Deans' stroke musings: How do stroke survivors experience rehabilitation goal setting and plans to support their rehabilitation? A qualitative study

Changing stroke rehab and research worldwide now.Time is Brain! trillions and trillions of neurons that DIE each day because there are NO effective hyperacute therapies besides tPA(only 12% effective). I have 523 posts on hyperacute therapy, enough for researchers to spend decades proving them out. These are my personal ideas and blog on stroke rehabilitation and stroke research. Do not attempt any of these without checking with your medical provider. Unless you join me in agitating, when you need these therapies they won't be there.

What this blog is for:

My blog is not to help survivors recover, it is to have the 10 million yearly stroke survivors light fires underneath their doctors, stroke hospitals and stroke researchers to get stroke solved. 100% recovery. The stroke medical world is completely failing at that goal, they don't even have it as a goal. Shortly after getting out of the hospital and getting NO information on the process or protocols of stroke rehabilitation and recovery I started searching on the internet and found that no other survivor received useful information. This is an attempt to cover all stroke rehabilitation information that should be readily available to survivors so they can talk with informed knowledge to their medical staff. It lays out what needs to be done to get stroke survivors closer to 100% recovery. It's quite disgusting that this information is not available from every stroke association and doctors group.

Friday, May 9, 2025

How do stroke survivors experience rehabilitation goal setting and plans to support their rehabilitation? A qualitative study

Why don't you understand that the ONLY FUCKING GOAL IN STROKE IS 100% RECOVERY! Are you complete blithering idiots?

How do stroke survivors experience rehabilitation goal setting and plans to support their rehabilitation? A qualitative study

Cite this article

Abstract

Purpose

Patient involvement and goal setting are essential components of stroke rehabilitation. However, ensuring continuity and patient engagement can be challenging due to different settings and time points throughout rehabilitation journey. This study aimed to explore stroke survivors’ experiences with their rehabilitation plan across hospital-to-municipality transition.

Materials and methods

This qualitative study involved individual interviews with stroke survivors who received standard rehabilitation plans for municipal rehabilitation after hospital discharge. Participants shared their reflections on their cross-sectoral rehabilitation experience. Data were analyzed using reflexive thematic analysis outlined by Braun and Clarke.

Results

We interviewed 17 participants from eight municipalities within the hospital’s service area. Analysis identified two main themes: Misalignment of rehabilitation goals and plans with patient needs and Navigating Inequity in Rehabilitation: Unmet Needs and Personal Strategies. Four subthemes included Challenges in Defining Goals, Lack of Patient Involvement in Goal Setting, Seeking Supplementary Care to Meet Unmet Needs, and Living Within and Beyond a Standardized System.

Conclusion

Rehabilitation goals are not always clearly communicated to stroke survivors, and insufficient patient-centered approaches suggest potential gaps in the rehabilitation system. Additionally, timing of rehabilitation plans often does not align with patients’ needs, indicating a need for more adaptable and responsive rehabilitation pathways.(100% recovery is the only goal in stroke! GET THERE!)

IMPLICATIONS FOR REHABILITATION

Rehabilitation goals should transition across rehabilitation settings for stroke survivors and therapist consistency.
Stroke survivors do not always understand their rehabilitation goals and plans therefore therapists should aim for open discussion and reevaluation of the goals for rehabilitation in cooperation with the stroke survivors.
Rehabilitation goals should not be formulated in a standardized and restricted way as it can reduce the motivation for the stroke survivors and not provide enough useful information for the therapists working across sectors in relation to establishing a connection across sectors.

My conclusion is you don't understand ONE GODDAMN THING ABOUT SURVIVOR MOTIVATION/ADHERENCE, DO YOU? You create EXACT 100% recovery protocols, and your survivor will be motivated to do the millions of reps needed because they are looking forward to 100% recovery. I'd fire all of you for incompetence! GET THERE!

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Introduction

From a global perspective, stroke remains the second leading cause of death and the third leading cause of both death and disability [Citation1]. The costs of stroke are significant not only for the individuals affected but also for their partners, as stroke increases the need for ongoing treatment and care and reduces the ability to work [Citation2]. Additionally, it incurs social transfer costs (e.g., pensions, social security, social assistance) for many years post-stroke [Citation3]. In the Danish population, the annual incidence of acute stroke is over 12,000, with approximately 4,000 hospital admissions occurring in the Capital Region of Denmark [Citation4]. A written action plan for stroke treatment from the Danish Brain Association in 2022 [Citation5] estimated that approximately 50% of stroke survivors required neurorehabilitation following their stroke. According to the Action Plan for Stroke in Europe 2018–2030 [Citation6] motor function impairments following a stroke are estimated to occur in 50–85% of cases. These impairments can include balance difficulties, walking disabilities, and reduced upper extremity function. Other impairments can include cognition in relation to memory problems and spatial neglect and communicative problems, e.g., aphasia [Citation6].