Deans' stroke musings: Stroke victim, 22, backs drive to provide more support to aid recovery of sufferers

Changing stroke rehab and research worldwide now.Time is Brain! trillions and trillions of neurons that DIE each day because there are NO effective hyperacute therapies besides tPA(only 12% effective). I have 523 posts on hyperacute therapy, enough for researchers to spend decades proving them out. These are my personal ideas and blog on stroke rehabilitation and stroke research. Do not attempt any of these without checking with your medical provider. Unless you join me in agitating, when you need these therapies they won't be there.

What this blog is for:

My blog is not to help survivors recover, it is to have the 10 million yearly stroke survivors light fires underneath their doctors, stroke hospitals and stroke researchers to get stroke solved. 100% recovery. The stroke medical world is completely failing at that goal, they don't even have it as a goal. Shortly after getting out of the hospital and getting NO information on the process or protocols of stroke rehabilitation and recovery I started searching on the internet and found that no other survivor received useful information. This is an attempt to cover all stroke rehabilitation information that should be readily available to survivors so they can talk with informed knowledge to their medical staff. It lays out what needs to be done to get stroke survivors closer to 100% recovery. It's quite disgusting that this information is not available from every stroke association and doctors group.

Tuesday, May 29, 2018

Stroke victim, 22, backs drive to provide more support to aid recovery of sufferers

We need to start demanding results rather than milquetoast requests for more 'care' or support.
https://www.pressandjournal.co.uk/fp/news/moray/1485068/stroke-victim-22-backs-drive-to-provide-more-support-to-aid-recovery-of-sufferers/

A young Moray woman has spoken out about the need for stroke victims to have proper care and support to aid their recovery.

Hollie Simpson, from Forres, was frightened to leave her home after suffering from an attack two years ago.

It led to the 22-year-old becoming a recluse as she underwent a year of treatment in order to build up her abilities again.

The stroke afftected Miss Simpson’s speech, reading and writing skills and caused her to lose the feeling in the right side of her body – leading her to believe she would never leave her house again.

Now the Forres student, who has also been diagnosed with cystic fibrosis, has praised the work of rehabilitation staff from the charity Chest Heart and Stroke Scotland (CHSS), which enabled her to embark on a university course last year.

She said: “I was too scared to leave the house and did not want to speak to anyone in public. I started to withdraw from the world. It didn’t feel safe.

“It was such a big fear but I was able to face it with the rehabilitation staff. I began to realise people could understand me and I began to get my independence back.

“I don’t think they know just how much they helped me.”

Staff from CHSS made regular phone calls to Miss Simpson to build her confidence in her speech to encourage her to talk to people.

Eventually the student was invited to leave her home in order to meet people in local cafes.

Today (TUES) CHSS launches a campaign, entitled No Life Half Lived, with the aim of getting everyone in Scotland who suffers from chest, heart and stroke conditions, which is estimated to affect a fifth of the population, the care and support they need.

The charity wants to launch a rehabilitation support service by 2021 and increase the amount of help available through their specialist nurses and community groups.

Chief executive Jane-Claire Judson said: “For many of the people that we support, every day activities such as picking up a knife and fork, making a cup of tea or leaving the house can feel like a massive challenge.

“We want to make sure left with chest, heart or stroke conditions is a life lived to the full.”

Donations can be made online at www.chss.org.uk/donate