Deans' stroke musings: Exploring the experience of sleep and fatigue in male and female adults over the 2 years following traumatic brain injury: a qualitative descriptive study

Changing stroke rehab and research worldwide now.Time is Brain! trillions and trillions of neurons that DIE each day because there are NO effective hyperacute therapies besides tPA(only 12% effective). I have 523 posts on hyperacute therapy, enough for researchers to spend decades proving them out. These are my personal ideas and blog on stroke rehabilitation and stroke research. Do not attempt any of these without checking with your medical provider. Unless you join me in agitating, when you need these therapies they won't be there.

What this blog is for:

My blog is not to help survivors recover, it is to have the 10 million yearly stroke survivors light fires underneath their doctors, stroke hospitals and stroke researchers to get stroke solved. 100% recovery. The stroke medical world is completely failing at that goal, they don't even have it as a goal. Shortly after getting out of the hospital and getting NO information on the process or protocols of stroke rehabilitation and recovery I started searching on the internet and found that no other survivor received useful information. This is an attempt to cover all stroke rehabilitation information that should be readily available to survivors so they can talk with informed knowledge to their medical staff. It lays out what needs to be done to get stroke survivors closer to 100% recovery. It's quite disgusting that this information is not available from every stroke association and doctors group.

Wednesday, April 27, 2016

Exploring the experience of sleep and fatigue in male and female adults over the 2 years following traumatic brain injury: a qualitative descriptive study

If MS fatigue can be figured out and treated then with just the most miniscule amount of stroke leadership we can find the solution to stroke fatigue.

Treatable Causes of Fatigue in Patients with MS

But don't worry nothing will be researched for stroke because there is NO strategy or leadership.

Long-term treatment with methylphenidate for fatigue after traumatic brain injury

Is this a solution? Not mentioned in this research. Why not?

http://bmjopen.bmj.com/content/6/4/e010453.full.pdf+html
Alice Theadom,1,2 Vickie Rowland,1,2 William Levack,3 Nicola Starkey,4 Laura Wilkinson-Meyers,5 Kathryn McPherson,1,6 on behalf of the TBI Experiences Group
To cite: Theadom A, Rowland V, Levack W, et al. Exploring the experience of sleep and fatigue in male and female adults over the 2years following traumatic brain injury: a qualitative descriptive study. BMJ Open 2016;6:e010453. doi:10.1136/bmjopen-2015010453
▸ Prepublication history and additional material is available. To view please visit the journal (http://dx.doi.org/ 10.1136/bmjopen-2015010453).
Received 4 November 2015 Revised 22 February 2016 Accepted 11 March 2016
For numbered affiliations see end of article.
Correspondence to Alice Theadom; alice.theadom@aut.ac.nz
ABSTRACT
Objectives: To explore the experience of fatigue and sleep difficulties over the first 2 years after traumatic brain injury (TBI). Design: Longitudinal qualitative descriptive analysis of interviews completed as part of a larger longitudinal study of recovery following TBI. Data relating to the experience of fatigue and/or sleep were extracted and coded by two independent researchers.
Setting: Community-based study in the Hamilton and Auckland regions of New Zealand. Participants: 30 adult participants who had experienced mild, moderate or severe brain injury within the past 6 months (&gy;16years of age). 15 participants also nominated significant others to take part. Interviews were completed at 6, 12 and 24months post injury.
Results: Participants described feeling unprepared for the intensity, impact and persistent nature of fatigue and sleep difficulties after injury. They struggled to learn how to manage their difficulties by themselves and to adapt strategies in response to changing circumstances over time. Four themes were identified: (1) Making sense of fatigue and sleep after TBI; (2) accepting the need for rest; (3) learning how to rest and; (4) need for rest impacts on ability to engage in life.
Conclusions: Targeted support to understand, accept and manage the sleep and fatigue difficulties experienced may be crucial to improve recovery and facilitate engagement in everyday life. Advice needs to be timely and revised for relevance over the course of recovery.