Changing stroke rehab and research worldwide now.Time is Brain! trillions and trillions of neurons that DIE each day because there are NO effective hyperacute therapies besides tPA(only 12% effective). I have 523 posts on hyperacute therapy, enough for researchers to spend decades proving them out. These are my personal ideas and blog on stroke rehabilitation and stroke research. Do not attempt any of these without checking with your medical provider. Unless you join me in agitating, when you need these therapies they won't be there.

What this blog is for:

My blog is not to help survivors recover, it is to have the 10 million yearly stroke survivors light fires underneath their doctors, stroke hospitals and stroke researchers to get stroke solved. 100% recovery. The stroke medical world is completely failing at that goal, they don't even have it as a goal. Shortly after getting out of the hospital and getting NO information on the process or protocols of stroke rehabilitation and recovery I started searching on the internet and found that no other survivor received useful information. This is an attempt to cover all stroke rehabilitation information that should be readily available to survivors so they can talk with informed knowledge to their medical staff. It lays out what needs to be done to get stroke survivors closer to 100% recovery. It's quite disgusting that this information is not available from every stroke association and doctors group.

Showing posts with label non-adherence. Show all posts
Showing posts with label non-adherence. Show all posts

Thursday, November 7, 2024

Immex, an immersive mixed reality concept for stroke rehabilitation exercises

 

My conclusion is you don't understand ONE GODDAMN THING ABOUT SURVIVOR MOTIVATION, DO YOU? You create EXACT 100% recovery protocols and your survivor will be motivated to do the millions of reps needed because they are looking forward to 100% recovery. GET THERE!

There would be no need for this useless research.

Immex, an immersive mixed reality concept for stroke rehabilitation exercises

Heijden, M.D. van der (2024) Immex, an immersive mixed reality concept for stroke rehabilitation exercises.

Full text not available from this repository.

Full Text Status:Access to this publication is restricted
Embargo date:1 November 2028
Abstract:Non-adherence is a common issue in stroke rehabilitation due to declining patient motivation. This thesis presents an immersive mixed reality concept aimed at enhancing the rehabilitation experience for stroke patients with lower limb impairments, designed for physiotherapy practices. Using Self-Determination Theory (SDT), motivation in current rehabilitation methods is analyzed, while a Multi-Sensory Design (MSD) approach enhances immersion. Expert interviews and research assess the current rehabilitation context, and relevant technologies are explored for implementation. Workshops guided by SDT help ideate and conceptualize a virtual experience that integrates game elements into exercises in natural environments. A Unity-based demo, including a menu and two levels, is developed for user testing. The setup involves motion capture cameras and two projectors that allow interaction with projected elements. User tests compare exercising with the product concept to using an instructional video, using SDT-based questionnaires to assess motivation. Results show early promise, with participants reporting greater autonomy, competence, and internalized motivation when using the product compared to the video.
Item Type:Essay (Master)
Clients:
D'Andrea en Evers, Enschede, The Netherlands
Amettics, Alphen, The Netherlands
Faculty:ET: Engineering Technology
Subject:50 technical science in general
Programme:Industrial Design Engineering MSc (66955)
Link to this item:https://purl.utwente.nl/essays/103989
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Friday, August 25, 2017

Defining the rehabilitation adherence curve and adherence phases of stroke patients: an observational study

The reason for adherence problems is that there are no protocols with efficacy ratings. If you knew that doing this intervention 15,000 times would result in this recovery 65% of the time, your adherence would likely be very good. But since your doctors and therapists have no clue about how to specifically get you recovered why should you adhere to any intervention?
https://www.dovepress.com/defining-the-rehabilitation-adherence-curve-and-adherence-phases-of-st-peer-reviewed-article-PPA
Authors Yao M, Chen J, Jing J, Sheng H, Tan X, Jin J
Received 18 April 2017
Accepted for publication 14 July 2017
Published 21 August 2017 Volume 2017:11 Pages 1435—1441
DOI https://doi.org/10.2147/PPA.S139854
Checked for plagiarism Yes
Review by Single-blind
Peer reviewers approved by Dr Amy Norman
Peer reviewer comments 2
Editor who approved publication: Dr Naifeng Liu
Meiqi Yao, Jinhua Chen, Jiyong Jing, Han Sheng, Xing Tan, Jingfen Jin

Nursing Department, The Second Affiliated Hospital, School of Medicine, Zhejiang University, Hangzhou, Zhejiang Province, People’s Republic of China

Background: Patient adherence is a crucial determinant of rehabilitation in the long term after stroke. However, adherence is inconstant and fluctuates along a time course, and the underlying regular pattern of adherence variation remains to be clarified.
Objective: We aimed to describe the longitudinal pattern of adherence to rehabilitation exercises in stroke patients and to determine different adherence phases based on formulated rehabilitation adherence curve.
Patients and methods: Rehabilitation adherence levels were prospectively collected using the Questionnaire of Exercise Adherence (EAQ) among patients diagnosed with first-onset stroke since the second week of stroke onset, with a follow-up of 24 weeks. SPSS19.0 was used to formulate a fitting curve based on a scatter diagram. Possible causal factors for the different adherence phases are also discussed from the psychological, socioeconomic, and behavioral aspects.
Results: A total of 98 patients were included in this study. General adherence of the included subjects was classified as low to medium during follow-up. The adherence fitting curve was an “S” curve, with the fitting function y =0.005x3-0.211x2+1.963x+52.345. Three phases, namely, rapid increase phase, slow decrease phase, and stable phase, were identified based on the adherence curve, and relevant theories are explored.
Conclusion: Rehabilitation adherence of stroke patients is a dynamic behavioral process that continuously changes along a time course, with a regular pattern of an “S” curve and includes a rapid increase phase, a slow decrease phase, and a stable phase.

Tuesday, May 30, 2017

Developing a stroke rehabilitation exercise adherence measure: StREAM : a self-report tool assessing the likelihood of adherence

Once again nothing for your therapist and doctor to do to get you recovered. This allows the medical profession to blame you for your lack of recovery.
http://ethos.bl.uk/OrderDetails.do?uin=uk.bl.ethos.712524

Author: Bollen, Jessica Charlotte
Awarding Body: Exeter and Plymouth Peninsula Medical School
Current Institution: Exeter and Plymouth Peninsula Medical School
Date of Award: 2017
Availability of Full Text:
Full text unavailable from EThOS. Please contact the current institution’s library for further details.
Abstract:
Adherence is necessary to establish the effectiveness of rehabilitation exercises for those with long term conditions, but measuring it is problematic. Adherence is vital when attempting to measure and understand how an intervention works; without appropriate levels of adherence it is not possible to conduct a fair test of an intervention since failure to find benefit may be due to poor adherence rather than an ineffective intervention. There are no gold standard measures, and objective measurement devices are fallible. Without an accurate way to assess if participants are adherent to their exercise programs the efficacy of the programme cannot be assessed. Therefore the objective of this PhD was to develop a psychometrically valid and reliable self-report adherence measure to assess the likelihood of adherence for stroke survivors called the Stroke Rehabilitation Exercise Adherence Measure, (StREAM). A large systematic review was conducted to synthesise the existing evidence for self-report measures of adherence to prescribed unsupervised exercise programmes. The review found many measures but few possessed acceptable any tested psychometric properties and therefore the need for a psychometrically sound adherence measure to assess the likelihood of adherence was highlighted. To ensure StREAM had robust content validity stroke survivors (n=16), physiotherapists (n=3), and exercise professionals (n=2) were interviewed. Items were created from salient phases in the interviews which were then discussed at two focus groups of stroke survivors. This ensured items in StREAM were suitable and comprehensible to the target population.
Supervisor: Not available Sponsor: Not available
Qualification Name: Thesis (Ph.D.) Qualification Level: Doctoral
EThOS ID: uk.bl.ethos.712524  DOI: Not available
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Tuesday, June 28, 2016

Exercise after Stroke: Patient Adherence and Beliefs after Discharge from Rehabilitation

Patient non-adherence to  exercise plans after discharge is so easy to explain. Survivors aren't given specific protocols with efficacy ratings so they know that doctors and therapists have no fucking clue what works or doesn't work.
http://www.tandfonline.com/doi/abs/10.1080/10749357.2016.1200292

Abstract

Background: Most people complete post-stroke rehabilitation within the first 6 months after stroke even though benefits from exercise are believed to persist well beyond 6 months. Physical and Occupational therapists provide home exercise programs (HEP) to instruct patients on exercises to continue after discharge from rehabilitation. Unfortunately, there is little known about HEP adherence rates in adults with stroke.
Objectives: The objectives of this project were to (1) determine the adherence rate with post-rehabilitation HEP and reasons for non-adherence, (2) assess for interactions between HEP adherence and self-report of depression and fatigue, and (3) determine patient beliefs about the benefit of exercise during stroke recovery.
Design: This was a cross-sectional, survey study.
Methods: A survey was developed and distributed during stroke support group meetings to determine adherence rates with post rehabilitation HEP, reasons for non-adherence, and patient beliefs about the benefit of exercise.
Results: Eighty-nine percent of participants reported receiving a HEP and 65.3% of those reported being adherent with at least part of the HEP. Several reasons for non-adherence were identified, including ‘doing different exercises than the ones given by the physical therapist’, as the most frequently given reason. Study participants identified positive roles of exercise in their recovery from stroke.
Conclusion: Patient adherence with HEP after discharge from rehabilitation is less than ideal. Reasons for non-adherence are varied. Rehabilitation therapists need to be able to identify and help patients manage barriers to HEP adherence to promote management of residual deficits.