Changing stroke rehab and research worldwide now.Time is Brain! trillions and trillions of neurons that DIE each day because there are NO effective hyperacute therapies besides tPA(only 12% effective). I have 523 posts on hyperacute therapy, enough for researchers to spend decades proving them out. These are my personal ideas and blog on stroke rehabilitation and stroke research. Do not attempt any of these without checking with your medical provider. Unless you join me in agitating, when you need these therapies they won't be there.

What this blog is for:

My blog is not to help survivors recover, it is to have the 10 million yearly stroke survivors light fires underneath their doctors, stroke hospitals and stroke researchers to get stroke solved. 100% recovery. The stroke medical world is completely failing at that goal, they don't even have it as a goal. Shortly after getting out of the hospital and getting NO information on the process or protocols of stroke rehabilitation and recovery I started searching on the internet and found that no other survivor received useful information. This is an attempt to cover all stroke rehabilitation information that should be readily available to survivors so they can talk with informed knowledge to their medical staff. It lays out what needs to be done to get stroke survivors closer to 100% recovery. It's quite disgusting that this information is not available from every stroke association and doctors group.

Sunday, May 1, 2016

Moving stroke rehabilitation research forward: Developing consensus statements for rehabilitation and recovery research

I've been screaming about this for years. But in order to actually do something about this a couple of things need to occur.
1. Stop with the 'happy talk' about F.A.S.T. and prevention.
2. Acknowledge all the problems in stroke.
3. Create a stroke strategy
4. The May roundtable will be a failure without patient representation.
http://wso.sagepub.com/content/11/4/454.abstract?
  1. Julie Bernhardt1,2⇑
  2. Karen Borschmann1,2
  3. Lara Boyd3
  4. S Thomas Carmichael4
  5. Dale Corbett5,6
  6. Steven C Cramer7
  7. Tammy Hoffmann8
  8. Gert Kwakkel9
  9. Sean I Savitz10
  10. Gustavo Saposnik11,12
  11. Marion Walker13
  12. Nick Ward14,15
  1. 1NHMRC Centre for Research Excellence in Stroke Rehabilitation and Recovery, Victoria, Australia
  2. 2The Florey Institute of Neuroscience and Mental Health, Heidelberg, Australia
  3. 3Department of Physical Therapy and the Djavad Mowafaghian Centre for Brain Health, University of British Columbia, BC, Canada
  4. 4Departments of Neurology and Neurobiology, David Geffen School of Medicine at UCLA, Los Angeles, USA
  5. 5Department of Cellular and Molecular Medicine, University of Ottawa, Ottawa, Canada
  6. 6Heart and Stroke Foundation Canadian Partnership for Stroke Recovery, University of Ottawa, Ottawa, Canada
  7. 7Departments of Neurology, Anatomy & Neurobiology, and Physical Medicine & Rehabilitation, University of California, Irvine, USA
  8. 8Centre for Research in Evidence-Based Practice, Bond University, Gold Coast, Queensland, Australia
  9. 9Department of Rehabilitation Medicine, Neuroscience Campus Amsterdam, VU University Medical Centre, Amsterdam, The Netherlands
  10. 10Stroke Program, McGovern Medical School, UTHealth, Houston, Texas, USA
  11. 11Department of Medicine, University of Toronto, Toronto, Canada
  12. 12Stroke Outcomes Research Center, Li Ka Shing Knowledge Institute, Toronto, Canada
  13. 13Division of Rehabilitation and Ageing, University of Nottingham, Nottingham, UK
  14. 14Sobell Department of Motor Neuroscience UCL Institute of Neurology, Queen Square, London, UK
  15. 15National Hospital for Neurology and Neurosurgery, Queen Square, London, UK
  1. Julie Bernhardt, The Florey Institute of Neuroscience and Mental Health, 245 Burgundy Street Heidelberg, Victoria 3084 Australia. Email: julie.bernhardt@florey.edu.au

Abstract

Stroke recovery is the next frontier in stroke medicine. While growth in rehabilitation and recovery research is exponential, a number of barriers hamper our ability to rapidly progress the field. Standardized terminology is absent in both animal and human research, methods are poorly described, recovery biomarkers are not well defined, and we lack consistent timeframes or measures to examine outcomes. Agreed methods and conventions for developing, monitoring, evaluating and reporting interventions directed at improving recovery are lacking, and current approaches are often not underpinned by biology. We urgently need to better understand the biology of recovery and its time course in both animals and humans to translate evidence from basic science into clinical trials. A new international partnership of stroke recovery and rehabilitation experts has committed to advancing the research agenda. In May 2016, the first Stroke Recovery and Rehabilitation Roundtable will be held, with the aim of achieving an agreed approach to the development, conduct and reporting of research. A range of methods will be used to achieve consensus in four priority areas: pre-clinical recovery research; biomarkers of recovery; intervention development, monitoring and reporting; and measurement in clinical trials. We hope to foster a global network of researchers committed to advancing this exciting field. Recovery from stroke is challenging for many survivors. They deserve effective treatments underpinned by our evolving understanding of brain recovery and human behaviour. Working together, we can develop game-changing interventions to improve recovery and quality of life in those living with stroke.
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