Changing stroke rehab and research worldwide now.Time is Brain! trillions and trillions of neurons that DIE each day because there are NO effective hyperacute therapies besides tPA(only 12% effective). I have 523 posts on hyperacute therapy, enough for researchers to spend decades proving them out. These are my personal ideas and blog on stroke rehabilitation and stroke research. Do not attempt any of these without checking with your medical provider. Unless you join me in agitating, when you need these therapies they won't be there.

What this blog is for:

My blog is not to help survivors recover, it is to have the 10 million yearly stroke survivors light fires underneath their doctors, stroke hospitals and stroke researchers to get stroke solved. 100% recovery. The stroke medical world is completely failing at that goal, they don't even have it as a goal. Shortly after getting out of the hospital and getting NO information on the process or protocols of stroke rehabilitation and recovery I started searching on the internet and found that no other survivor received useful information. This is an attempt to cover all stroke rehabilitation information that should be readily available to survivors so they can talk with informed knowledge to their medical staff. It lays out what needs to be done to get stroke survivors closer to 100% recovery. It's quite disgusting that this information is not available from every stroke association and doctors group.

Showing posts with label stroke care. Show all posts
Showing posts with label stroke care. Show all posts

Friday, February 23, 2018

Good health care checklist: 10 things that matter most to patients

From PatientsLikeMe. How many of these are positive in your stroke care?


PatientsLikeMe Good Care Checklist
PatientsLikeMe members recently shared what it means to get “good” health care. After analyzing more than 1,200 responses from
over 200 participants, we made a list of the 10 major factors that
define good care.
How many of these are true about the care that you're receiving?
Active patient role in care
YES/NO
Do you feel informed about your care?
YES/NO
Do you understand your diagnosis?
YES/NO
Do you understand your treatment options?
YES/NO
Do you play an active role in the de
cision
-
making process?
Effective treatment selection
YES/NO
Do you believe the care you receive is appropriate for your medical problems?
YES/NO
Do you believe that your safety is a top priority?
YES/NO
Do you feel that you're receiving any unnecessary treatment?
Collaborative care
YES/NO
Do you see that your medical care preferences are taken into account by your
provider
?
YES/NO
Do you receive adequate explanations about your diagnosis, treatment options,
prognosis and any possible side ef
fects?
YES/NO
Do you feel that your provider takes the whole person (physical, emotional, social)
into account when delivering care?
YES/NO
Do you believe that your provider values your opinion?
Doctor or provider competence
YES/NO
Do you believe that your provider fully understands your condition or medical
problem(s)?
YES/NO
Do you believe that your provider offers a medication prescription that is effective
?
YES/NO
Do you believe that your provider is up to date on the latest research related to
your medical problem?
Focus on outcomes
YES/NO
Do you think that your condition is improving as a result of treatment?
YES/NO
Do you think that your treatment is improving your everyday life?
YES/NO
Do you prepare yourself with questions prior to any medical appointments?
Effective treatment delivery
YES/NO
Do you view your provider as being prepared for your appointments?
YES/NO
Do you view your provider as offering enough time for appointments?
YES/NO
Do you receive followups from your provider after appointments?
Individualized and empathetic care
YES/NO
Do you believe that your provider listens to you and your opinions?
YES/NO
Do you believe that your provider cares about you as a person?
Effective staff communication
YES/NO
Do you believe that your medical team members communicate well with each other?
YES/NO
Do you receive return calls from medical staff?
YES/NO
Do you receive sufficient attention from staff if you call between visits?
Care accessibility and cost
YES/NO
Do you have easy access to the office where you receive treatment?
YES/NO
Do you think that your care is affordable?
YES/NO
Do you think that your care is sufficiently covered by insurance?
Office management

Do you view the medical office staff as being well organized?
YES/NO
Do you receive reminders for your medical appointments?
YES/NO
Do you feel that your provider's office coordinates care effectively with your
insurance company?
YES/NO 
Not quite hitting the mark? 
YES/NO 


If you think your health care might not be as good as you’d like it to be, here are a few things you can
do:
Have an open
and honest conversation with your doctor
Make sure you have a voice in setting goals for treatment
Write down questions before your appointment
Take notes (or bring a buddy) to appointments
If you have a patient portal, check your medical results and docto
r’s notes
Check in with others in the PatientsLikeMe forum and learn how people like you are getting
good care
Join the conversation at
www.patientslikeme.com

Thursday, September 13, 2012

Translation of research into practice for post-stroke care goes national

Eureka!!! They finally realized how pathetic stroke care was, you don't see any mention of the Joint Commission which should have been leading that charge. Get your hospital involved.
http://phys.org/wire-news/108992277/translation-of-research-into-practice-for-post-stroke-care-goes.html
Researcher-clinicians from the Regenstrief Institute, the Department of Veterans Affairs and Indiana University School of Medicine are leading a national effort to coordinate and organize acute stroke care across the entire VA medical system. This initiative to improve in-hospital management of stroke with the goal of reducing disability and death was implemented by the VA this summer and may serve as a model for public and private hospital systems around the country.
"This undertaking grew out of our research into evidence-practice gaps in care, where we showed that the VA had high quality of post-acute and discharge care for stroke, but some room for improvement in very early stroke care," said Regenstrief Institute investigator Dawn Bravata, M.D., clinical coordinator of the VA's Stroke Quality Enhancement Research Initiative, or QUERI. She is a research scientist with the Center of Excellence on Implementing Evidence-Based Practice at the Richard L. Roudebush VA Medical Center in Indianapolis and associate professor of medicine at the IU School of Medicine.
All VA facilities that treat stroke patients, no matter the size of the unit or the number of hours per week when stroke care is available, are affected. Coordination and organization of care doesn't mean stroke care will be practiced identically at every facility. It does, however, encourage more uniform quality according to Dr. Bravata. Stroke care quality will initially be measured in three areas: administration of thrombolytic clot dissolving drugs; screening for swallowing difficulties; and use of the National Institutes of Health Stroke Scale to determine critical information about the severity of the stroke.
The specifics of the national quality initiative are tailored to the type of facility and what works in each locality—from major medical center to small facility. For example, screening for swallowing difficulty will become part of standard care, but it is up to each hospital to determine how that evaluation is done—perhaps by a nurse in the emergency room or a speech pathologist on an inpatient hospital unit.
"Improving stroke care and outcomes is a challenge as the population ages and hospital systems expand. The VA's experience in stroke care improvement can potentially be adapted to any health care system as a model of how care improvements can be provided in a coordinated, integrated fashion across different types of hospitals," said Regenstrief Institute investigator Linda Williams, M.D., research coordinator of the VA's Stroke QUERI. She is a research scientist with the Center of Excellence on Implementing Evidence-Based Practice at the Roudebush VAMC and associate professor of neurology at the IU School of Medicine. "The VA has been doing a good job using research to better inform how and where care improvements can be made. As health care is increasingly provided by networks of multiple hospitals, this VA example can be used to show how care improvements can be translated throughout the system for the benefit of all patients."
Risk factors for stroke include older age, hypertension, high cholesterol, smoking, physical inactivity and atrial fibrillation. Stroke is one of the leading causes of death and also of long-term disability in the United States. According to the National Institute of Neurological Disorders and Stroke, more than 780,000 strokes occur annually in the United States.