Deans' stroke musings: Stroke survivors’ priorities for research related to life after stroke

Changing stroke rehab and research worldwide now.Time is Brain! trillions and trillions of neurons that DIE each day because there are NO effective hyperacute therapies besides tPA(only 12% effective). I have 523 posts on hyperacute therapy, enough for researchers to spend decades proving them out. These are my personal ideas and blog on stroke rehabilitation and stroke research. Do not attempt any of these without checking with your medical provider. Unless you join me in agitating, when you need these therapies they won't be there.

What this blog is for:

My blog is not to help survivors recover, it is to have the 10 million yearly stroke survivors light fires underneath their doctors, stroke hospitals and stroke researchers to get stroke solved. 100% recovery. The stroke medical world is completely failing at that goal, they don't even have it as a goal. Shortly after getting out of the hospital and getting NO information on the process or protocols of stroke rehabilitation and recovery I started searching on the internet and found that no other survivor received useful information. This is an attempt to cover all stroke rehabilitation information that should be readily available to survivors so they can talk with informed knowledge to their medical staff. It lays out what needs to be done to get stroke survivors closer to 100% recovery. It's quite disgusting that this information is not available from every stroke association and doctors group.

Tuesday, June 22, 2021

Stroke survivors’ priorities for research related to life after stroke

Why did you even have to ask? The whole point is to return to normal life, 100% recovery. Your fucking tyranny of low expectations is showing.

Stroke survivors’ priorities for research related to life after stroke

Topics in Stroke Rehabilitation , Volume 28(2) , Pgs. 153-158.

NARIC Accession Number: J86308. What's this?
ISSN: 1074-9357.
Author(s): Rudberg, Ann-Sofie ; Berge, Eivind ; Laska, Ann-Charlotte ; Jutterström, Stina ; Näsman, Per ; Sunnerhagen, Katharina S.; Lundström, Erik.
Publication Year: 2021.
Number of Pages: 6.

Abstract:

Study determined which area of research related to life after stroke that Swedish stroke patients and their informal caregivers prioritized as being relevant and valuable, explored whether priorities differed between subgroups of patients. This was a cross-sectional study of all patients who had completed the 12-month follow-up questionnaire in an ongoing Swedish randomized clinical trial of fluoxetine versus placebo once daily for six months after ischemic stroke or intracerebral hemorrhage. In the questionnaire, the stroke patients and their informal caregivers were asked to prioritize areas of research they considered important and valuable with respect to their life after stroke. Of the 731 patients who were still alive at the 12-month follow-up, 589 responded. The most prioritized areas of research were “balance and walking difficulties” (49 percent) and “post-stroke fatigue” (29 percent). Women answered the undefined alternative “other” more often than men (11 percent versus 6 percent). Younger patients prioritized “post-stroke fatigue” to a higher extent, and elderly patients prioritized “balance and walking difficulties” and “speech difficulties”. The results suggest that life after stroke is perceived differently with aging. Future research should address strategies to face challenges such as imbalance and walking difficulties and post-stroke-fatigue.
Descriptor Terms: CAREGIVERS, CHRONIC FATIGUE SYNDROME, CLIENTS, GOAL SETTING, MOBILITY IMPAIRMENTS, RESEARCH, STROKE.

Can this document be ordered through NARIC's document delivery service*?: Y.

Citation: Rudberg, Ann-Sofie , Berge, Eivind , Laska, Ann-Charlotte , Jutterström, Stina , Näsman, Per , Sunnerhagen, Katharina S., Lundström, Erik. (2021). Stroke survivors’ priorities for research related to life after stroke. Topics in Stroke Rehabilitation , 28(2), Pgs. 153-158. Retrieved 6/22/2021, from REHABDATA database.