Changing stroke rehab and research worldwide now.Time is Brain! trillions and trillions of neurons that DIE each day because there are NO effective hyperacute therapies besides tPA(only 12% effective). I have 523 posts on hyperacute therapy, enough for researchers to spend decades proving them out. These are my personal ideas and blog on stroke rehabilitation and stroke research. Do not attempt any of these without checking with your medical provider. Unless you join me in agitating, when you need these therapies they won't be there.

What this blog is for:

My blog is not to help survivors recover, it is to have the 10 million yearly stroke survivors light fires underneath their doctors, stroke hospitals and stroke researchers to get stroke solved. 100% recovery. The stroke medical world is completely failing at that goal, they don't even have it as a goal. Shortly after getting out of the hospital and getting NO information on the process or protocols of stroke rehabilitation and recovery I started searching on the internet and found that no other survivor received useful information. This is an attempt to cover all stroke rehabilitation information that should be readily available to survivors so they can talk with informed knowledge to their medical staff. It lays out what needs to be done to get stroke survivors closer to 100% recovery. It's quite disgusting that this information is not available from every stroke association and doctors group.

Thursday, April 28, 2022

International Research Priority Setting Exercises in Stroke – Systematic Review

YOU BLITHERING IDIOTS! You don't need to go thru any systematic review, the only goal in stroke is 100% recovery, and since you didn't know that you all need to be fired.  

Oops, I'm not playing by the polite rules of Dale Carnegie,  'How to Win Friends and Influence People'. 

Telling supposedly smart stroke medical persons they know nothing about stroke is a no-no even if it is true. 

Politeness will never solve anything in stroke. Yes, I'm a bomb thrower and proud of it. Someday a stroke 'leader' will try to ream me out for making them look bad by being truthful , I look forward to that day.

International Research Priority Setting Exercises in Stroke – Systematic Review

 

First Published April 14, 2022 Research Article 

Background:Agreeing on priority topics for stroke research can help make best use of limited funding, people and time. Formal priority setting exercises collate stakeholder opinion to reach consensus on the most important research questions. Several stroke research priority setting exercises have been published. Exploring commonalities and differences between these exercises could bring a better understanding of priority research topics.

Aim:We collated and compared published stroke research priority setting exercises across international healthcare systems.

Summary of review:Multidisciplinary, electronic literature databases were searched from 2000 – 2021, using a validated search syntax. Inclusion criteria were:full paper; stroke focus (any subtype); prioritization method described; lists priorities for research. Priorities were extracted, coded and assigned to categories using thematic analysis. The Nine Common Themes of Good Practice (9CTGP) and the Reporting guideline for priority setting of health research (REPRISE) checklists were used to assess methodological and reporting quality respectively.

From 623 titles assessed, fourteen studies were eligible for inclusion, including 2410 participants and describing 165 priorities. The majority of priority setting exercises were conducted in high-income countries (86%, n=12 papers), published between 2011-2021 (64%, n=9), and included views of healthcare professionals (57%, n=8), and stroke survivors (50%, n=7). Care-givers (n=3, 21%) were under-represented. The James Lind Alliance priority setting method was most commonly used (50%, n=7). Priorities were grouped in ten thematic categories. Rehabilitation and follow-up was the most common priority theme (15%, n=25 priorities), followed by psychological recovery (14%, n=23), pathology (14%, n=23) and caregivers and support (14%, n=23). Priorities differed by year and case-mix (stakeholder group and demographics) of respondents. No paper was judged high quality for all aspects of method or reporting. Common limitations were around inclusiveness and evaluation of the exercise.

Conclusions:Stroke research priorities are dynamic and context specific. However, there was a common theme of prioritising research that considered the life after stroke. Future priority setting should consider inclusion of non-industrialised countries and stroke survivors(These should be the first contacted, not as an afterthought, which is another reason to fire you.) with a range of impairments.

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