survivors with (26 percent overall difficulty) and without aphasia (31 percent overall difficulty) continue to experience difficulty 2 or more years post-stroke. The MOSE offers a brief, reliable, and valid assessment of environmental barriers and facilitators to participation for post-stroke survivors reintegrating into their communities. Stroke survivors with very mild deficits continue to experience barriers from the environment many years post-stroke. These barriers are not typically identified during the rehabilitation process but persist post-reintegration.
Descriptor Terms: APHASIA, BARRIERS, COMMUNICATION, COMMUNITY INTEGRATION, COMMUNITY LIVING, MEASUREMENTS, OUTCOMES, PERFORMANCE STANDARDS, STROKE.


Can this document be ordered through NARIC's document delivery service*?: Y.

Citation: Babulal, Ganesh M., Connor, Lisa T.. (2016). The measure of stroke environment (MOSE): Development and validation of the MOSE in post-stroke populations with and without aphasia.  Topics in Stroke Rehabilitation , 23(5), Pgs. 348-357. Retrieved 1/14/2018, from REHABDATA database.

Saturday, September 2, 2017

Improving discharge care: The potential of a new organisational intervention to improve discharge after hospitalisation for acute stroke, a controlled before-after pilot study

Who gives a fuck about discharge care? When you are discharged with 100% recovery you really need nothing else. Solve the correct problem you blithering idiots, 100% recovery.  Are you not up to the challenge of the BHAG(Big Hairy Audacious Goal) of 100% recovery?
https://www.mdlinx.com/internal-medicine/medical-news-article/2017/08/25/discharge-care-acute-stroke-intervention-tia/7281677/?
BMJ Open
Cadilhac DA, et al.
In order to improve the discharge care in patients admitted with acute stroke or transient ischaemic attack, this study intended to formulate and pilot test an interdisciplinary, organisational intervention. An effective and sustained improvement could be attained via a staged and peer–informed, organisational intervention. Additional application and research on a larger scale were necessitated.

Methods

  • This research was performed at the acute care public hospitals in Queensland, Australia (n=15).
  • 15 hospitals were ranked against a benchmark based on a composite outcome of three discharge care processes.
  • The participants took part in a focus group to elicit their success factors.
  • Two pilot hospitals then participated in the organisational intervention that was designed with experts and consumers.
  • The enrollment constituted hospital clinicians involved in discharge care for stroke and patients admitted with acute stroke or transient ischaemic attack.
  • A four-stage, multifaceted organisational intervention involved data reviews, education and facilitated action planning.
  • The primary measures were 3 discharge processes collected in Queensland hospitals within the Australian Stroke Clinical Registry to select study hospitals: (1) discharge care plan; (2) antihypertensive medication prescription and (3) antiplatelet medication prescription (ischaemic events only).
  • Primary measure was the composite outcome.
  • Secondary measures included individual adherence changes for each discharge process; sensitivity analyses.
  • A comparison was carried out of the performance outcomes , 3 months prior to the intervention (preintervention), 3 months postintervention and at 12 months (sustainability).

Results

  • An inspection was conducted of the findings from 1289 episodes of care from the two pilot hospitals.
  • Improvements from preintervention adherence were: Antiplatelet therapy (88%vs96%, p=0.02); antihypertensive prescription (61%vs79%, p<0.001); discharge planning (72%vs94%, p<0.001); composite outcome (73%vs89%, p<0.001).
  • An insignificant decay effect was reported over the 12-month sustainability period (composite outcome: 89% postintervention vs 85% sustainability period, p=0.08).

Friday, June 2, 2017

The Effects of Highly Challenging Balance Training in Elderly With Parkinson’s Disease

Shouldn't the same type of challenging balance training be applied to stroke? Don't challenges make you recover faster?
http://journals.sagepub.com/doi/full/10.1177/1545968314567150?
First Published January 21, 2015 Research Article


Background. Highly challenging exercises have been suggested to induce neuroplasticity in individuals with Parkinson’s disease (PD); however, its effect on clinical outcomes remains largely unknown.  
Objective. To evaluate the short-term effects of the HiBalance program, a highly challenging balance-training regimen that incorporates both dual-tasking and PD-specific balance components, compared with usual care in elderly with mild to moderate PD.  
Methods. Participants with PD (n = 100) were randomized, either to the 10-week HiBalance program (n = 51) or to the control group (n = 49). Participants were evaluated before and after the intervention. The main outcomes were balance performance (Mini-BESTest), gait velocity (during normal and dual-task gait), and concerns about falling (Falls Efficacy Scale–International). Performance of a cognitive task while walking, physical activity level (average steps per day), and activities of daily living were secondary outcomes.  
Results. A total of 91 participants completed the study. After the intervention, the between group comparison showed significantly improved balance and gait performance in the training group. Moreover, although no significant between group difference was observed regarding gait performance during dual-tasking; the participants in the training group improved their performance of the cognitive task while walking, as compared with the control group. Regarding physical activity levels and activities of daily living, in comparison to the control group, favorable results were found for the training group. No group differences were found for concerns about falling.  
Conclusions. The HiBalance program significantly benefited balance and gait abilities when compared with usual care and showed promising transfer effects to everyday living. Long-term follow-up assessments will further explore these effects.

Monday, April 3, 2017

Revealed: The Type of Music That Makes You Feel Most Powerful

You'll need this to take on the difficult challenges of stroke recovery, but I'm sure your doctor will know nothing, including how good music is for your recovery. 69 posts on music. 37 posts on music therapy.
http://www.spring.org.uk/2014/08/revealed-the-type-of-music-that-makes-you-feel-most-powerful.php
If you want to get pumped up before a big event, what type of music should you choose?
Music has already been shown to have all kinds of effects on the mind, like making you happier, reducing pain and bringing people together.
Now a new study finds that music of the right kind can transform the listener’s sense of power.
The study, published in the journal Social Psychological and Personality Science, was inspired by the pre-game routines of athletes (Hsu et al., 2014).
Dennis Hsu, who led the study, explains:
But which type of music is best for boosting your power and what is it about that music that makes you feel powerful?
To investigate they first had to identify some pieces of music that made people feel powerful.
After testing 31 clips they found that songs rated the most powerful were:
  • Queen’s “We Will Rock You”
  • 2 Unlimited’s “Get Ready for This”
The least powerful songs were:
  • Fatboy Slim’s “Because We Can”
  • Baha Men’s “Who Let the Dogs Out”


More at link.

Thursday, February 2, 2017

Night walking challenges

Last night didn't get walking until 7:15 so I had to use my headlamp, it is somewhat safer since I can see major obstacles in the path. I am using a walking stick for compensation, it allows me to walk much faster, about 7,500 steps in 2 hours. The 5 inches of snow slows me down a lot. The Wellies I'm wearing have no ankle support so this is wonderful challenges to strengthen my ankles.

Saturday, January 14, 2017

If you want to live longer, take good care of your telomeres

For all the things that your doctor isn't  doing to get you to 100% recovery I bet you are getting nothing on how to age better and longer. On your own again.
https://www.washingtonpost.com/national/health-science/if-you-want-to-live-longer-take-good-care-of-your-telomeres/2017/01/13/0127ab70-d69d-11e6-b8b2-cb5164beba6b_story.html?utm_term=.7be9de6bab30
A couple paragraphs from there;
Pay attention to this story as if your life depended on it.
That’s because thinking about things other than the task at hand can seriously up your anxiety level. Not to stress you out or anything, but that might make you age faster, get sick and die, according to “The Telomere Effect: A Revolutionary Approach to Living Younger, Healthier, Longer,” a book from molecular biologist Elizabeth Blackburn and health psychologist Elissa Epel.
Blackburn (and two colleagues) won the Nobel Prize in 2009 for the discovery of telomerase, the enzyme that replenishes the bits of DNA on either end of your chromosomes. Those bits are called telomeres, and they’re often compared to the plastic caps on shoelaces.
It’s a strategy based on the book’s promising premise: Even if you’re a total stress case, it’s possible to reverse the negative effects by transforming how you respond to situations.
The key, the authors explain, is to develop a “challenge” response. Basically, instead of crumbling under the pressure of responsibilities or events, you should have a “bring it on!” mentality. It also helps to banish negativity, practice self-compassion and not be an idiot about your health. (I.e., get enough sleep and physical activity, cut out processed foods and smoking.)

I looked at stroke recovery as a challenge not as 'woe is me'.

Tuesday, January 10, 2017

New walking app could make later life healthier and happier

I think the objective here of making walking easier is incorrect for stroke survivors. Survivors will recover faster by doing more challenging routines. But I could be wrong so ask your doctor. Challenges are increased exponentially by consuming alcohol. Don't follow that idea of mine. 

New walking app could make later life healthier and happier


‘Walking for Well-Being’, a prototype app that makes it easy to plan less difficult, less demanding walking routes, could help people to stay fit, active and independent as they get older.
Accessible via mobile phone or tablet, it is one of the innovations developed and tested by new research that set out to produce practical, low-cost mobility aids encouraging older people to get out and about and to sustain healthy lifestyles.
The University of York led the research, funded by the Engineering and Physical Sciences Research Council (EPSRC) under the Lifelong Health and Wellbeing initiative. The Arts and Humanities Research Council (AHRC) and Economic and Social Research Council (ESRC) provided additional funding.
By highlighting steep slopes, uneven pavements, busy roads and other challenging features that can then be avoided, ‘Walking for Well-Being’ could be used to support people who want to visit friends, access shops and use local services and facilities. It could also highlight green spaces and other features that would make a walking route more pleasant and enjoyable.
Figures from Age UK have shown that 9 per cent of older people in the UK (around 900,000) feel trapped in their own home, while around 6 per cent (nearly 600,000) leave their house once a week or less.
Designed to help tackle this major social problem, the prototype app has been developed using information gathered through co-design workshops with older people, reflecting their needs and preferences. The aim is now to develop the app further for widespread uptake.
Other innovations developed by the project team include a prototype mobility scooter attachment incorporating sensors that measure the quality of the user’s journey, including the smoothness of surfaces the scooter moves over and surrounding air and noise quality. This work has provided new insights into the travel experiences of mobility scooter users and the eventual aim is to work with charitable, healthcare and other organisations to improve mobility scooter design.
The project has pinpointed the need for the general public to realise how their behaviour (such as parking on pavements or not vacating priority seats on buses) can create difficulties for older or disabled people and deter them from going out and staying mobile. The team has also worked with older people to identify solutions for specific mobility problems that they were experiencing on their journeys. Surveys were then undertaken with a wider cross-section of people to see if these solutions would bring other benefits or might cause unexpected problems. This month, in conjunction with the First York bus company, specially commissioned poems conveying key messages highlighted by the process are being displayed on buses across the city, to raise awareness and encourage behaviour change.
Dr Mark Bevan of the Centre for Housing Policy at the University of York, who has led the overall project, says: “We’ve worked with around a hundred people in later life, listening to their needs and learning about the day-to-day challenges they face, especially after a big change in their lives such as losing a partner or giving up driving. Participants discussed many of the things that would help improve getting out and about in later life, and also helped co-design new tools to encourage mobility. In the context of an ageing population, it’s crucial to find creative ways of helping older and disabled people to negotiate the built environment without spending big sums on redesigning or adapting it.”
https://www.epsrc.ac.uk/newsevents/news/new-walking-app-could-make-later-life-healthier-and-happier/

Sunday, December 11, 2016

The Official "Hold My Beer" Dock - essential stroke rehab

You need a challenge to practice your walking and balance with no consequences if you fall. You will need life preservers however. Ask your therapist for this therapy, you will recover much faster doing this than the boring crap your PT has you doing. And if you have a couple of drinks prior to the walk, so much the better for increasing the difficulty. But don't listen to me, I know fucking nothing about stroke recovery, even after writing 11,508 blog posts on stroke.
https://www.facebook.com/PowerboatNation/videos/1344514702245458/

Friday, September 9, 2016

One hand challenges

As a result of my trail clearing I got patches of poison ivy/oak/sumac on my good wrist. Applying hydrocortisone there is a challenge, I have to spread some on my bad wrist and rub it against the needed area. Luckily it is not weeping so I don't have to figure out how to attach a 2x2 inch bandage to the area. Other spots on my chest, butt and leg let me know that sensation is working there just fine. Which would theoretically lead to a therapy for reduced sensation areas from your stroke. But your doctor will never suggest purposely going to a stinging nettle or poison ivy patch to get massive numbers of repetitive sensations. In a couple of weeks you could easily get 10,000 repetitions in from this.  Movement on your bad side could be massively encouraged by the need to scratch your good arm.

Tuesday, September 6, 2016

Using High Repetitions in Stroke Rehab

Finally someone putting out a number of repetitions for neuroplasticity to take hold. But notice the caveat, challenging, and I'm sure your therapist will want you to do them perfectly. Even though you learn faster by correcting your mistakes or varying your routine. I would need spasticity fixed before I could even attempt any of these. http://www.stroke-rehab.com/support-files/strokerecoverytipsseptember2016.pdf A word you hear often in stroke rehabilitation is neuroplasticity. Neuroplasticity in simple terms basically refers to the brain’s ability to rewire itself and create new connections. Repetitive practice of a task has been shown to make changes in the human cortex. For example, practicing a task such as playing the piano can increase the finger representation in the motor cortex. On the other hand, lack of movement of a muscle can result in decreases in representation of the muscle in the motor cortex. If parts of the brain are damaged that control cer- tain muscle movements, sometimes neuroplasticity can allow for other areas of the brain to take over. Research has shown that in order to help foster these neuroplastic changes, it is important to have high repetition practice. Animal studies have shown that 400-600 repetitions of a challenging task are needed per day to make changes in the brain. Therapists at most centers do not have a patient perform anywhere near this number of repetitions of a task. Random performance of a task such as practicing a few hundred reps one or two days a week will not result in very noticeable changes, but practicing a task for high reps daily over several weeks would result in much more noticeable im- provement. Unfortunately, patients often only go to therapy a couple of times a week and do not perform a high number of repetitions of a challenging task. If you want to see better results with an activity, it is recommended to incorporate high reps of the task daily for several weeks. The type of task attempted will be different for each stroke patient depending on their impairment and capabilities. Trying to type may be appropriate for one patient needing to work on fine motor control whereas trying to slide a washcloth across a table may be appropriate for another who lacks fine motor movement. If you pick a task that is easy to perform, then you will not stimulate the brain in the same way as if you pick a more complicated task for yourself. One task may be too easy for one patient and too complicated for another so you have to adjust the task/activity to your abilities. Some ideas for tasks are listed below (tasks can be done with adaptive equipment if needed):  
Pushing piano keys 
Typing 
Clapping Not possible due to spasticity 
Rolling dice 
Catching 
Throwing
Moving or sliding an object 
Reach/grasp/release of an object Not possible due to spasticity
Holding an object between both hands and lifting it.
Rolling, kicking or bouncing a ball
Turning off a light switch
Dot to dot activity
Writing
Folding a washcloth
Painting strokes (can attach brush to hand with an assistive device if can’t grip)
Using a tool
Bringing a utensil to the mouth
Picking up a cup
Playing a finger app on the phone (e.g. Cut the Rope, Fruit Ninja)
Trying to hit a balloon.
Playing a board game such as Simon.
Opening a container
Turning a page in a book or magazine
If you look at the above list of activities and feel like they are too hard be-
cause you have severe hemiplegia or paralysis, then try to work what move-
ment you do have. Remember you can also use adaptive equipment to help
such as a Grip Aid Glove, a universal cuff, a keyboard aid, etc. if you don’t have finger movement. Easier tasks to start with might be placing your paralyzed hand on top of a ball (e.g. a basketball or soccer ball) and try to slightly roll the ball a few inches side to side or trying to use the arm to push a light object on a table.
For training to be most effective, a task should be meaningful and engaging to the patient and be associated with a goal. You should be able to adapt and progress the task as well. For example, if the goal was to shoot a basketball into a hoop, you could start as mentioned above by first just placing the affected hand on a ball and rolling it. You could then progress to holding the ball between two hands and lifting it, then lifting it higher (adapting holds as necessary), throwing the ball down, throwing the ball out, throwing the ball up, and throwing the ball into different hoops of different heights. In my opinion, tasks should be chosen by the patient to increase motivation. For example, I treated a patient who liked to shoot guns and his goal was to be able to hold and pull the trigger of a gun. He was very motivated to relearn this task.
We weren’t able to use a real gun in our clinic, but we practiced movements with other materials, and he practiced with an unloaded gun at home. I would have never chosen this task as a therapist, however, by talking with the patient, I found something that motivated him and sparked his interest and increased his participation in therapy.
If you have no arm movement, then mirror therapy may be an alternative.
In mirror therapy, you watch the reflection of the non-affected limb in a mirror and your brain perceives the reflection as your affected limb. By watching repetitive movement of the working limb in the mirror, it has been shown in some studies that new connections can be made for the paralyzed side because the brain perceives that the paralyzed side is working (even though it is actually only a reflection of the non-affected arm working).
Remember, doing therapy a couple of days a week for a short period is not enough. To get the most out of your rehabilitation, you should be working at home daily. Make sure to choose somewhat challenging tasks that you are motivated to do, and that repetition is key to achieving your goals.

Monday, August 1, 2016

CMS announces new initiative for MI, stroke prevention

So rather than tackle ANY of the problems in stroke you decide to go the lazy route and do press releases and awareness campaigns.  NOT UP FOR THE CHALLENGE YOU CHICKENSHITS? 

CMS announces new initiative for MI, stroke prevention

 
CMS has announced 516 awardees in 47 U.S. states, Puerto Rico and the District of Columbia to help reduce the risks for MI and stroke among millions of Medicare fee-for-service beneficiaries, according to a press release.

The Million Hearts Cardiovascular Disease Risk Reduction Model will use data-driven predictive modeling to generate personalized risks scores for individual patients, which will allow participating health care professionals to develop specific plans to apply prevention interventions to reduce the risk for MI or stroke, according to the release.
Health care professionals in the intervention group will work with beneficiaries on an individual basis to identify the best approach or approaches to reduce their risk for MI or stroke — for example, smoking-cessation interventions, BP management, or cholesterol-lowering drugs or aspirin — and will explain the benefits of each approach. All beneficiaries will receive a personalized risk-modification plan that will target their specific risk factors. Organizations in the intervention group will be paid for reducing the absolute risk for CVD or stroke among their high-risk interventions, according to the release.
CMS estimates that nearly 20,000 health care professionals and more than 3.3 million Medicare fee-for-service beneficiaries will participate in the 5-year model.
“This initiative will enhance patient-centered care and give practitioners the resources to invest the time and in staff to address and manage patients who are at high risk for heart attacks and strokes,” Patrick Conway, MD, chief medical officer of CMS, stated in the release. – by Cassie Homer
Reference:
Million Hearts Cardiovascular Risk Reduction Model. innovation.cms.gov/initiatives/Million-Hearts-CVDRRM/.
Disclosure: Conway is chief medical officer of CMS.