http://onlinelibrary.wiley.com/doi/10.1111/jan.12819/full
Article first published online: 24 SEP 2015
DOI: 10.1111/jan.12819
© 2015 John Wiley & Sons Ltd
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Keywords:
- discharge planning;
- family caregivers;
- interpretive study;
- rehabilitation nurses;
- stroke survivors
Abstract
Aim
To
explore community-dwelling first-time stroke survivors and family
caregivers’ perceptions of being engaged in stroke rehabilitation.
Background
Stroke
is recognized as a worldwide common healthcare problem and the leading
cause of adult disability. An holistic approach to rehabilitation can
only be achieved by engaging stroke survivors and caregivers in all
stages of recovery and by providing ongoing coordinated rehabilitation
programmes.
Design
An interpretive study design was applied to the study.
Method
In-depth
semi-structured interviews with 22 community-dwelling first-time stroke
survivors and caregivers were conducted in 2013. The interviews were
audiotaped, transcribed and analysed using a thematic analysis.
Findings
Four
major themes were identified. First, participants demonstrated low
health literacy in stroke and their needs to learn about the disease and
rehabilitation were usually ignored in busy clinical settings prior to
discharge from hospital. Second, there was a lack of communication and
continuity of treatment when the stroke survivors were transferred from
one institution to another. Third, challenged with fragmented
post-discharge rehabilitation services, the participants perceived that
nurse-led coordination of rehabilitation was desirable. Fourth,
participants perceived ongoing changing of rehabilitation goals in
different stages of recovery. They expected to be engaged in ongoing
rehabilitation planning and programmes.
Conclusion
The
findings of this study challenge service providers to realize a true
partnership with stroke survivors and caregivers by working with them as
one team that is led by nurses. Making the necessary changes requires
mutual effort at both the systemic and individual levels with
rehabilitation nurse-led coordination of rehabilitation programmes.
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