Changing stroke rehab and research worldwide now.Time is Brain! trillions and trillions of neurons that DIE each day because there are NO effective hyperacute therapies besides tPA(only 12% effective). I have 523 posts on hyperacute therapy, enough for researchers to spend decades proving them out. These are my personal ideas and blog on stroke rehabilitation and stroke research. Do not attempt any of these without checking with your medical provider. Unless you join me in agitating, when you need these therapies they won't be there.

What this blog is for:

My blog is not to help survivors recover, it is to have the 10 million yearly stroke survivors light fires underneath their doctors, stroke hospitals and stroke researchers to get stroke solved. 100% recovery. The stroke medical world is completely failing at that goal, they don't even have it as a goal. Shortly after getting out of the hospital and getting NO information on the process or protocols of stroke rehabilitation and recovery I started searching on the internet and found that no other survivor received useful information. This is an attempt to cover all stroke rehabilitation information that should be readily available to survivors so they can talk with informed knowledge to their medical staff. It lays out what needs to be done to get stroke survivors closer to 100% recovery. It's quite disgusting that this information is not available from every stroke association and doctors group.

Tuesday, October 25, 2022

Majority of stroke victims feel needs not being met: survey

 Why the hell do you need a survey? Survivors want 100% recovery. ARE YOU THAT BLITHERINGLY OBLIVIOUS?

Majority of stroke victims feel needs not being met: survey 

More than three quarters of people(NOT 100%?, then you didn't word the survey correctly. The only question needed is; 'Are you 100% recovered? Y/N?) who took part in a survey on services for stroke victims feel their rehabilitation needs are not being met.

Evolution Healing Centre launched the survey earlier this year to better understand the provision of stroke rehabilitation services in Bermuda, with the aim of improving those services.

Kim Watkins, a senior physiotherapist at Evolution, said it will host an educational event on Friday — World Stroke Day — where she will present data from the survey and share information from a panel of healthcare professionals.

There were 56 participants in the survey which ran over an eight-week period and came to an end in September.

Out of them, 79 per cent felt that their needs were not met locally and 21 per cent said they were.

Ms Watkins said the survey will help Evolution to formulate a number of recommendations for the rehabilitation of stroke patients in Bermuda.

“The main aim of the survey was to collect data regarding stroke survivors’ experiences of rehabilitation in Bermuda,” she said.

“We plan to use this data to help us inform what is happening through the stroke pathway and put forth any recommendations that would be useful for survivors and the community.”

Of the 56 participants, 95 per cent live in Bermuda, 52 per cent were male and 48 per cent were female.

Ischemic stroke, which is caused by blood clots, accounted for 39 per cent of stroke types, 14 per cent were haemorrhagic while 30 per cent of respondents did not know the type of stroke they had suffered.

Of the respondents, 26 per cent were seen by a physiotherapist, 20 per cent by a speech and language therapist, and 17 per cent by a physician.

The average time frame for rehabilitation was 11 months but time frames differed dramatically — one participant reported a five-year rehabilitation and others were rehabilitated for a month or less.

Ms Watkins added: “We had excellent responses about the participants’ experience and we are currently completing analysis of the data with thematic analysis with our research team. This data will be released shortly.”

The online survey was available to any stroke survivor who met the eligibility criteria. They included anyone who had had a stroke, received rehabilitation in Bermuda or were eligible for rehabilitation and did not receive services.

Speaking of the World Stroke Day event, Ms Watkins added: “We plan to complete an education event regarding stroke and present more of our data results.

“We invite you to visit us to celebrate your milestones, share your stories and connect with one another. We look forward to meeting you. We will also be releasing some educational videos and information regarding stroke. Stay tuned for more information.”

On hand at the event will be Ms Watkins and fellow senior physiotherapist Sandro Fubler at the Evolution Healing Centre, along with Jill Davidson, occupational therapist, Kimberly McIvor, senior speech and language pathologist, and a senior dietitian from Island Nutrition.

The event on October 28 will be held at Queen Elizabeth Park from the Queen Street entrance and will run from 3pm to 5pm.

Anyone wishing to talk about the survey or the education event can reach out to Evolution Healing Centre on 734-2772 or via e-mail at admin@bpralliance.com.

For more information, see the World Stroke Organisation website www.world-stroke.org/world-stroke-day-campaign

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