Stroke researchers and scientists receive national awards

If our stroke associations had a survivor focus they would be interviewing each of these recipients for how their work helped survivors. But never mind nothing of that sort will occur.
http://www.cardiovascularbusiness.com/topics/vascular-endovascular/stroke-researchers-and-scientists-receive-national-awards

The American Stroke Association plans on honoring nine scientists and stroke researchers at its annual International Stroke Conference in Los Angeles.
Here are the award winners:

• Philip Bath, FRCP, DSc, a stroke association professor and head of clinical neuroscience at the University of Nottingham in the U.K., will receive the William Feinberg Award for Excellence in Clinical Stroke.
• Bo Norrving, MD, PhD, a professor of neurology at Lund University in Sweden, will receive the David G. Sherman Lecture Award for his lifetime contributions to the stroke field .
• Ulrich Dirnagl, MD, a director of experimental neurology at Charité UniversitätsMedizin Berlin in Germany, will receive the Thomas Willis Lecture Award for basic science contributions to the investigation and management of stroke.
• Solène Moulin, MD, a neurologist and PhD student at the University Hospital of Lille, France, will receive the Vascular Cognitive Impairment Award.
• Julie Bernhardt, PhD, head of the stroke division at the Florey Institute of Neuroscience and Mental Health at the University of Melbourne in Australia, will receive the Stroke Rehabilitation Award.
• Amjad Shehadah, MD, a vascular neurology fellow at the National Institutes of Health, will receive the Mordecai Y. T. Globus New Investigator Award in Stroke.
• Peter D. Panagos, MD, associate professor of emergency medicine and neurology at Washington University in St. Louis, will receive the Stroke Care in Emergency Medicine Award.
• Hooman Kamel, MD, assistant professor of neurology and director of the Clinical and Translational Neuroscience Unit in the Brain and Mind Research Institute at Weill Cornell Medicine in New York, will receive the Robert G. Siekert New Investigator in Stroke Award.
• Yejie Shi, MD, PhD, a postdoctoral associate of neurology at the University of Pittsburgh, will receive the Stroke Basic Science Award.

The Meeting of the Minds Dementia Conference

Look what a good patient association can do. I don't think our fucking failures of stroke associations even want to talk to survivors. Stroke survivors are damned easy to find, they're all over facebook and self created stroke forums. Yeah, stroke survivors can be hard to talk to, like those with aphasia and those that still have high cognitive abilities, some with both.  They would get an earful and our stroke associations seem to just put out press releases, not do any actual work.

	The Meeting of the Minds Dementia Conference is the premier dementia conference for people with Mild Cognitive Impairment (MCI) or early dementia, families, friends and professionals. The conference is a collaboration between the Alzheimer's Association and Mayo Clinic, who work together to create a day filled with dementia information, support and resources. Every year national, regional and local presenters come together to ensure an innovative and insightful conference for the 1,300 participants and over 70 sponsors and exhibits.			Photo: Scott Nelson
	SAVE THE DATE: Saturday, March 19, 2016 7:30 a.m. - 4:30 p.m. General Conference registration will open on January 4, 2016 at 9 a.m.  Saint Paul RiverCentre 175 West Kellogg Boulevard Saint Paul, MN 55102
	PRICING: Registration will open at 9 a.m. and end at 5 p.m. (Central Time) on the respective days.
		EARLY BIRD(1/4-2/5)	STANDARD(2/6-3/14)
	PEOPLE WITH EARLY DEMENTIA OR MCI, CAREGIVERS, FAMILIES, FRIENDS OR STUDENTS	$80	$100
	PROFESSIONALS	$160	$180
	KEYNOTE SPEAKERS:
	Mary Mittelman, D.P.H. Dr. Mary Mittelman is Research Professor of Psychiatry and Rehabilitative Medicine at NYU School of Medicine. She is an epidemiologist who has been developing and evaluating psychosocial interventions for people with cognitive impairment and their family members for nearly three decades. For more than 20 years, Dr. Mittelman was Principal Investigator of the National Institute of Health funded study of the NYU Caregiver Intervention (NYUCI), which has been widely published and recognized. With her colleagues, she developed online training for social service professionals as well as a telehealth version of the NYUCI. In 2004, Dr. Mittelman was the recipient of the Alzheimer’s Association Zenith Fellows Award for her research on the effectiveness of counseling for couples impacted by dementia. In the past decade, Dr. Mittelman has been evaluating and developing interventions that include the people with dementia with their caregiver, and founded The Unforgettables, a chorus for people with dementia with their family members.
	Donald Warne, MD, MPH Donald Warne, MD, MPH is Professor and Chair of the Department of Public Health in the College of Health Professions at North Dakota State University, and he is the Senior Policy Advisor to the Great Plains Tribal Chairmen’s Health Board. Dr. Warne is a member of the Oglala Lakota tribe from Pine Ridge, SD and comes from a long line of traditional healers and medicine men. He received his MD from Stanford University School of Medicine and his MPH from Harvard School of Public Health. Professional activities include: Member, National Board of Directors, American Cancer Society  Member, Minority Affairs Section and Association of American Indian Physicians Representative to the American Medical Association  Member, Advisory Committee on Rural Health and Human Services, US Department of Health and Human Services Member, Advisory Committee on Breast Cancer in Young Women, Centers for Disease Control and Prevention  Member, National Institutional Review Board, Indian Health Service
	For more information about the Meeting of the Minds Dementia Conference 2016, contact Deborah Richman, Vice President, Education & Outreach: By phone: 952.857.0551  By email: drichman@alz.org

Mr. Lopez, Dr. Stephen Davis, Dr. Mariel Jessup "What evidence would you need to see to change your mind about how to solve the stroke problem?"

Stroke survivors are not getting anywhere with help for us, so we need to change the conversation from F.A.S.T. and prevention to something more useful.
A great description from Seth Godin;

Seth's Blog : How to win an argument with a scientist

The person you're arguing with now (who might be a scientist during the day, even, but is merely being a person right now) is not going to be swayed from a firmly held opinion by your work to make better science. It's more likely that it will take cultural pressure, shame, passion, humor, connection and a host of unreliable levers to make your point.

You can save a life - National Stroke Association

Of course you can but with the current state of stroke reporting you have no idea if your hospital is any good at all. I have yet to see any hospital report on their 30 day deaths and how much better they are than their competitors, or any reporting on the 100% recovery statistic. So if the NSA wants to do something useful then at least I would know which hospitals to avoid for my next stroke. Yes, this will be extremely disruptive for the stroke hospitals but I don't f*cking care. My brain is worth more than their poor fee-fees. Mr. Lopez, I hope you finally turn the corner and make the NSA into a survivor focused organization.
http://support.stroke.org/site/MessageViewer?dlv_id=40441&em_id=28501.0

Dear Friend,
As someone who has been touched by stroke, you know the life-changing effect it has on individuals and their families and friends. You’ve shared your stories with us, and the need for action:(Solve all the f*cking problems in stroke, that would be a good action)
“I don't want anyone else to experience the trauma of stroke. It is a scary and debilitating situation to happen to anyone. Let's eradicate this frightening occurrence.” – Cheryl
We couldn’t agree more. That’s why we hope you’ll register today for the 2015 Act FAST for Stroke Challenge to help raise awareness(Big Whoopee) and critical funds to save more lives.
This year alone, more than 100,000 people are at high-risk of dying from stroke:

• Stroke kills twice as many women as breast cancer every year.
• African Americans and Hispanic Americans are at higher risk than many other groups within the American population.

And, this year, your support can go twice as far through our matching gift challenge. Thanks to our generous sponsor, Bioness, all gifts made will be doubled, up to $20,000.
It’s a powerful way to come together to honor special people during National Stroke Awareness Month and help save more lives. 
Thank you for all that you do.
Sincerely,

Matt Lopez
Chief Executive Officer
National Stroke Association