Changing stroke rehab and research worldwide now.Time is Brain! trillions and trillions of neurons that DIE each day because there are NO effective hyperacute therapies besides tPA(only 12% effective). I have 523 posts on hyperacute therapy, enough for researchers to spend decades proving them out. These are my personal ideas and blog on stroke rehabilitation and stroke research. Do not attempt any of these without checking with your medical provider. Unless you join me in agitating, when you need these therapies they won't be there.

What this blog is for:

My blog is not to help survivors recover, it is to have the 10 million yearly stroke survivors light fires underneath their doctors, stroke hospitals and stroke researchers to get stroke solved. 100% recovery. The stroke medical world is completely failing at that goal, they don't even have it as a goal. Shortly after getting out of the hospital and getting NO information on the process or protocols of stroke rehabilitation and recovery I started searching on the internet and found that no other survivor received useful information. This is an attempt to cover all stroke rehabilitation information that should be readily available to survivors so they can talk with informed knowledge to their medical staff. It lays out what needs to be done to get stroke survivors closer to 100% recovery. It's quite disgusting that this information is not available from every stroke association and doctors group.

Saturday, January 17, 2026

Closing Care Gaps in Post‑Stroke Spasticity

 Survivors want spasticity cured, you blithering idiots; not 'cared' for! Don't you have any functioning brain cells that actually work?

Schadenfreude will be a bitch for you when you have a stroke with bad spasticity; knowing you could have solved it while still working,

Closing Care Gaps in Post‑Stroke Spasticity

By Sandra Silvestri, EVP & Chief Medical Officer, Ipsen

At Ipsen, our heritage in neuroscience has always been about more than advancing science – it is about transforming lives. Despite advances in care(NOT RECOVERY!) and numerous initiatives to prevent stroke, cases continue to rise over recent decades.[i] A key challenge we continue to face today is post‑stroke spasticity (PSS), a condition that affects around one in four stroke survivors. Yet despite its prevalence, too many people are left without timely access to care(NOT RECOVERY!). Only a fraction receive support, and even fewer continue with regular follow‑up.

These gaps in care(NOT RECOVERY!) are not inevitable. They are the result of fragmented pathways, inconsistent monitoring, and uneven access to specialist services. Survivors often move between multiple teams — neurology, rehabilitation, community therapy, pain services, and specialist clinics — without a clear point of accountability. This complexity means spasticity can go unnoticed or untreated, leaving patients and caregivers struggling to navigate the system.

At Ipsen, we believe these challenges can be addressed. By embedding structured follow‑up, encouraging multidisciplinary collaboration, and simplifying referral routes, we can help patients move through the pathway more smoothly and access care(NOT RECOVERY!) sooner. Just as importantly, we must see the whole person. Recovery after stroke is shaped not only by physical symptoms but also by mood, motivation, comorbidities, and the daily realities faced by caregivers. Compassionate, practical support — from mood checks and clear information to coordinated appointments that reduce travel and cost — is essential to sustaining engagement.

Our proactive approach is grounded in evidence and collaboration. Through real‑world studies, patient journey mapping, and partnerships across the global neurotoxin community, we are uncovering where care(NOT RECOVERY!) breaks down and designing solutions to close those gaps. This work is already delivering measurable gains: earlier treatment starts, better goal attainment, and renewed confidence for patients and carers.

Above all, we listen. The voices of survivors, families, and clinicians guide our mission. Their lived experiences remind us that recovery is not only about survival, but about life fully lived. As one survivor shared: “I have discovered that I could be strong and overcome difficulties — and give strength to others.”

Ipsen’s commitment to neuroscience is rooted in this belief: that every stroke survivor deserves the chance not only to live, but to thrive. By investing in education, evidence, and collaboration, we are working to ensure that care(NOT RECOVERY!) gaps are closed and that life after stroke is defined by possibility, not limitation.


[i] https://journals.sagepub.com/doi/10.1177/17474930241308142

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