http://journals.plos.org/plosone/article?id=10.1371%2Fjournal.pone.0122499
- Marie-Pascale Pomey ,
- Djahanchah P. Ghadiri ,
- Philippe Karazivan ,
- Nicolas Fernandez ,
- Nathalie Clavel
- Marie-Pascale Pomey,
- Djahanchah P. Ghadiri,
- Philippe Karazivan,
- Nicolas Fernandez,
- Nathalie Clavel
- Published: April 9, 2015
- http://dx.doi.org/10.1371/journal.pone.0122499
To advocate for patients to
be more actively involved with the healthcare services they receive,
particularly patients living with chronic illness, the Faculty of Medicine of
the University of Montreal and its affiliated hospitals developed the Patients
as Partners concept where the patient is considered a full-fledged partner of
the health care delivery team and the patient’s experiential knowledge is
recognized. This study aims to show how patients view their engagement with
healthcare professionals regarding their direct care. Using theoretical
sampling, 16 semi-structured interviews were conducted with patients with
chronic illness who were familiar with the concept of Patients as Partners.
Data analysis followed a constructivist grounded theory approach. Patients
describe themselves as proactively engaging in three types of practice,
regardless of health professionals’ openness to their role as partners. The
first is a process of continuous learning that allows them to acquire
experiential knowledge about their health, as well as scientific information
and technical know-how. The second involves their assessment of the healthcare
they receive, in terms of its quality and how it aligns with their personal
preferences. It includes their assessment of the quality of their relationship
with the health professional and of the latter’s scientific knowledge and
technical know-how. The third type, adaptation practices, builds on patients’
learning and assessments to compensate for and adapt to what has been perceived
as optimal or non-optimal health or healthcare circumstances. Patients appear
to play a more active and less docile role in their own direct care than
suggested so far in the literature, regardless of the degree of reciprocity of
the partnership or the degree to which the health professional seeks to
encourage patient engagement.
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