Changing stroke rehab and research worldwide now.Time is Brain! trillions and trillions of neurons that DIE each day because there are NO effective hyperacute therapies besides tPA(only 12% effective). I have 523 posts on hyperacute therapy, enough for researchers to spend decades proving them out. These are my personal ideas and blog on stroke rehabilitation and stroke research. Do not attempt any of these without checking with your medical provider. Unless you join me in agitating, when you need these therapies they won't be there.

What this blog is for:

My blog is not to help survivors recover, it is to have the 10 million yearly stroke survivors light fires underneath their doctors, stroke hospitals and stroke researchers to get stroke solved. 100% recovery. The stroke medical world is completely failing at that goal, they don't even have it as a goal. Shortly after getting out of the hospital and getting NO information on the process or protocols of stroke rehabilitation and recovery I started searching on the internet and found that no other survivor received useful information. This is an attempt to cover all stroke rehabilitation information that should be readily available to survivors so they can talk with informed knowledge to their medical staff. It lays out what needs to be done to get stroke survivors closer to 100% recovery. It's quite disgusting that this information is not available from every stroke association and doctors group.

Showing posts with label swimming. Show all posts
Showing posts with label swimming. Show all posts

Saturday, February 8, 2025

New Swim England fact sheet on swimming after a stroke

 Not very helpful, no instruction on swimming one-armed. In looking at videos side stroke might be possible.  I'd have to practice in 4-5 feet of water so I could stand if necessary. 

New Swim England fact sheet on swimming after a stroke

A new fact sheet which explains how people can benefit from swimming and aquatic activity after a stroke has been published by Swim England.

The Swimming after a Stroke fact sheet has been developed by the national governing body in conjunction with the University of Nottingham and the Stroke Association – and is aimed at helping more than 1.3 million stroke survivors in the country to get active.

Stroke can occur every five minutes in the UK, with 100,000 people experiencing one every year.

They can lead to long-term disability and people who have had a stroke may experience ongoing issues with their mobility and independence caused by pain, fatigue, cognitive and emotional problems.

Getting active after leaving hospital in the absence of, or with formal rehabilitation can provide a massive boost to their recovery, confidence and wellbeing, helping them to stay healthy in the future.

The fact sheet details what people after a stroke need to consider before, during and after a swimming session – and top tips on how aquatic activity can aid their recovery.

It has also been created in a format to help those who have aphasia – a common speech and language issue after a stroke.

More than 350,000 people in the UK have aphasia and this version of the fact sheet includes the use of clear illustrations and icons to support the context of the sentence.

It also contains simplified and short sentences, with bold key words based on the Stroke Association aphasia-friendly style and co-created from extensive testing with people with aphasia.

‘Allowing people to enjoy being active in the water’

Dr Fiona Moffatt, associate professor and director of professional development and wellbeing for the School of Health Sciences, University of Nottingham, and a member of Swim England’s Swimming and Health Commission, said: “Getting active again after a stroke can have numerous benefits, including lessening the risk of another stroke occurring.

“But we also know that swimming or aquatic activity can be of particular help, with a range of benefits not seen with land-based exercise

“This new fact sheet helps to explain some of those benefits and some of the approaches that will allow people to enjoy being active in water in a safe and enjoyable way.

“We were also aware however, that for those who have aphasia the standard fact sheet formats that have been so popular with other audiences might not be suitable.

“So, we developed an aphasia friendly version with the help of a specialist speech and language therapist, as part of a stakeholder group of people with lived experience of stroke and with input from the Stroke Association.”

Mike Hawkes, head of diversity and inclusion at Swim England, said: “Swim England is committed to tackling the inequalities which prevent sections of our communities from enjoying the benefits of swimming and aquatic activities in all its shapes and forms.

“We believe aquatic activities are uniquely placed to support those who may have experienced a stroke.

“By developing the aphasia friendly version of this fact sheet, we hope this opens up the opportunity to participate in aquatic activity for even more people.”

Juliet Bouverie, chief executive for the Stroke Association, added: “Getting active after stroke is incredibly important to recovering from the effects of stroke and reducing the risk of another stroke happening.

“It is brilliant to see that Swim England has developed a swimming after stroke information resource, to support stroke survivors to get back into the water or even start swimming for the first time.

“We are delighted to have been able to support the process of development. We hope that it will be used by healthcare professionals, leisure providers and people affected by stroke to encourage more stroke survivors to enjoy the benefits of being active in water.”

The new fact sheets follow 12 others developed, covering conditions such as asthma, cancer, dementia, diabetes, epilepsy, ear infection, glandular fever, mental health, musculoskeletal conditions, skin conditions, swimming before and after surgery and a fact sheet on swimming after Covid-19.

To date, more than 23,000 copies of the various fact sheets have been downloaded – with more than 275,000 visits to the fact sheet pages of the Just Swim website – since they were first developed.

Swim England will be continuing to develop new fact sheets for different conditions with support from the Swimming and Health Commission over the coming months, with a further fact sheet around swimming with multiple sclerosis and Parkinson’s also due to launch very soon.

For more information on this or other aspects of Swim England’s health and wellbeing work, please email health@swimming.org

Friday, August 27, 2021

Swimming in Lake Superior

Well wading in with help and sitting on a rock 6 inches underwater facing the shore, wedged my right foot against a rock, left foot only partially wedged and my right hand grabbing a lip of the rock I'm sitting on. 1.5-2 foot waves would crash against my back, with several breaking over my head. Since the wind was from the northwest it was blowing all the warmed up top layers of water into the Duluth shores. My friends went swimming for 10-15 minutes while I enjoyed the pummeling. Both friends had to help me back to shore as the waves were still swirling around my feet.

Had a belated wedding reception on the shores of Lake Superior and watched this beautiful moonrise. Several days later the smoke from the BWCA fires were hovering all over Duluth.



Friday, November 27, 2020

Big Surprise: The Brain Can Recover Many Years After a Stroke

 This is great, but HOW DO YOU MAKE THIS EXACTLY REPEATABLE? If I were to try swimming now I would drown, so this person is definitely much higher functioning than me in regards to arm use.

Big Surprise: The Brain Can Recover Many Years After a Stroke

Abstract

Most doctors think that after a patient has a stroke, recovery only happens for 6 months to a year; after that there is no point in continuing with rehabilitation therapy. We described a patient who had a severe stroke at age 15 and was left with a completely useless left hand. Then 23 years later, after he started swimming regularly to lose weight, he had some movement in the fingers of his left hand. He began intensive therapy with exercises using a special glove, and now, 37 years after the stroke, he is still improving. The way his brain “rewired” itself all over both sides of the brain is shown with a special imaging method called functional magnetic resonance imaging. This means that intensive physiotherapy and maybe new approaches to brain recovery including stem cell therapy, need to be tried much longer after the stroke than we used to think.

Introduction

What most doctors believe is that after a stroke

, the patient can only recover for a short time, such as 6 months or a year. Young children who have strokes recover much better than people who have strokes as adults.

This is a story of a man who had a stroke at age 15 and had no use of his left hand until he began to recover 23 years later, after taking up swimming to try to lose weight [1]. He is still improving 37 years after the stroke. His story gives hope for recovery much later than we thought possible, and suggests that intensive physiotherapy, and maybe new approaches to brain recovery such as stem cell

therapy might improve recovery long after a stroke [2–5].


 

Wednesday, October 21, 2020

Could cold water hold a clue to a dementia cure?

This would require that your doctor get you recovered enough to do swimming. 

YOUR DOCTOR'S RESPONSIBILITY!

Or if your doctor is lazy and doesn't have the protocols to get you 100% recovered then maybe cold showers will do.

Adapted cold shower as a potential treatment for depression

The latest here: 

Could cold water hold a clue to a dementia cure?

The protein has been shown to slow the onset of dementia and even repair some of the damage it causes in mice.Prof Giovanna Mallucci, who runs the UK Dementia Research Institute's Centre at the University of Cambridge, says the discovery could point researchers towards new drug treatments which may help hold dementia at bay.The research - although promising - is at an early stage, but it centres on the hibernation ability that all mammals retain, which is prompted by exposure to cold.

There are already more than a million people with dementia in the UK and the total is expected to double by 2050.

Researchers are searching for new ways to treat the condition, as current options have only limited impact.

Bears and hedgehogs

Doctors have known for decades that cooling people down can - in certain circumstances - protect their brains.

People with head injuries and those who need cardiac operations are often cooled during surgery, as are babies.

What has not been so well understood was why cold has this protective effect.

The link with dementia lies in the destruction and creation of synapses - the connections between cells in the brain.

In the early stages of Alzheimer's and other neuro-degenerative diseases, these brain connections are lost.

This leads to the cascade of symptoms associated with dementia - including memory loss, confusion and mood swings - and, in time, the death of whole brain cells.

What intrigued Prof Mallucci was the fact that brain connections are lost when hibernating animals like bears, hedgehogs and bats bed down for their winter sleep.

About 20-30% of their synapses are culled as their bodies preserve precious resources for winter.

But when they awake in the spring, those connections are miraculously reformed.

 

Friday, October 9, 2020

Flutter kick failure

 In Florida right now, don't come here, mask wearing is hit and miss. Tried out the pool at the condo. I can't independently just move my lower left leg to propel myself in a straight direction using both legs easily. I should be able to go to any physical therapist in the world, get an exact diagnosis of the problem, THEN GET EXACT PROTOCOLS TO FIX THE PROBLEM.  I shouldn't have to solution this myself, the stroke medical world should have all the answers to 100% recovery.

Wednesday, February 21, 2018

Pool practice

On Super Bowl weekend prior to the big game my friends took me to a pool. Tried out several pool floats to see which would be the best to practice flutter kicks without drowning. Turns out that being stomach side down was harder to stay on the float than grasping them to my chest and laying on my back. There was no flutter kick since I have very little lower leg control, mostly whole leg movement. It took all three of them swimming by my side to make sure I was safe.  But good to know about this, something I should have received from my doctor and therapists. We have 10 million yearly stroke survivors  reinventing the wheel of stroke recovery. What a fucking waste of time and effort.

Friday, January 12, 2018

BCN3D Sigma 3D printer helps 16-year-old swimmer in stroke rehabilitation

I bet your doctors and stroke hospital have NEVER THOUGHT of anything innovative like this to help their stroke survivors. Why should they, they are paid by the hour not any results?
https://www.tctmagazine.com/3d-printing-news/bcn3d-sigma-3d-printer-swimmer-stroke-rehab/

Pedro, 16, suffered a stroke in August 2012.

11 January 2018
09:40




Monday, July 11, 2016

Learning to Swim Again post stroke

This should be written up as a publicly available stroke protocol. But our fucking failures of stroke associations don't even know how to do this simple thing for survivors. You are completely fucking on your own, creating your own protocols, exercises and mental cognition tasks. Putting it out in the Stroke Connection magazine is the completely fucking lazy way to attempt to communicate this to stroke survivors.
http://scmag-digi.strokeassociation.org/strokeconnection/summer_2016?pg=NaN#pgNaN

Wednesday, November 27, 2013

Go Ice Swimming in Finland

From Weather.coms

40 Things to Do Before You Die

I've done this numerous times in northern Minnesota, its a lot of fun right after a sauna. You have to remember to wear shoes

This would be a useful stroke therapy because of all the sensation signals being sent back to your brain. One problem, I don't see how you can dip just your hemiplegic side into the refreshing waters.

Look at that smile of pleasure on his face.