Deans' stroke musings: I’m going home after a stroke

Changing stroke rehab and research worldwide now.Time is Brain! trillions and trillions of neurons that DIE each day because there are NO effective hyperacute therapies besides tPA(only 12% effective). I have 523 posts on hyperacute therapy, enough for researchers to spend decades proving them out. These are my personal ideas and blog on stroke rehabilitation and stroke research. Do not attempt any of these without checking with your medical provider. Unless you join me in agitating, when you need these therapies they won't be there.

What this blog is for:

My blog is not to help survivors recover, it is to have the 10 million yearly stroke survivors light fires underneath their doctors, stroke hospitals and stroke researchers to get stroke solved. 100% recovery. The stroke medical world is completely failing at that goal, they don't even have it as a goal. Shortly after getting out of the hospital and getting NO information on the process or protocols of stroke rehabilitation and recovery I started searching on the internet and found that no other survivor received useful information. This is an attempt to cover all stroke rehabilitation information that should be readily available to survivors so they can talk with informed knowledge to their medical staff. It lays out what needs to be done to get stroke survivors closer to 100% recovery. It's quite disgusting that this information is not available from every stroke association and doctors group.

Saturday, October 22, 2022

I’m going home after a stroke – now what?

Well, since your doctors and therapists have completely failed at getting you 100% recovered and have given you no blueprint to get there post hospital. You are going to have to start researching this recovery all on your own. We have fucking failures of stroke associations so you won't find any useful information there. You're screwed and no one in the stroke medical world cares enough to solve this problem.

I’m going home after a stroke – now what?

Every 45 seconds someone in America has a stroke. Every 45 seconds someone’s life changes unexpectedly.

If you or a loved one has had a stroke, you’re probably familiar with the range of emotions this diagnosis brings and how critical it is to feel supported throughout the recovery process.

“No one is ever truly prepared for these life changes,” says Dr. Demetrius Lopes, neurosurgeon and medical director of Advocate Aurora Health’s Comprehensive Stroke Center. “Those of us dedicated to caring for stroke patients are committed to creating personalized guides to support them through what lies ahead in the smoothest way possible. It’s a new learning experience and we are here to help.”

Post-stroke care, in most cases, requires a combination of medicine, rehab and lifestyle adjustments. Stroke navigators and patient liaisons play a key role in the care of a stroke patient. They chart long-term home-care plans in addition to caring for them during their hospital treatment and rehabilitation.

Stroke patients receive supportive services with scheduling follow-up visits; guidance to organize post-care treatments, diet, and therapy plans; and a listening ear to ask questions about the changes they may be experiencing at home. Stroke navigators also monitor a stroke patient’s overall health, especially heart and vascular conditions, which are important to prevent additional strokes from occurring.

“Stroke patients are unique, and in many cases, on paper, are a success story,” says Lopes. “It is common for patients’ labs and the National Institute of Health’s Stroke Scale to show normal levels, yet patients are experiencing lingering, residual effects like fatigue, deficit episodic vertigo or memory loss – to name a few.”

He encourages everyone to know the signs and symptoms of stroke and remember to BE FAST.

If you or a loved one are worried about risk factors, please take the Stroke Risk Assessment and talk to your medical team about your concerns, family history and preventive measures.