Changing stroke rehab and research worldwide now.Time is Brain! trillions and trillions of neurons that DIE each day because there are NO effective hyperacute therapies besides tPA(only 12% effective). I have 523 posts on hyperacute therapy, enough for researchers to spend decades proving them out. These are my personal ideas and blog on stroke rehabilitation and stroke research. Do not attempt any of these without checking with your medical provider. Unless you join me in agitating, when you need these therapies they won't be there.

What this blog is for:

My blog is not to help survivors recover, it is to have the 10 million yearly stroke survivors light fires underneath their doctors, stroke hospitals and stroke researchers to get stroke solved. 100% recovery. The stroke medical world is completely failing at that goal, they don't even have it as a goal. Shortly after getting out of the hospital and getting NO information on the process or protocols of stroke rehabilitation and recovery I started searching on the internet and found that no other survivor received useful information. This is an attempt to cover all stroke rehabilitation information that should be readily available to survivors so they can talk with informed knowledge to their medical staff. It lays out what needs to be done to get stroke survivors closer to 100% recovery. It's quite disgusting that this information is not available from every stroke association and doctors group.

Friday, March 28, 2025

Stroke aftercare in Germany: findings from an online survey in the outpatient setting of a neurovascular network

 

This is the whole problem in stroke enumerated in one word; 'care'; NOT RECOVERY!

YOU have to get involved and change this failure mindset of 'care' to 100% RECOVERY! Survivors want RECOVERY, NOT 'CARE'!


ASK SURVIVORS WHAT THEY WANT, THEY'LL NEVER RESPOND 'CARE'! This tyranny of low expectations has to be completely rooted out of any stroke conversation!

RECOVERY IS THE ONLY GOAL IN STROKE! GET THERE!

Stroke aftercare in Germany: findings from an online survey in the outpatient setting of a neurovascular network

Authors:
John-Ih Lee
Robin Jansen
Jan Frederick Cornelius
Hubert Schelzig
Show all 18 authors

Abstract and Figures

The evidence-based acute treatment of stroke patients in Germany is carried out according to standardized algorithms in more than 300 certified stroke units, and its quality is repeatedly assured by the German Stroke Society (DSG) and others. However, nationally structured and uniform stroke aftercare programs are missing, despite evidence that they contribute to the success of rehabilitation and improvement of everyday life. We used a 27-item online questionnaire, which was mailed to 4,195 outpatient physicians in the catchment area of the neurovascular network Neurovascular Network North Rhine plus (NEVANO+) located in the western part of Germany to assess actual structures of stroke aftercare, identify barriers, and possible solutions. Based on 152 completed anonymous answers to the questionnaire, a descriptive evaluation revealed that general practitioners and neurologists are seen to be responsible for stroke aftercare. Important improvement aspects, among others, were identified in intersectoral cooperation, the use of a post-stroke checklist, and connections to local self-help organizations. Stroke units could play a key role in stroke aftercare by providing these checklists, connecting self-help organizations, and offering education and coaching for supportive coordinating staff. Furthermore, existing neurovascular networks can be expanded to include rehabilitation clinics, geriatric clinics, and outpatient physicians to improve intersectoral communication, collaboration, and post-stroke care. Further studies should investigate whether intersectoral cooperation, checklists, and cooperation with self-help organizations within an extended neurovascular network have a positive impact on stroke aftercare and patients’ quality of life.
(A) Answers to the question: “How many after stroke-patients do you treat in a three-month period (0–5, 6–10, 11–20, or over 20 patients)?” The results are presented as percentages of all answers for the three most frequent specialties of outpatient physicians who responded to the survey. (B) Answers to the question: “Which specialty should mainly take care of stroke patients in the outpatient sector after they have left the hospital or rehabilitation?” Data are presented as absolute numbers and percentages of the outpatient physicians’ specializations.
(A) Answers to the question: “How many after stroke-patients do you treat in a three-month period (0–5, 6–10, 11–20, or over 20 patients)?” The results are presented as percentages of all answers for the three most frequent specialties of outpatient physicians who responded to the survey. (B) Answers to the question: “Which specialty should mainly take care of stroke patients in the outpatient sector after they have left the hospital or rehabilitation?” Data are presented as absolute numbers and percentages of the outpatient physicians’ specializations.
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(A) Answers to the question of whether outpatient physicians are aware of local networks or structures that support stroke patients and their relatives. Data are presented as absolute numbers and percentages. (B) Opinion of outpatient physicians on whether they receive effective support in the management of post-stroke patients. Data are presented as absolute numbers and percentages.
(A) Answers to the question of whether outpatient physicians are aware of local networks or structures that support stroke patients and their relatives. Data are presented as absolute numbers and percentages. (B) Opinion of outpatient physicians on whether they receive effective support in the management of post-stroke patients. Data are presented as absolute numbers and percentages.
(A) Opinion of outpatient physicians on whether the stroke unit should be more involved as a competence center in stroke education. Data are presented as absolute numbers and percentages. (B) Opinion of outpatient physicians on what would be the best way to help stroke patients in aftercare. Multiple responses were possible. Data are presented as absolute numbers and percentages.
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Figures - available from: Frontiers in Neurology
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