Changing stroke rehab and research worldwide now.Time is Brain! trillions and trillions of neurons that DIE each day because there are NO effective hyperacute therapies besides tPA(only 12% effective). I have 523 posts on hyperacute therapy, enough for researchers to spend decades proving them out. These are my personal ideas and blog on stroke rehabilitation and stroke research. Do not attempt any of these without checking with your medical provider. Unless you join me in agitating, when you need these therapies they won't be there.

What this blog is for:

My blog is not to help survivors recover, it is to have the 10 million yearly stroke survivors light fires underneath their doctors, stroke hospitals and stroke researchers to get stroke solved. 100% recovery. The stroke medical world is completely failing at that goal, they don't even have it as a goal. Shortly after getting out of the hospital and getting NO information on the process or protocols of stroke rehabilitation and recovery I started searching on the internet and found that no other survivor received useful information. This is an attempt to cover all stroke rehabilitation information that should be readily available to survivors so they can talk with informed knowledge to their medical staff. It lays out what needs to be done to get stroke survivors closer to 100% recovery. It's quite disgusting that this information is not available from every stroke association and doctors group.

Saturday, July 15, 2023

Stroke patients 'badly let down' by lack of progress on health action plan, says charity

Well, yeah. Everything in stroke is a complete fucking failure, all because there is NO LEADERSHIP AND NO STRATEGY. Survivors need to be in charge.

Stroke patients 'badly let down' by lack of progress on health action plan, says charity

Stroke patients are being “badly let down” by lack of progress on an action plan for reshaping care, according to a leading charity.

Continuing delays in creating centres of excellence for stroke care mean "opportunities to save lives and improve outcomes for patients and staff are being missed", the Stroke Association says.

One year on from the launch of the Department of Health’s long-awaited 'Reshaping Stroke Care Action Plan', the charity said there are still no firm plans for the much-needed transformation of stroke services and development of ‘hyperacute stroke units’.

This is despite the action plan committing to deciding on a future model for stroke care by summer 2023. 

The action plan sets out the way forward for improving stroke services in Northern Ireland across six priority areas including the miracle stroke treatment thrombectomy, developing hyperacute stroke care, and rehabilitation and long-term support.

Former health minister Robin Swann. Picture by Liam McBurney/PA

 

Last June, then Health Minister Robin Swann warned that “we can and must do better for stroke patients and carers”, but that full implementation of the plan depended on additional funding over several years.  

Alasdair O’Hara from the Stroke Association said hyperacute stroke units have the potential to transform stroke care. 

“There are around 5,000 hospital admissions due to stroke a year and around 1,000 stroke-related deaths,” he said.

“Many of those who survive are left with profound disabilities. 

“Historically, stroke services have been provided by local hospitals, but this means they are often spread too thinly to maintain the necessary quality care and staffing levels.

“While being treated on any stroke unit is better than not being treated on one at all, we know that larger stroke units work more effectively than smaller ones and, most importantly, deliver better outcomes for patients."

He said research shows that "reorganising stroke services and ensuring that every patient is cared for on a hyperacute stroke unit can save lives and reduce length of hospital stay". 

"It’s vital that Northern Ireland doesn’t fall behind in terms of providing a progressive stroke service for patients and the workforce," he added.

The charity recently hosted a reception at Stormont to mark the anniversary of the action plan with health providers, charities and patients reflecting on progress and focus for the future.  

Jeremy Johnston

 

Stroke survivor Jeremy Johnston from Hillsborough, who spoke at the event, said "funding is at the centre of this, but surely better early interventions would lead to better outcomes, shorter hospital stays and less requirement for ongoing care in many cases, saving resources and money".

"However, it doesn’t take a political analyst to work out that these things may be more easily achieved with a functioning executive.”

A Department of Health spokesperson said "achievement of the timescales" set out in the action plan were "contingent on securing additional expertise and capacity to support the process".

"Following an unsuccessful procurement exercise, the department was unable to proceed as initially planned, requiring consideration of alternative ways forward.

"Subject to capacity and resource constraints, it is hoped that approval for a revised way forward will be secured later in the summer.

"While the department continues to face a very challenging environment, every effort will be made to progress the reform of stroke services."

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