Changing stroke rehab and research worldwide now.Time is Brain! trillions and trillions of neurons that DIE each day because there are NO effective hyperacute therapies besides tPA(only 12% effective). I have 523 posts on hyperacute therapy, enough for researchers to spend decades proving them out. These are my personal ideas and blog on stroke rehabilitation and stroke research. Do not attempt any of these without checking with your medical provider. Unless you join me in agitating, when you need these therapies they won't be there.

What this blog is for:

My blog is not to help survivors recover, it is to have the 10 million yearly stroke survivors light fires underneath their doctors, stroke hospitals and stroke researchers to get stroke solved. 100% recovery. The stroke medical world is completely failing at that goal, they don't even have it as a goal. Shortly after getting out of the hospital and getting NO information on the process or protocols of stroke rehabilitation and recovery I started searching on the internet and found that no other survivor received useful information. This is an attempt to cover all stroke rehabilitation information that should be readily available to survivors so they can talk with informed knowledge to their medical staff. It lays out what needs to be done to get stroke survivors closer to 100% recovery. It's quite disgusting that this information is not available from every stroke association and doctors group.

Showing posts with label volunteers. Show all posts
Showing posts with label volunteers. Show all posts

Friday, June 6, 2025

Call for volunteers to help stroke charity

 If your fucking failure of a stroke association is calling for volunteers it means they are a complete failure in getting 100% recovery protocols created! You need to disband that and put survivors in charge.

Call for volunteers to help stroke charity

THE Stroke Association is calling for new volunteers in Dumfries and Galloway to come forward to help provide support to stroke survivors and their loved ones, as they navigate life after stroke.

The latest statistics across the region show 325 people had a stroke in 2023, with admissions across both Dumfries and Galloway Royal Infirmary and Galloway Community Hospital.

The Stroke Association is particularly keen to hear from people who have had a stroke, or have supported someone who has, and want to use their experience to help others.

There are currently two Stroke Association volunteers in Dumfries and Galloway but the ambition is to recruit more to work in partnership with the health board to support stroke survivors and their families in appropriate settings.

One is Sheryl Herring, from Dumfries.

She was an energetic mother of two, working full time in health and social care, when her husband, Bruce, had a massive stroke aged 49.

He was hospitalised for 11 months and emerged wheelchair bound and suffering from severe bouts of depression.

Sheryl became her husband’s full-time carer, which changed the family’s entire dynamic and financial situation, and she started to feel the pressure. She had a breakdown and found the friends she used to rely on peeled away.

Sheryl says it was a constant battle to get Bruce the help he needed, so she started to research what support was available and discovered the Stroke Association and Dumfries & Galloway Carers Centre.

Sheryl is now a volunteer for the Stroke Association and a highly valued part of the stroke community locally.

She visits the stroke ward at the infirmary every Monday to tell patients and families about Stroke Association support and what is available in the local area.

Every two weeks she visits Lochmaben Community Rehabilitation Unit to help patients further into their recovery.

Sheryl has recently started a peer support group, which happens on the first Thursday of every month in the Cluden Unit at Mountainhall Treatment Centre in Dumfries.

She said: “It was a revelation to find people going through what I’d been through, and I get a lot of support from Stroke Association ‘Community Connectors’ whose job it is to signpost stroke survivors and their families to the services and support the charity provides.

“I feel my experience puts me in a very good position to provide a sympathetic ear and reassure people they are not alone.”

Saturday, May 31, 2025

Stroke Association calls for Ayrshire and Arran volunteers

 We have a fucking failures of stroke association acknowledging their failure to 100% recovery but not telling us they are going to solve the problem! Just punt the problem onto volunteers. My god, what insufferable incompetence and arrogance at the same time!

Stroke Association calls for Ayrshire and Arran volunteers

   A CHARITY is calling for volunteers to support stroke survivors in Ayrshire and Arran.

The Stroke Association wants volunteers to help people affected by the condition at NHS Ayrshire and Arran.

Anyone wishing to volunteer with the organisation can contact the charity’s engagement team in Scotland at engagementteamscotland@stroke.org.uk or visit stroke.org.uk.

The plea for assistance comes after it was recorded that 873 people had a stroke in the region in 2023.

The charity estimates that 60 per cent of those will be left with some form of disability, and three-quarters are likely to experience mental health issues.(So complete failure for these persons!)

John Watson, associate director for the Stroke Association in Scotland, said: "The number of people having strokes in Scotland is anticipated to rise in the coming years.

"That’s why we are taking steps to increase our support in the NHS Ayrshire and Arran area." 

Monday, April 13, 2020

Volunteers as members of the stroke rehabilitation team: a qualitative case study.

You wouldn't want me as a volunteer, telling the truth that your doctor knows nothing about stroke rehab and you are completely on your own. If you had EXACT PROTOCOLS then you wouldn't need volunteers to tell survivors what the future looks like. But you have fucking guidelines instead which are pretty much useless causing vast amounts of stress, anxiety and depression.

Volunteers as members of the stroke rehabilitation team: a qualitative case study.

BMJ Open. 2020 Apr 09;10(4):e032473
Authors: Nelson MLA, Thombs R, Yi J
Abstract
OBJECTIVES: Clinicians are facing increasing demands on their time, exacerbated by fiscal constraints and increasing patient complexity. Volunteers are an essential part of the many healthcare systems, and are one resource to support improved patient experience and a mechanism through which to address unmet needs. Hospitals rely on volunteers for a variety of tasks and services, but there are varying perceptions about volunteers’ place within the healthcare team. This study aimed to understand the role of volunteers in stroke rehabilitation, as well as the barriers to volunteer engagement.
DESIGN: A qualitative case study was conducted to understand the engagement of volunteers in stroke rehabilitation services within a complex rehabilitation and continuing care hospital in Ontario, Canada.
PARTICIPANTS: 28 clinicians, 10 hospital administrators and 22 volunteers participated in concurrent focus groups and interviews. Organisational documents pertaining to volunteer management were retrieved and analysed.
RESULTS: While there was support for volunteer engagement, with a wide range of potential activities for volunteers, several barriers to volunteer engagement were identified. These barriers relate to paid workforce/unionisation, patient safety and confidentiality, volunteer attendance and lack of collaboration between clinical and volunteer resource departments.
CONCLUSIONS: An interprofessional approach, specifically emphasising and addressing issues related to key role clarity, may mediate these barriers. Clarity regarding the role of volunteers in hospital settings could support workforce planning and administration.
PMID: 32276952 [PubMed – as supplied by publisher]