Resources For people with lived experience of stroke(International Stroke Recovery and Rehabilitation Alliance)

 I'm not going thru this, I'm sure nothing here will even get you remotely close to 100% recovery.  If it did it would already have won a Nobel prize. But the tyranny of low expectations from the stroke medical 'professionals' won out and this is the result.

Resources For people with lived experience of stroke(International Stroke Recovery and Rehabilitation Alliance)

Would you like to lead a Working Group within ISRRA( International Stroke Recovery and Rehabilitation Alliance)? Check this opportunity!

Go to the link and join and then suggest a 100% recovery working group. Nobody in the world is working on that. WE NEED TO STEP UP TO THE PLATE AND DEMAND THAT! 

Submit a Working Group proposal (deadline Sept 1st 2023) 

Become an ISRRA member here

 

You can copy all kinds of stuff from me to suggest how it can be accomplished, there are thousands of research studies needing followup, or just point them to my blog. 

Leaders tackle the  BHAGs(Big Hairy Audacious Goals).   

Let's be the leaders they need.

 

This is only a miniscule portion, I didn't start indexing as needed.

• followup research (29 posts to May 2012)

• followup research? (18 posts to June 2016)

• human testing (75 posts to June 2013)

 

Submit a Working Group proposal (deadline Sept 1st 2023)

Reminder: Call for new ISRRA working groups

The work we do at ISRRA is completed by working groups. These working groups should have ambitious goals that could not be achieved without building collaborations.

Any ISRRA member can form a working group. The only requirement is that the proposed working group must align with the strategic vision of ISRRA.(If 100% recovery is not in their strategic vision, WE NEED TO CHANGE THAT!)

Our current working groups focus on: • Criteria for Neurorehabilitation Centres of Excellence • Frailty • Exercise and physical activity • Building our rehabilitation economic song sheet • Industry engagement

If you have an idea for a new ISRRA working group, we encourage you reach out and tell us about it!

Submit a Working Group proposal (deadline Sept 1st 2023)

International Stroke Recovery & Rehabilitation Alliance

If you can tweet, ask to be included, otherwise there will be no stroke survivors involved and it will be a total waste of time. They will never try for 100% recovery unless survivors are at the table demanding it. I don't give a shit how hard that is going to be. Try recovering from a stroke with NO guidance or protocols. 

Introducing the International Stroke Recovery & Rehabilitation Alliance #ISRRA. This will extend the global impact and collaborations emerging from #SRRR. First meeting to set 5 year plan will be held in Australia 2019. Interested? Please contact @AVERTtrial #srrr2