Deans' stroke musings: Stroke survivors attend briefing at Leinster House

Changing stroke rehab and research worldwide now.Time is Brain! trillions and trillions of neurons that DIE each day because there are NO effective hyperacute therapies besides tPA(only 12% effective). I have 523 posts on hyperacute therapy, enough for researchers to spend decades proving them out. These are my personal ideas and blog on stroke rehabilitation and stroke research. Do not attempt any of these without checking with your medical provider. Unless you join me in agitating, when you need these therapies they won't be there.

What this blog is for:

My blog is not to help survivors recover, it is to have the 10 million yearly stroke survivors light fires underneath their doctors, stroke hospitals and stroke researchers to get stroke solved. 100% recovery. The stroke medical world is completely failing at that goal, they don't even have it as a goal. Shortly after getting out of the hospital and getting NO information on the process or protocols of stroke rehabilitation and recovery I started searching on the internet and found that no other survivor received useful information. This is an attempt to cover all stroke rehabilitation information that should be readily available to survivors so they can talk with informed knowledge to their medical staff. It lays out what needs to be done to get stroke survivors closer to 100% recovery. It's quite disgusting that this information is not available from every stroke association and doctors group.

Sunday, November 13, 2016

Stroke survivors attend briefing at Leinster House - Ireland

Totally wrong focus. You need to start complaining about the lack of results; tPA efficacy, 30day deaths, 100% recovery. Lack of rehab services means nothing if those services are failures.
http://www.independent.ie/regionals/braypeople/news/stroke-survivors-attend-briefing-at-leinster-house-35199067.html

Stroke survivors from Wicklow attended an Oireachtas briefing in Leinster House last week and shared their experiences regarding the lack of available rehabilitation services.

The even was hosted by the Irish Heart Foundation with the support of medical technology, services and solutions company Medtronic, ahead of World Stroke Day.

On behalf of 50,000 stroke survivors in Ireland, the Wicklow group gathered with others from around the country to meet their local TDs and highlight the need for better rehabilitation services.
A study launched on the day, conducted by the Irish Heart Foundation and the HSE's National Stroke Programme, showed large gaps in vital recovery services for stroke patients around the country, with just one in four rehabilitation hospitals having a dedicated stroke unit; 60 per cent lacking a stroke specialist to oversee rehabilitation; and less than one in three having any access to psychological services.

The audit also showed major organisational deficits across the rehabilitation hospital network. Half of the hospitals couldn't provide accurate information on the numbers of stroke patients they had admitted or discharged, whilst bed access was restricted based on age in 12 of the 26 hospitals.