2024 Programme

Plenary 1: Building the evidence for support for life after stroke

Overview

Building on the “A Life Saved is a Life Worth Living” report, this session presents current evidence and research about supporting people and their families to live well after a stroke. The session will also highlight key gaps in the evidence base and identify priorities for more funding, more lobbying and more evidence.

What kind of evidence is really important? A personal perspective

Grethe Lunde

Stroke Survivor, Norway

Mapping the evidence base for life after stroke: A research perspective

TBC

TBC

How can we use research evidence to improve life after stroke: A clinical perspective

Associate Professor Margit Alt Murphy

University of Gothenburg, Sweden

Plenary 2: Life after stroke - support in action

Overview

This session will focus on the different perspectives of what a good life after stroke’ looks like through discussion and presentations around different experiences and good practice from different countries. 

Perspectives from Europe

Videos from people with lived experience from around Europe: ‘After you left hospital what non-medical support did you find most helpful to help you live a good life after stroke?’

TBC

TBC

Perspectives from support organisations

What types of support have made the most difference to people’s lives and what have been the most successful strategies?

Dr Michael Brinkmeier

Stiftung Deutsche Schlaganfall-Hilfe, Germany

Mercé Ayesta

Fundacio Ictus, Catalonia

Katherine Staley

Associate Director of Services at the Stroke Association

Plenary 3: A showcase of life after stroke support in Ireland

Overview

In this session, we will discuss how we developed a support service in Ireland to meet the unmet need of those affected by stroke, the challenges and opportunities we face, and we will share top tips on how to set this service up in your country.

The Stroke Connect Service - Filling the gap for support post discharge in Ireland

Helen Gaynor

Irish Heart Foundation, Ireland

My journey through the Stroke Connect Service and beyond

Fiona Bardon

Stroke Survivor, Ireland

Meeting the unmet need for information on stroke for children and young people (CYP) - The CHATS booklet

Wendy Moynan

Tallaght University Hospital

Dr Aine Connolly

St James Hospital, Dublin

What does a good life after stroke mean for you and what support did you need to make it happen?

TBC

TBC

Parallel Sessions

A disproportionate burden? Life after stroke in women

Contextualising sex and gender to improve stroke research, policy and practice

Dr Else Sandset

Oslo University Hospital, Norway

Specific secondary stroke risk factors in women after stroke

Professor Anita Arsovska

Universities Cyril and Methodius, North Macedonia

Raising a family after stroke - My story

Diana Wong Ramos

Stroke Survivor, Portugal AVC Stroke Organisation, Portugal 

Spasticity: What is it and how can we manage it?

The stroke survivor perspective of spasticity

TBC

TBC

What is spasticity?

Dr Iwona SarzyƄska-DƂugosz

Institute of Psychiatry and Neurology Warsaw, Poland

Management of spasticity with botulinum toxin/physiotherapy management

Dr Stephen Ashworth

Kings College, London, England

A vision for life after stroke

Vision assessment in stroke care services: the KROSS project

Professor Helle Falkenberg

University of South-Eastern Norway, Norway

What helps in coping with and self-management of sight loss after stroke

Dr Lauren Hepworth

University of Liverpool, England

Jeremy Johnston

Stroke Survivor, Northern Ireland

No decision about me without me – speaking together with one voice

Advocacy in action and effective communication: Role play session between an allied health professional and stroke survivor – a good conversation and a bad conversation

Advocacy in action and effective communication: Reflection with the audience - How we advocate for stroke including practical examples of navigation health issues and lived experiences

Marianne Tangen

Stroke Survivor, Norway

Stacie Broek

Stroke Survivor, Switzerland

Chris Macey

Irish Hearth Foundation, Ireland

Dr Marina Charalambous

Cyprus University of Technology, Cyprus

Professor Hariklia Proios

University of Macedonia, Greece

SUpporting wellbeing through PEeR Befriending: Outcomes of the SUPERB trial for people with aphasia

Professor Katerina Hilari

City University of London, England

Highest scoring abstracts from research and service provision

Service: Socialising from home - Peer support and communication practice at the Aphasia Café

Dr Helen Kelly

University of Cork, Ireland

Service: Enhancing the competency of coordinators in a stroke support organisation; creating a self-assessment framework.

Suzanne Smith-Bayley

March of Dimes, Canada

Research: Addressing sexuality post-stroke: Can a targeted implementation change practice?

Associate Professor Margaret McGrath

University of Sydney/University College Cork, Ireland

Research: Life one year after stroke – results from the Swedish Riksstroke quality-of-care review

Professor Mia von Euler

Orebro University, Sweden

Exploring mental health post-stroke

What do mental health difficulties look like in post-stroke?

Professor Niall Broomfield

University of East Anglia, England

What should you do when you are struggling?

Professor Maggie Lawrence

Glasgow Caledonian University, Scotland

My mental health and me

Stacie Broek

Stroke Survivor, Switzerland

Secondary stroke prevention - managing blood pressure and the benefits of exercise

Stroke secondary prevention: Managing blood pressure

Dr Eamon Dolan

Connolly Hospital, Ireland 

Stroke secondary prevention: The benefits of exercise

Dr Noel McCaffery

Cappagh National Orthopaedic Hospital, Ireland