Changing stroke rehab and research worldwide now.Time is Brain! trillions and trillions of neurons that DIE each day because there are NO effective hyperacute therapies besides tPA(only 12% effective). I have 523 posts on hyperacute therapy, enough for researchers to spend decades proving them out. These are my personal ideas and blog on stroke rehabilitation and stroke research. Do not attempt any of these without checking with your medical provider. Unless you join me in agitating, when you need these therapies they won't be there.

What this blog is for:

My blog is not to help survivors recover, it is to have the 10 million yearly stroke survivors light fires underneath their doctors, stroke hospitals and stroke researchers to get stroke solved. 100% recovery. The stroke medical world is completely failing at that goal, they don't even have it as a goal. Shortly after getting out of the hospital and getting NO information on the process or protocols of stroke rehabilitation and recovery I started searching on the internet and found that no other survivor received useful information. This is an attempt to cover all stroke rehabilitation information that should be readily available to survivors so they can talk with informed knowledge to their medical staff. It lays out what needs to be done to get stroke survivors closer to 100% recovery. It's quite disgusting that this information is not available from every stroke association and doctors group.

Showing posts with label therapy. Show all posts
Showing posts with label therapy. Show all posts

Sunday, March 20, 2022

Why I no longer do any stroke rehab therapy

 The simple answer is life is worth living. I don't have time to do therapy, life intervenes and is much more fun.

My balance is excellent and my right arm/hand is extremely strong so I never feel in danger.

The more complicated reason is that I can do almost anything I want without having my left side working. 

I can easily drive anywhere,anytime, for any length of time, my turn signal extender allows me to signal turns easily and do hi/lo beams. 

I can walk for any length of time, the longest daily walk I did was 17 miles. Yeah the walking is wonky, if I'm walking fast the left leg is swung like a log. 

I can operate a chainsaw, yeah it's battery powered but good enough, I don't trust being able to control my gas one. 

Fishing is possible but requires a closed face reel with the handle on the right side. 

I can canoe or sea kayak, but probably not whitewater or Lake Superior anymore.

The things I can't do are minimal:

1.  Riding a two wheel bike, compensated by getting a recumbent tricycle.

2. Running 

3. Applying sucscreen or mosquito repellent to the good arm, wear long sleeve shirts.

4. Hunting; holding and aiming a long gun or shotgun will never be possible until my spasticity is cured.  I don't miss it, especially now that my dad is dead.

5. Hanging pants on hangers in closet; compensated by buying coat tree.



6. Sex; Missionary style sex just doesn't work anymore, or the Queens's throne, or the Mare, or the Swing(Look up Kama Sutra). Problems:


  1.  Fingers and thumb will not stay flat.

  2. Wrist collapses.

  3. Elbow collapses.

  4. Bicep spasticity pulls everything out of line.

    But compensations do work.

 I would try therapy again if it was a very specific protocol. I will never do guidelines again, they are totally worthless.

Tuesday, January 6, 2015

How to Get Help with Insurance Claims

An article from the StrokeSmart magazine.  But if the NSA was any good at all they would  list all the approved therapies for stroke so survivors could just point to them and our insurers would approve the payments. But no, that would be too much like work.
http://www.strokesmart.org/new?id=299

Friday, March 14, 2014

Optimising the content and dose of rehabilitation in the first 12 months following stroke

Have your doctor compare  these ideas to what you are getting. Are they even close?
http://www.dl.begellhouse.com/journals/757fcb0219d89390,forthcoming,10518.html
Harry McNaughton
Medical Research Institute of New Zealand
Stephanie Thompson
University of Otago
Cathy Stinear
University of Auckland
Matire Harwood
University of Otago
Kathryn McPherson
AUT University

ABSTRACT

Rehabilitation following stroke has the potential to make a very significant and lasting impact on outcomes for the person with stroke. The knowledge base that would allow informed decisions about content, location and dose of the rehabilitation intervention is incomplete. Some high quality evidence does exist, including important studies from New Zealand, or with New Zealand input into international studies. This article focusses attention on what rehabilitation clinicians can do now, based on current evidence, to optimise the content and dose of rehabilitation in the first year after acute stroke, particularly in the community phase of rehabilitation. Promoting self-directed rehabilitation may offer the greatest potential for change at little cost.

Wednesday, March 12, 2014

Is a Permanent Repeal of the Therapy Cap on the Horizon? NSA focus

My God, they can't even get their focus on the correct areas. You prevent the neuronal cascade of death and there will be much less disability to have to recover. Current survivors are screwed because the stroke medical world does not know how to consistently repeat chronic recovery.
Everyone in the stroke medical world should be fired and we should start over with graduate students, they at least can be trainable.
http://www.stroke.org/site/PageServer?pagename=san_newsletter_2014_03#Article1

Friday, January 17, 2014

Flee from zombies and giant boulders with the Race Yourself fitness app for Google Glass

This would be great for making our rehabilitation harder and getting more repetitions in. Hell I'd probably learn how to run again by using this, even if they caught me numerous times.
http://thenextweb.com/apps/2014/01/08/flee-zombies-giant-boulders-race-fitness-app-google-glass/#!sthRA
Fitness apps seem like a perfect fit for Google Glass, given that the head-mounted computer is devoid of wires and requires a minimal amount of input from your digits.
Race Yourself is a promising piece of Glassware that, using augmented reality, gives you an avatar to compete against in the real world. Over 30 game modes will have you racing against yourself, a giant Indiana Jones-style boulder and even hordes of zombies.
The app will also support multiple activities, so you can cycle against the Peloton in the Tour de France or skydive through virtual rings in the sky.
7853758_orig

Wednesday, January 9, 2013

Efficacy and tolerance of a neurological restoration program in stroke patients

Ask your clinic if they are going to make changes based on this. Will the Joint Commission push changes out as a result? Sounds somewhat similar to the program that Sen. Kirk was pushed through.
http://search.naric.com/research/rehab/redesign_record.cfm?search=2&type=all&criteria=J64752&phrase=no&rec=119903
NARIC Accession Number: J64752.  What's this?
ISSN: 1053-8135.
Author(s): Rodriguez-Mutuberria, Livan; Alvarez-Gonzalez, Lazaro; Lopez, Maikel; Busto, Juan E. B.; Fernandez-Martinez, Elizabeth; Martinez-Segon, Susana; Bergado, Jorge A..
Publication Year: 2011.
Number of Pages: 11.
Abstract: Study evaluated the tolerance and efficacy of a program for neurological restoration (PRN) in stroke patients. The PRN was conduced in 4-week cycles (39 hours per week); applied by a team of physical, occupational, and speech therapists, physiatrists, psychologists, clinicians and nurses; and directed by a neurologist. The first phase of treatment aims to increase the physical capacity and tolerance to exercise. The second phase trains specific abilities (balance, posture, gait and handling). Drugs were only used to modulate physical or mood disorders, spasticity, or pain. Data were obtained from 53 patients who performed one treatment cycle (4 weeks) and 27 who continued for a second cycle (8 weeks of treatment). The patients’ neurological condition was evaluated using the Scandinavian Stroke Scale, and the functional condition using the Barthel Index. Tolerance was evaluated using the criteria of adverse events occurring during treatment. The results showed significant improvements in both the neurological (113.45 percent) and functional (130.11 percent) conditions after one treatment cycle, which improved further when therapy continued for a second cycle (233.71 percent and 207.62 percent, respectively). Severity of the impairment was not a negative predictor of the outcome. Age correlated negatively with the initial condition, but did not prevent improvement. Tolerance to treatment was very good, with only 4 adverse events not related to treatment. These results demonstrate that the PRN is well tolerated and effective promoting recovery even in chronic stroke patients.
Descriptor Terms: EXERCISE, INTERDISCIPLINARY ACTIVITIES, NEUROLOGICAL DISORDERS, OUTCOMES, PROGRAM EVALUATION, REHABILITATION SERVICES, STROKE, THERAPEUTIC TRAINING.

Thursday, January 3, 2013

The Responsiveness of the Emory Functional Ambulation Profile in Rehabilitation of Ambulant Stroke Survivors

This is so true. We have no idea of the effectiveness of any stroke therapy. 

The Responsiveness of the Emory Functional Ambulation Profile in Rehabilitation of Ambulant Stroke Survivors


Abstract


Background: The Emory Functional Ambulation Profile (EFAP) was designed to measure functional ambulation in post-stroke survivors. Its' ability to detect the effectiveness of any physical therapy protocol has been sparsely investigated.

Objectives: This study aimed to determine the ability of the EFAP to detecting patients' response to a physical therapy protocol in stroke rehabilitation.

Methods: The pretest-posttest experimental design was used for this study. Seventeen consecutive stroke survivors who met the inclusion criteria were recruited into the study. Participants received a conservative physical therapy protocol twice weekly for 8 weeks. Performance on individual subtasks of the EFAP were measured and recorded for each participant before and at the end of the study. Data was available at the posttest for only 14 participants (mean age = 57.00 9.05 years; average poststroke period = 19.71  26.56 months) and this was analyzed using frequency and percentages with inferential statistics of paired t-test at .05 alpha level.

Results: Participants scores for all the EFAP subtasks and overall scores improved (reduced task completion time) at the end of the treatment programme. Responsiveness for the EFAP ranged from 3% to 21% for all subtasks. Changes were even significant for three [floor carpet, up and go] out of the 5 subtasks and the total EFAP scores (p<.05)

Conclusion: EFAP was able to detect the response of stroke survivors to the physical therapy protocol used in this study and is therefore recommended for use by clinicians and researchers for measuring treatment outcome.

Friday, November 9, 2012

Effects of robot-assisted therapy on stroke rehabilitation in upper limbs: Systematic review an meta-analysis of the literature

You will have to ask your therapist what robot-assisted therapy is available to you. 
http://www.naric.com/research/rehab/record.cfm?search=2&type=all&criteria=J64259&phrase=no&rec=119368
 Abstract: Study systematically reviewed and analyzed the literature regarding the effectiveness of robot-assisted therapy (RT) versus conventional therapy (CT) in improving motor recovery and functional abilities of the paretic upper limb of people with stroke. Eleven scientific databases were searched to find randomized controlled trials (RCTs) that employed robotic devices in upper-limb rehabilitation of people with stroke. Out of 574 studies, 12 matching the selection criteria were found. The Fugl-Meyer, Functional Independence Measure, Motor Power Scale, and Motor Status Scale outcome measures from the selected RCTs were pooled together, and the corresponding effect sizes were estimated. Results revealed that when the duration/intensity of CT is matched with that of the RT, no difference exists between the intensive CT and RT groups in terms of motor recovery, activities of daily living, strength, and motor control. However, depending on the stage of recovery, extra sessions of RT in addition to regular CT are more beneficial than regular CT alone in motor recovery of the hemiparetic shoulder and elbow of patients with stroke; gains are similar to those that have been observed in intensive CT.

Thursday, November 1, 2012

Custom-made rehab helps victims of stroke

This is where I am incredibly  disappointed that there seems to be no general understanding of a stroke protocol that can be adjusted to each person.  A couple of the interesting links are not available.
http://www.stltoday.com/lifestyles/health-med-fit/custom-made-rehab-helps-victims-of-stroke/article_06eb5759-3291-5730-930f-725c0d436450.html

Monday, August 13, 2012

Climbing as post-stroke therapy

I could just see the mountains of lawyer release papers to get your therapists to take you to a climbing wall. And then you would have to be extremely high functional both prior to and after the stroke. I would suggest that these persons would recover well regardless of the therapy supplied. And the only way to prove that would be to get a detailed scan of their damage- dead brain and penumbra. I would bet that this therapist uses this as a warmup for his climbing exploits more than for the suggested stroke rehab usefulness. And when you peel off the wall you can tear your plaque due to the sudden stop at the end.
http://www.mb.com.ph/articles/369526/climbing-poststroke-therapy
  The grips and footholds of climbing can help patients recover more quickly from a stroke in which one side of the body has suffered paralysis.
Therapy based on climbing may also help multiple sclerosis sufferers retain control over their muscles, as climbing demands coordination of movement and concentration, Ute Repschlaeger of the association of German physiotherapists says.
Studies have provided evidence of positive effects, and neurologists believe that the exercises stimulate the brain to activate dormant cells and replace diseased cells. This kind of therapeutic climbing has little in common with the sport. The point is not to climb as high as possible, but to do the grips and footholds at a low level.


Friday, August 3, 2012

The right treatment is necessary to overcome a stroke

I wish I knew who was feeding this reporter this information because that person seems to know more than anyone else in the world.
http://www.whptv.com/news/local/story/The-right-treatment-is-necessary-to-overcome-a/nmS02wzwBEWt17rF8tG9tQ.cspx
a stroke can be detrimental to your health and can have lasting affects if you don't get the right treatment.  So what is the right treatment?

Thursday, August 2, 2012

Study Compares Therapist-Based and Robot-Assisted Bilateral Arm Training After Stroke

Work with your PT to come up with a home program. I would love to see exactly what this means.
http://www.ptproductsonline.com/news/2012-08-02_01.asp
Bilateral arm training (BAT) has been widely studied, however, the comparative effects of therapist-based BAT (TBAT) and robot-assisted BAT (RBAT) are unknown. Researchers in Taiwan performed a study to compare the efficacy of TBAT, RBAT, and a control treatment (CT) on motor control, functional performance, and quality of life after a chronic stroke. The results were published in the August 2012 issue of Physical Therapy.
Ching-yi Wu, ScD, OTR, from the department of occupational therapy and graduate institute of behavioral sciences at Chang Gung University, Taoyuan, Taiwan, led the study of 42 patients with an average age of 54.49 years and an average length of 17.62 months since the onset of stroke. The patients were randomly assigned to TBAT, RBAT, and CT groups, with each group receiving treatment for 90 minutes to 105 minutes per session. There were five sessions, held on weekdays for 4 weeks. Outcome measures for the study included kinematic analyses, the Fugl-Meyer Assessment (FMA), the Motor Activity Log, and the Stroke Impact Scale (SIS).
According to the results, large and significant effects were found in the kinematic variables, the distal part of upper-limb motor impairment, and certain aspects of quality of life in favor of TBAT or RBAT. The researchers found that the TBAT group demonstrated significantly better temporal efficiency and smoothness, straighter trunk motion, and less trunk compensation. The RBAT group reportedly had increased shoulder flexion. Furthermore, on the FMA, the TBAT group showed higher distal part scores than the CT group and, on the SIS, the RBAT group had better strength subscale, physical function domain, and total scores than the CT group.
The researchers conclude that, compared with CT, TBAT and RBAT exhibited differential effects on outcome measures. TBAT may improve temporal efficiency, smoothness, trunk control, and motor impairment of the distal upper limb, while RBAT may improve shoulder flexion and quality of life. The authors note that this study recruited patients with mild spasticity and without cognitive impairments.

Sunday, July 29, 2012

Master Any Skill in 10,000 Hours?

I know this was meant as tongue in cheek, but we have to look at this as a blueprint for our recovery. Then there is Peter Levines specific number, How many repetitions? ' A lot'. You can read about talent vs. work in these two books. Talent does not exist until the work/practice is put in.
The talent code : greatness isn't born. It's grown. Here's how / Daniel Coyle.
Talent is overrated Colvin, Geoffrey.
They essentially say that innate talent doesn't exist, it is all just focused practice, just like our massed practice therapy.
For you math geeks.
6 hours, 6 days a week. 36 hours a week. 1872 hours a year. A little over 5 1/3 years to complete 10000 hours.
Just think of how many different tasks we need to practice. And we get maybe 3 months of therapy.
 http://www.youtube.com/watch?v=dbkQFFCwL2g&feature=relmfu

Before I can even attempt my 10000 hours I have to move functions to a different part of my brain. No estimate on how long that will take. Or any medical help on how to do that.

Friday, July 27, 2012

Stroke rehab - swinging a bat

Another useless piece of therapy I do. On the handle end of the bat I can't grip my fingers close enough to solidly grab it.  I think thats because I have spasticity in my finger extensors. Somebody in the world has to know why.  If I work  my way  up the fatter part of the bat about halfway up  I can solidly grip it.  The various points of this therapy are
Balance, planting and spinning on my affected left foot,
Core strength,  strengthen my abs,etc.
Rotation, ability to rotate the upper and lower halves of my body separately.
Straightening my left arm, trying to get my bicep to relax.
Finger strength,
Don't even think of doing something like this without your therapists' help.  Think of all the wrecked furniture in your house and the extreme risk of falls.
Use a wood bat, not plastic. I may have to  get bat weights to make it even more difficult.

Saturday, July 14, 2012

Stroke rehab - ice cream

And its even a valid therapy, at least according to me. Its been hot here and I wanted an ice cream treat at home, so I saw Ben & Jerry pints while shopping and impulsively bought several. After getting home I thought some more about it and realized I should have gotten ice cream sandwiches like last time. Recovery is buying normal food and figuring out how to use it, the ice cream sandwiches were compensating(bad idea). But therapy called and I responded. First problem to solve is to get the left hand open enough to grasp the pint, good thing there was a cover and it was still fairly hard. Finally succeeded even though the thumb position was bad. But the cold was great sensation therapy, sending a great amount of cold signals to my sensory cortex. Or in my case, trying to recreate the white matter pathways that underlie the sensory cortex. Then comes the grasping tightly enough to scoop out the ice cream.  Success!!!
Cherry Garcia was great and I still have a full pint of  Peanut Butter World. Thousands of repetitions of this could put on some serious weight. I'll still do it.

 Do not self prescribe this type of therapy without your doctors ok. You know damn well how much I think of stroke doctors.

Saturday, July 7, 2012

Thursday, June 28, 2012

Stroke Rehab: 2 Sides Better Than 1

I wonder if this is being taught in therapist classes? Who is going to translate this into an actual therapy protocol that do-it-yourself patients can follow?
http://www.thirdage.com/health-wellness/stroke-rehab-2-sides-better-than-1
Although strokes typically affect only one side of the body, rehabilitation appears to work best when both sides of the body are engaged. A study done by Ken Takitama of the University of Tokyo and Masato Okada of the RIKEN Brain Science Institute in Wako, Japan, found that the two-sided approach was especially important in getting functioning back in a weakened arm and hand. Recovery of movement in the upper limb usually lags behind that of the leg and foot.
The authors wrote that their study "suggests that bimanual movement facilitates the reorganization of a damaged motor cortex because this movement induces rotations in the preferred directions (PDs) of motor cortex neurons . . . Although previous computational studies investigated the unimanual movements of stroke patients, individuals often move their arms bimanually. Bimanual movement is effective for the recovery of paretic [partially paralyzed] arm movement . . . Rotations of the encoding PDs facilitate cortical reorganization."
Also important to note, several other studies have shown that, as with any motor skill, practice makes perfect when it comes to stroke rehabilitation. Patients who diligently repeat therapeutic movements tend to recover more movement than those who are not as hard-working.

Saturday, June 9, 2012

Games for Stroke rehabilitation

While this is a worthwhile study this person should have realized that therapy after the fact needs to be avoided at all costs. The therapy works poorly and needs to be avoided. One of the main ways to do that is to prevent the neuronal cascade of death. Then the focus could be on neurogenesis and stem cells to replace the dead area.
Doesn't anyone think through what needs to completely change for stroke rehab?
 http://www.cs.auckland.ac.nz/compsci705s1c/exams/SeminarReports/Final%20Report%20epen234.pdf
Full 4 pages at the link.
ABSTRACT
Strokes are a leading cause of death and disability and have been described as a “worldwide epidemic” [5]. Strokes cause disability, partial paralysis and leave up to 85% of their victims with some form of motor impairment. Stroke rehabilitation starts as soon as possible and involves repetitive movement which people find repetitive and boring. A study [1] has found that as few as 31% of people complete their exercises as recommended. Adding to this the high cost of one on one therapy and transport to see specialists, stroke rehabilitation is a major problem. Games have been trialed for stroke rehabilitation to increase patient motivation and reduce costs. This literature review aims to find out to what extent games have therapeutic value and further, what characteristics make a good game for stroke rehabilitation. We find that in order for a game to be successful it must be based on solid therapeutic principles as well as game design principles including “challenge” and “meaningful feedback”. Different hardware and software can be used as long as it follows game design principles to encourage patients to perform therapeutic exercises. Games must also take into account the low morale of recent stroke victims and avoid discouraging beginners.

Saturday, May 26, 2012