Changing stroke rehab and research worldwide now.Time is Brain! trillions and trillions of neurons that DIE each day because there are NO effective hyperacute therapies besides tPA(only 12% effective). I have 523 posts on hyperacute therapy, enough for researchers to spend decades proving them out. These are my personal ideas and blog on stroke rehabilitation and stroke research. Do not attempt any of these without checking with your medical provider. Unless you join me in agitating, when you need these therapies they won't be there.

What this blog is for:

My blog is not to help survivors recover, it is to have the 10 million yearly stroke survivors light fires underneath their doctors, stroke hospitals and stroke researchers to get stroke solved. 100% recovery. The stroke medical world is completely failing at that goal, they don't even have it as a goal. Shortly after getting out of the hospital and getting NO information on the process or protocols of stroke rehabilitation and recovery I started searching on the internet and found that no other survivor received useful information. This is an attempt to cover all stroke rehabilitation information that should be readily available to survivors so they can talk with informed knowledge to their medical staff. It lays out what needs to be done to get stroke survivors closer to 100% recovery. It's quite disgusting that this information is not available from every stroke association and doctors group.

Monday, March 24, 2014

Coping with life after a stroke - Fatigue

I really disagree with the blaming the victim for the fatigue in this article/research. Damn it, do your job and find a solution to post-stroke fatigue.
http://health.india.com/news/coping-with-life-after-a-stroke/
New research suggests that dreams of returning to everyday life as it was before the stroke may contribute to the patients’ experiences of fatigue and that it may be a help to establish new routines instead of trying to regain old ones. ‘Having a stroke can be a devastating experience, and those affected by one often feel that their lives are turned upside down. For many patients, life after a stroke is therefore about reestablishing life as it was before the stroke. But this is very rarely possible and thus a source of frustration for stroke patients,’ ethnologist Michael Andersen from University of Copenhagen, said.
Andersen’s PhD thesis was carried out in collaboration with a Danish hospital, where doctors found it hard to find a correlation between the size or the impact of the stroke and the individual experiences of fatigue. He located other potential reasons for the fatigue than the patients’ brains – their everyday lives. When interviewing the patients Andersen noticed that they no longer related their fatigue to the same objects or actions as they did pre-stroke. (Read: Blood pressure medications not beneficial after stroke)
‘In our everyday lives we link fatigue with specific objects or actions which we hardly even notice; it can be a bed or making a cup of tea in the evening. After a stroke, many patients feel constantly fatigued without being able to locate it,’ Andersen said. According to him, locating fatigue in other objects and actions than before can be a successful approach when trying to restore an everyday life – not the same as before, but a completely new one. (Read: Coming soon – A treatment to rehabilitate stroke patients?)
Andersen suggests that stroke patients might learn to cope with their fatigue 
(BULLSHIT, solve the damned problem)
 if they – in collaboration with their own doctor – learned to think of fatigue in relation to specific objects or actions. This could frame the patients’ fatigue so it does not become a phenomenon defining their lives. (What a f#cking copout)

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