Changing stroke rehab and research worldwide now.Time is Brain! trillions and trillions of neurons that DIE each day because there are NO effective hyperacute therapies besides tPA(only 12% effective). I have 523 posts on hyperacute therapy, enough for researchers to spend decades proving them out. These are my personal ideas and blog on stroke rehabilitation and stroke research. Do not attempt any of these without checking with your medical provider. Unless you join me in agitating, when you need these therapies they won't be there.

What this blog is for:

My blog is not to help survivors recover, it is to have the 10 million yearly stroke survivors light fires underneath their doctors, stroke hospitals and stroke researchers to get stroke solved. 100% recovery. The stroke medical world is completely failing at that goal, they don't even have it as a goal. Shortly after getting out of the hospital and getting NO information on the process or protocols of stroke rehabilitation and recovery I started searching on the internet and found that no other survivor received useful information. This is an attempt to cover all stroke rehabilitation information that should be readily available to survivors so they can talk with informed knowledge to their medical staff. It lays out what needs to be done to get stroke survivors closer to 100% recovery. It's quite disgusting that this information is not available from every stroke association and doctors group.

Showing posts with label Canadian Partnership for Stroke Recovery. Show all posts
Showing posts with label Canadian Partnership for Stroke Recovery. Show all posts

Friday, October 21, 2022

Advances in Stroke Recovery - January 23-25, 2023 Digital Conference by Canadian Parnership for Stroke Recovery

At least they are using the proper word, recovery, rather that the milquetoast word, rehabilitation. Not sure what they'll have, I have seen nothing that even remotely suggests that 100% recovery has any research behind it, or anyone working on 100% recovery.

 Advances in Stroke Recovery - January 23-25, 2023 Digital Conference by Canadian Partnership for Stroke Recovery



Tuesday, October 17, 2017

Canadian Partnership for Stroke Recovery - Annual Report 2016-17

At least Canada is much closer to a great stroke association that anything else I've seen. But they still need improvement, getting away from guidelines and going to protocols with efficacy percentages.
http://mailchi.mp/569d78c21d15/cpsr-stroke-recovery-news-e-newsletter?


Achievements in 2016-17

1. We added Hotchkiss Brain Institute (HBI) at the University of Calgary to the CPSR. HBI is investing $1.2 million over three years in equipment and research salaries to support stroke recovery research. With the announcement at the 2016 Canadian Stroke Congress, this brings the number of invested partners to eight. Calgary shares with CPSR its expertise in paediatric stroke, imaging, robotics, exercise, and more. Read the news release.

Follow the links below to learn about CPSR work underway in Calgary:

2. We funded innovative research (11 catalyst grants and 19 trainee awards) at institutions across Canada, covering all facets of stroke recovery research. Read about our funded projects here. The top-rated award in 2016 went to Lara Boyd and her team at the University of British Columbia for their research on biomarkers - predictors of stroke recovery. Dr. Boyd's team looks at motor and cognitive recovery post-stroke and the impact of small brain lesions on recovery. Learn more here. In addition to our regular round of catalyst and trainee awards for 2017, we entered into a special partnership with Quebec's REPAR network to fund two high-impact Quebec-based research projects focused on stroke recovery.

3. We are building the infrastructure for a national clinical trials network in stroke recovery. Thanks in part to funding from Brain Canada, we are putting in place at sites across Canada the infrastructure needed to launch game-changing trials. The first trial will test basic research findings that indicate the anti-depressant fluoxetine (commonly known as Prozac) in combination with an exercise protocol can be used to re-open the window of recovery in the brain in patients who have plateaued 3-6 months after a stroke. Also in the pipeline is a stem cell trial. Pre-clinical research conducted in the CPSR has demonstrated the promise of cellular therapy. A survey of people living with stroke was done by our partners at the Ottawa Methods Centre this year to determine expectations around a trial. And, finally, a team of CPSR and Ottawa Hospital Research Institute researchers, led by Dr. Dar Dowlatshahi, has applied for funding to get a multi-site trial underway. Learn more about the promise of stem cells by watching our VIDEO.



4. We continued to expand our National Training Program through our popular SPiN (Stroke Program in Neurorecovery) workshop, mentorships, lab exchanges, and monthly webinars. In late 2016, 55 research trainees from across Canada and the U.S. took part in the three-day SPiN workshop at University of British Columbia focused on "Biomarkers and Novel Rehabilitation Technologies in Stroke Recovery Research." The course included presentations by world-class stroke researchers, hands-on workshops, a sit-down session with four stroke survivors (meet them HERE) and multiple networking events. In addition to our mentorship program, lab exchanges and workshops, the trainee webinar series has  proven to be a useful opportunity for trainees to hone their presentation skills. There are 170 graduate students and early-career investigators in our National Trainee Association. Meet some of our amazing and talented trainees HERE.
 


Participants in the CPSR 2016 SPiN workshop at UBC

5. We developed and supported new tools and resources to help clinicians deliver the best possible care, based on the latest research evidence.

These included:
  • an enhanced Stroke Engine website, which attracts 40,000 visitors a month and is led by Dr. Annie Rochette at the Université de Montréal. This year, Stroke Engine added and updated content throughout, continued to build the French website, and added a new E-LEARNING section, which includes a CPSR-funded training course on Aerobics after stroke. Check out strokengine.ca and the e-Aerobics modules.
  • the ViaTherapy App is the result of a five-year process co-led by Drs Mark Bayley at UHN-Toronto Rehab and Steven Wolf of Emory University in Atlanta. Its aim is to make stroke rehabilitation guidelines more accessible to clinicians. ViaTherapy translates the guidelines to a decision-making algorithm for occupational therapists and physiotherapists to use with their patients. ViaTherapy is FREE on Apple's App Store and Google Play for Android devices and at www.viatherapy.org.
  • In September 2016, the 17th version of the Evidence-Based Review of Stroke Rehabilitation (EBRSR.com) was released online. This update incorporated an additional 1,218 studies to the existing content. A stroke database was created to include all demographic information about the randomized controlled trials (RCTs) included in the EBRSR. Data from a total of 1,931 RCTs were compiled. Data were used to generate multiple manuscripts and conference abstracts. 



www.strokengine.ca and www. EBRSR.com

6. Our Annual Scientific Meeting in Quebec City was engaging and well-attended. We shared the latest stem cell research developments, advances in the use of brain stimulation, and new technologies to improve recovery. The meeting also attracted several hundred people to participate in the popular Advances in Stroke Recovery forum. This year, we examined and debated the findings of the AVERT trial, the world's largest trial on the timing of post-stroke rehabilitation. Missed the meeting? Watch these VIDEO presentations to learn MORE. 

7. We strengthened international collaborations through the Stroke Recovery Research Roundtable. We spoke at conferences around the world. And we published like crazy! CPSR-funded researchers published 167 scientific publications last year in high-impact journals, including Neurorehabilitation and Neural Repair, Lancet Neurology, Stroke, Journal of Cerebral Blood Flow & Metabolism, and Cell Reports. We are a leader on the international stage by making major contributions to the international Stroke Recovery and Rehabilitation Roundtable (SRRR). The SRRR's goal is to develop consensus-based recommendations to guide stroke recovery research and rehabilitation efforts. The International Journal of Stroke has published six guideline papers arising from the inaugural SRRR meeting held in Philadelphia in May 2016. These same papers will be co-published by the journal Neurorehabilitation and Neural Repair and the journal Stroke intends to publish a summary article based on these guidelines. CPSR will help organize a second SRRR meeting, to be held in conjunction with the World Stroke Congress meeting in Montréal in 2018, that will focus on international collaboration in stroke recovery research.

8. We involved people living with stroke and their families in all aspects of our organization. Our active and engaged Stroke Community Advisory Committee participated in our annual research review and our Knowledge Translation efforts. They helped researchers design patient surveys, worked with partners to strengthen the network of survivors, created videos, participated in the development of new tools and outreach efforts, volunteered in our booth at the Canadian Stroke Congress, and more. Our Stroke Community Advisory Committee includes 13 members from across Canada. Meet them HERE. We are always looking to add new people to the group so please contact us at info@canadianstroke.ca if you would like to nominate someone from your community.


Here, members of our Stroke Community Advisory Committee meet in Ottawa (with others joining in by phone) in June to provide a second-round review of research proposals submitted to the CPSR for funding.

9. We run an efficient organization with more than 86 per cent of CPSR funds invested directly in research and programs. Increased member contributions and corresponding expenditures have resulted in greater in investment in stroke recovery research across the country.  During the current year, the CPSR has boosted program spending by 67 per cent while ensuring administrative costs remain low.  The CPSR is committed to making solid research investments focused on partnerships and collaboration. Read our audited financial statements HERE.

10. We are well-positioned for game-changing discoveries. CPSR is regarded as the leader in stroke recovery research nationally and a model for other countries. With an expanded research base, experienced management team and committed skills-based Board, we are tackling the challenges of stroke recovery by providing shared resources, tools and platforms to catalyze the field of stroke recovery. Learn more about our platforms HERE. Read some of our patient success stories HERE.

Monday, October 16, 2017

Clinician’s Guide to Aerobic Exercise after Stroke - Canadian Partnership for Stroke Recovery

Fairly useless since it is still only guidelines NOT protocols with efficacy ratings/. I expect exact numbers of exercises needed for various types of recovery. These guidelines still allow doctors to blame the survivors for not recovering. When if we don't recover that doctor would then update the stroke protocol for that particular objective damage diagnosis. This is so fucking simple to solve. Why can'r Drs. and Ph.Ds. get this?
Clinician’s Guide to Aerobic Exercise after Stroke

Tuesday, October 10, 2017

New Stroke Engine website launches - from HSF Canadian Partnership for Stroke Recovery

While they do give you Rating Evidence it still does not consist of a stroke rehab protocol with efficacy percentages. So you are still completely on your own to figure out how to get 100% recovered.
Stroke Engine
 

About Stroke Engine

We have built this site with the goal of bridging the gap in knowledge translation between research findings and current clinical practice. This site can be used to find the most current information about the value of the various interventions used in stroke rehabilitation as well as psychometric and pragmatic properties of assessment tools used in stroke rehabilitation.
You will notice that topics of interventions and assessments are listed either by domains or alphabetically . These are actual practices and assessments that were found in textbooks, journal articles and based on interviews with more than 1800 clinicians working in stroke rehabilitation.
Stroke Engine’s content is derived from multiple sources including the Evidence-Based Review of Stroke Rehabilitation (EBRSR) headed by Dr. Teasell in London, Ontario and extensive reviews of databases including MEDLINE, CINAHL, the Cochrane Library, HealthSTAR, Health and Psychosocial Instruments, CANCERLIT, PsycINFO. The goal is to provide you with best practice information, that is practice that is based on scientific evidence of its effectiveness. A dedicated team of senior researchers, graduate fellows and research assistants with expertise in specific areas also contribute to creating and evaluating the quality of each topic. You can find out more about these people by clicking on the Stroke Engine Team.
After extensive review, each intervention is given a level of evidence, rating its effectiveness for different outcomes. For more information about these ratings, see “Rating Evidence“.
In “Links“, you will find hyperlinks to the websites of other groups who have begun this type of information gathering on stroke practices. There are also links to online databases, which can be used to discover a wealth of information on various interventions.
Our goal is to provide you with an easy, accessible site. Should you have any suggestions or comments on how this site could better meet your needs, please contact us.
On behalf of the Stroke Engine team,
Nicol Korner-Bitensky, PhD OT(c)
Stroke Engine Project Leader (2005-2013)
Annie Rochette, PhD OT (c)
Actual Stroke Engine Project Leader

Thursday, October 5, 2017

Canadian Partnership for Stroke Recovery, 4 new directors; Sylvain Charbonneau, Andrew Demchuk, Debra Lynkowski, and Rod McKay)

Disappointed that none are survivors. So ask them directly. What SPECIFIC STRATEGY are they following to solve all the problems in stroke? We have to start holding peoples feet to the fire. What did the four retiring directors accomplish toward that goal? 100% recovery is the only goal.
http://www.canadianstroke.ca/en/news/cpsr-board-welcomes-four-new-directors/

Retiring directors thanked for contributions

At the recent CPSR Board of Directors meeting on September 19 in Toronto, the Partnership said goodbye and thank-you to four longstanding (and outstanding!) Board members, who have completed their terms. They include Peter Oakes, long-time chair of the Finance and Operations Committee, strategic communications expert Marianne Gobeil, Dr. Mona Nemer, who until recently was the uOttawa’s Vice-President of Research, and Dr. Duncan Stewart, CEO of the Ottawa Hospital Research Institute.
“All four of these individuals have made substantial contributions to the Partnership, bringing their skills, passion for the cause and unique perspectives to the Board table,” says CPSR Scientific Director Dr. Dale Corbett. “We are very grateful to all of them.”
The Board welcomed four new directors to represent the following partners: University of Ottawa, University of Calgary/Hotchkiss Brain Institute, Ottawa Hospital Research Institute, and Heart & Stroke . Read their bios below: 

Dr. Sylvain Charbonneau

Associate VP Research, University of Ottawa
Dr. Charbonneau received his B. Sc. And M.Sc. in Physics from the University of Ottawa and his Ph.D. degree in Photonics – Semiconductor Physics from Simon Fraser University, British Columbia in 1988. He joined the Institute for Microstructural Sciences of the National Research Council (NRC) in October 1988. From 1998 to January 2000, he took on the responsibility of Director of Components Technologies for the Institute of Microstructural Sciences at NRC, with managing responsibility of 160 FTE within the Institute. In late 2000, Dr. Charbonneau, along with three other colleagues, founded a company, Optenia Inc. a NRC spin-off in the communications technology sector. In 2002, Dr. Charbonneau returned to the NRC and, in May 2011, he was named Executive Director responsible for the strategic development of the Printable Electronic Flagship Program. In April 2013, Dr. Charbonneau took the position of Associate Vice-President, Research at the University of Ottawa.

Dr. Andrew Demchuk

Director, Calgary Stroke Program
Dr. Andrew Demchuk is an Associate Professor in the Department of Clinical Neurosciences for the Cumming School of Medicine, University of Calgary. He is also a stroke neurologist and Director of the Calgary Stroke Program, Alberta Health Services. Dr. Demchuk received his undergraduate degree in 1989 from the University of Regina, Saskatchewan. He then went on to complete his medical degree (with distinction) from the University of Saskatchewan in 1993, followed by his residency in neurology from the University of Calgary (1993-97). Dr. Demchuk completed a fellowship in cerebrovascular disease (1997-99) from the University of Texas-Houston. Dr. Demchuk’s primary research interests focus on vascular imaging, where he is trying to establish target populations for new stroke treatments by selecting patients based on imaging tests performed in the emergency setting. In addition to his research and clinical activities, Dr. Demchuk is a member on a number of local, national, and international committees. He is the past board chair for the Heart and Stroke Foundation of Alberta, NWT, and Nunavut and member of the Board of Directors of the Canadian Stroke Consortium.

Debra Lynkowski

COO, Ottawa Hospital Research Institute
Debra Lynkowski received her law degree from the University of Alberta in 1986. Following this, she began a career in the non-profit sector and has worked at all levels – local, provincial/territorial and national. Ms. Lynkowski served as President and CEO of the Canadian Lung Association from 2013-2017, leading a process of revitalization and renewal, including the continued refinement and implementation of the organization’s National Respiratory Research Strategy. Prior to this, she held several leadership positions including the CEO of the Canadian Public Health Association and National Director of Public Policy and Government Relations for the Canadian Diabetes Association. In 2004, Debra joined the Canadian Stroke Network, in partnership with the Heart and Stroke Foundation, to help lead the Canadian Stroke Strategy, bringing together stakeholders and partners to develop and implement a coordinated and integrated approach to stroke prevention, treatment, rehabilitation and community reintegration in every province and territory in Canada. 

Rod McKay

Past Chair of the Board of Directors, Heart and Stroke Foundation
Rod McKay is chair of the board of Tourism Calgary and member of the board of the Calgary Sports Tourism Authority. He is a fellow of the Chartered Accountants of Alberta. In the six years ending March 2013, Mr. McKay was a member of the Alberta Securities Commission and lead independent member. He serves on the board and audit committee of Fidelity Capital Structure Corporation and the board of the Institute of Corporate Directors – Calgary. Until retirement in 2006, as a partner of KPMG, an international audit, tax and advisory firm, he held senior leadership positions in the firm in Canada and internationally. Mr. McKay has been active in numerous community based health services and cultural organizations for many years and he is past Chair of the Board of the Heart and Stroke Foundation of Canada.