Use the labels in the right column to find what you want. Or you can go thru them one by one, there are only 34,347 posts. Searching is done in the search box in upper left corner. I blog on anything to do with stroke. DO NOT DO ANYTHING SUGGESTED HERE AS I AM NOT MEDICALLY TRAINED, YOUR DOCTOR IS, LISTEN TO THEM. BUT I BET THEY DON'T KNOW HOW TO GET YOU 100% RECOVERED. I DON'T EITHER BUT HAVE PLENTY OF QUESTIONS FOR YOUR DOCTOR TO ANSWER.
What this blog is for:
My blog is not to help survivors recover, it is to have the 10 million yearly stroke survivors light fires underneath their doctors, stroke hospitals and stroke researchers to get stroke solved. 100% recovery. The stroke medical world is completely failing at that goal, they don't even have it as a goal. Shortly after getting out of the hospital and getting NO information on the process or protocols of stroke rehabilitation and recovery I started searching on the internet and found that no other survivor received useful information. This is an attempt to cover all stroke rehabilitation information that should be readily available to survivors so they can talk with informed knowledge to their medical staff. It lays out what needs to be done to get stroke survivors closer to 100% recovery. It's quite disgusting that this information is not available from every stroke association and doctors group.
Tuesday, April 8, 2025
Bruker Online Neuroscience Summit 2025: Innovations in Brain Research
Like maybe this one:
Wednesday, May 31, 2023
Stroke Recovery Strategies June 16 webinar by Anysia Ensslen-Boggs, Ed.D., M.S., CCC-SLP
Looking at the objectives and outline there is nothing on recovery protocols to use, so in my opinion, worthless.
Stroke Recovery Strategies June 16 webinar by Anysia Ensslen-Boggs, Ed.D., M.S., CCC-SLP
- Learning Objectives
- Identify various etiologies of cognitive deficits as they relate to the neuroanatomy of strokes.
- Define principles of experience-dependent neuroplasticity and its impact on rehabilitation.
- Select appropriate screenings and assessments to informally and formally evaluate cognitive deficits.
- Explain how various cognitive impairments impact the patient's ability to meet transdisciplinary treatment objectives.
- Implement treatment techniques for orientation, short-term memory, safety awareness, and executive functioning forfunctional improvement of ADL's across all therapydisciplines.
- Compose measurable goals that allow for documentation of patient outcomes.
- The Current Landscape of Cognitive Deficits
- Stroke as etiology
- Neuroanatomy
- Orientation and awareness
- Attention
- Memory
- High-level cognitive deficits associated with right CVA
- Assessment of Cognitive Deficits Following Stroke
- SLUMS
- MoCA
- Other standardized assessments and screening tools
- Criterion-referenced assessments
- Setting functional treatment objectives
- Leveraging Neuroplasticity for Stroke Recovery
- What is neuroplasticity?
- 10 principles of experience-dependent neuroplasticity
- Neuroplasticity and evidence-based practice
- Application to levels of assistance and cueing hierarchy
- Intervention Strategies to Improve ADLs
- Treatment techniques for improving functional cognition
- Utilizing neuroplasticity to achieve functional treatment objectives
- Improving completion of ADLs by improving cognition
- Executive functioning and application to patient safety and independence
- Examples of cognitive interventions
- Effectively Communicating Across a Multidisciplinary Team
- Targeting cognitive goals in PT and OT
- Co-treating/interdisciplinary treatment plans
- Family/caregiver/staff education
- Discharge plans: Is this patient safe at home?
- Accurate Documentation Tips and Tricks
- Goal-writing
- Patient outcomes
- Justifying medical necessity
- ICD-10 and Medicare guidelines
- Case Studies
- Review of case studies in small interdisciplinary groups
- Application of knowledge
- Discussion
- Case Study
Saturday, February 13, 2021
Life after stroke webinar series 2021: Shining a spotlight on life after stroke
Another proof that the tyranny of low expectations infects all of stroke. If you got survivors 100% recovered you wouldn't have to do this kind of stuff at all. Please work yourself out of a job like the Michael J. Fox Foundation is trying to do. Since your hospitals have to do this it means they are a complete failure in getting survivors recovered.
Or is this the problem?
Life after stroke webinar series 2021: Shining a spotlight on life after stroke
Register now for the webinar series https://bit.ly/3cXlJFR
There are nine million people living with stroke in Europe.
The pandemic has worsened the stroke burden and the number of stroke survivors is predicted to increase due to an ageing population. Life after stroke care and support is even more important than ever and must be a priority for health and social care across Europe.
The life after stroke series of free interactive events is an opportunity to build the life after stroke healthcare, research and patient community, stimulate debate and ultimately improve life after stroke care and build interest for our 1st European Life After Stroke Forum on 11 March 2022.
Life after stroke: priorities, challenges and ways forward?
In our opening session on Friday 12 March 09.00-10.30 GMT, our aim is to highlight key issues affecting stroke survivors in the longer-term after stroke and share examples of good practice and what ‘good’ long-term support looks like in a post-pandemic context.
We will hear updates from Bo Norrving (Sweden)(former president of the WSO, I could see nothing that he accomplished for survivors.), Juliet Bouverie (UK), Liam Healy (Ireland) and Caterina Pistarini (Italy) on people’s experiences of the impact of stroke before and during the pandemic, and how healthcare and support services have adapted to meet the challenges of post-pandemic stroke care.
We will learn about new and creative ways of offering support such as using telemedicine and telerehabilitation and remote methods of looking after stroke survivors.
This interactive session is for anyone with an interest in stroke support and care including clinicians, stroke survivors and carers as well as stroke support organisations across the globe.
Participation and registration is free.
Register now for the webinar series https://bit.ly/3cXlJFR
#LifeAfterStroke
We hope to see you then!
SAFE team
Friday, April 7, 2017
But that’s the way we’ve always done it! Changing organizational culture in medical R&D
http://www.fastercures.org/events/webinars/show/but-thats-the-way-weve-always-done-it-changing-organizational-culture-in-medical-r-and-d
Speakers include:
- Riley Ennis, Co-Founder and Chief Operating Officer, Freenome
- Richard Hamermesh, Senior Fellow, Harvard Business School
- Lyric Jorgenson, Deputy Director, Office of Science Policy, National Institutes of Health
- Margaret Anderson, Executive Director, FasterCures, a center of the Milken Institute (moderator)
Summary
Culture change is more likely to occur if you treat it as a response to opportunity, not a response to failure. That seemingly simple but wise observation from Lyric Jorgenson, deputy director of the Office of Science Policy at the National Institutes of Health, captured the tone of a fascinating Webinar discussion titled “But That’s the Way We’ve Always Done It! Changing Organizational Culture in Medical R&D.” Jorgenson, Harvard Business School Senior Fellow Richard Hamermesh, and Freenome Co-founder and Entrepreneur Riley Ennis brought very different perspectives to the topic. But they agreed that opportunities created by advances in science and technology require change to “the way we’ve always done things” to maximize their potential. This change in scientific research could accelerate progress where decades of talking about the problems have failed.Since our earliest days, FasterCures has been focused on the ways the culture of medical research can slow progress. We heard from the patient-driven venture philanthropies that became The Research Acceleration and Innovation Network their frustration that “culture eats strategy for breakfast” – or in this case, scientific progress. They saw lack of communication and collaboration and misaligned incentives as being significant drags on progress, as much as the state of the science, and they set out to do what they could as funders to address those cultural issues. “Change starts with small, visible successes that are built on quickly,” Hamermesh noted, and cited venture philanthropies like the Cystic Fibrosis Foundation and the Multiple Myeloma Research Foundation as organizations that have done exactly that.
Start small and build on success. Identify opportunities that can drive culture change. What else do we know about how change happens? Jorgenson cited her experience as deputy director of Vice President Joe Biden’s Cancer Moonshot saying, “A push from the masses plus a pull from a champion,” someone who will challenge people’s assertions about the way we’ve always done things and hold partners accountable, is key. She also acknowledged that a crisis can spark culture change, as happened with HIV/AIDS, but ideally is managed by strong leadership that can allay people’s concerns about the consequences.
Ennis cited how data drive change – and in an era in which we are inundated with data, that is certainly an opportunity. Ennis emphasized the need to have a certain amount of humility, understand why things are done the way they are, and respect the needs of your partners. But “the system needs to be more open-minded and data-driven,” said Ennis. He encouraged the biomedical R&D ecosystem to learn lessons from the technology sector about using real-time feedback loops to improve the quality of data and reduce iteration cycles. He also mentioned that “failure” can catalyze growth – for individuals, for organizations, and for science. This was echoed by Jorgenson when she appealed for a rethinking of how clinical trials can be shifted to a more adaptive, flexible system where we can fail fast and move on. Ennis also raised the utility of data technologies, like artificial intelligence and machine learning, in changing the rules of the game.
What elements of the biomedical R&D culture need to have the levers of change applied to accelerate progress? Several themes emerged across the speakers’ comments:
- More sharing of data. The opportunity of precision medicine is upon us, said Hamermesh. But without large, broadly available datasets to drive insights, it will fail to become reality. “Let’s not have data hoarding,” he pleaded. Ennis advocated for centralizing data for queries. We may be swimming in data, but if we can’t aggregate, access, and analyze them, they don’t matter.
- Greater diversity of experiences and perspectives. Hamermesh invoked the power of crowdsourcing to bring fresh expertise and ideas to solving biomedical research questions, asserting that “change will come from outside the system.” Jorgenson talked about the need to empower non-traditional partnerships and multi-disciplinary teams in order to crack the complexities of biology today. Additionally, we should give researchers training opportunities that expose them to other ways of thinking.
- A person-centered approach. All speakers talked about the ways in which a focus on the individual patient and person will disrupt the way we do things. Hamermesh believes that when people understand their own health data, and share them with open datasets for research, a revolution will occur – a view that Jorgenson shared. Precision medicine is, of course, a person-centered endeavor. Ennis talked about the importance of removing complexity by focusing on the things people care about – making their data actionable and giving them real-time feedback that informs their choices impacting their health. Patient-reported outcomes are a critical feedback loop to improve data quality, in Ennis’s view.
- Jorgenson hit on the need for institutions to reward researchers for data quality and methodological rigor with citations and recognition that build their careers. Data that are not of high quality, not shared, or not reproducible are not of high value to the enterprise.
- Individuals need to be incentivized and enabled to acquire, understand, and share their health data. Hamermesh cited lessons to be learned from direct-to-consumer businesses like Rent the Runway and Uber about engaging with and adding value for consumers.
Monday, January 2, 2017
Live webinar - Virtual Rehabilitation – How Feedback and Motivation Influence Neurological Therapy Outcome
My 31 ideas on hyperacute therapy I'm going to insist my doctor give me during the first week.
Or these needing a lot more research:
These 177 hyperacute therapies that need more research.
I've got 6 posts on Dr. John Krakauer already, he has some great ideas, virtual dolphins, calls stroke rehab medieval.
Live webinar - Virtual Rehabilitation – How Feedback and Motivation Influence Neurological Therapy Outcome
Live-Webinar on February 8, 2017,
09:00 a.m. Baltimore (US) / 3:00 p.m. Berlin (GER) / 10:00 p.m. Hong Kong (CN)
VR Rehabilitation Therapist and Researcher, Military Rehabilitation Center, Doorn, NL
Wednesday, April 6, 2016
Webinar: 25 Must-Know Facts to Harness Neuroplasticity & Technology For Better Brain Health
I most certainly will not be attending, it is just going to be generalities. Notice that there are no references to protocols or results.
Webinar: 25 Must-Know Facts to Harness Neuroplasticity & Technology For Better Brain Health
Available online from anywhere with an Internet connection, this webinar will provide participants with the must-know foundation to understand both the value and the limitations of emerging science and technologies, empowering you to make sound decisions and enhance brain health and function.
When: Thursday, April 21st, 2016. 10:30am-noon US Pacific Time/ 1.30-3pm US Eastern Time.
With those 25 Must-Know Facts we will zoom into the most significant (and often overlooked) areas in the brain fitness jigsaw puzzle you can see above. We won't discuss generalities, we will discuss specifics about:
- How the brain works, and what neuroplasticity is
- What new scientific findings mean (and what they don't mean)
- Key guidelines for aerobic exercise, nutrition, mental stimulation, stress management, socialization
- The do's and don'ts in leveraging technology for meditation, reframing, bio/ neurofeedback, cognitive training
- How to self-monitor, find individual priorities, prioritize options
Monday, October 12, 2015
Studies to Slow or Stop Parkinson's Disease
|
||||||
|
||||||
|
||||||
|

