Changing stroke rehab and research worldwide now.Time is Brain! trillions and trillions of neurons that DIE each day because there are NO effective hyperacute therapies besides tPA(only 12% effective). I have 523 posts on hyperacute therapy, enough for researchers to spend decades proving them out. These are my personal ideas and blog on stroke rehabilitation and stroke research. Do not attempt any of these without checking with your medical provider. Unless you join me in agitating, when you need these therapies they won't be there.

What this blog is for:

My blog is not to help survivors recover, it is to have the 10 million yearly stroke survivors light fires underneath their doctors, stroke hospitals and stroke researchers to get stroke solved. 100% recovery. The stroke medical world is completely failing at that goal, they don't even have it as a goal. Shortly after getting out of the hospital and getting NO information on the process or protocols of stroke rehabilitation and recovery I started searching on the internet and found that no other survivor received useful information. This is an attempt to cover all stroke rehabilitation information that should be readily available to survivors so they can talk with informed knowledge to their medical staff. It lays out what needs to be done to get stroke survivors closer to 100% recovery. It's quite disgusting that this information is not available from every stroke association and doctors group.

Saturday, March 18, 2023

Agreed definitions and a shared vision for new standards in stroke recovery research: The Stroke Recovery and Rehabilitation Roundtable taskforce.

You'll notice in the seven pages here there is NOTHING ON 100% RECOVERY!

 The complete stroke medical world is a total fucking failure! At least survivors in charge would have a vision for 100% recovery; not this crapola! And yes these are all famous stroke researchers but they are not solving stroke at all!


Oops, I'm not playing by the polite rules of Dale Carnegie;  'How to Win Friends and Influence People'. 

Telling supposedly smart stroke medical persons they know nothing about stroke is a no-no even if it is true. 

Politeness will never solve anything in stroke. Yes, I'm a bomb thrower and proud of it. Someday a stroke 'leader' will try to ream me out for making them look bad by being truthful, I look forward to that day. 

 The latest invalid chest thumping here:

 Agreed definitions and a shared vision for new standards in stroke recovery research: The Stroke Recovery and Rehabilitation Roundtable taskforce.

Julie Bernhardt, PhD1,2
, Kathryn S. Hayward, PhD1,2,3
, Gert Kwakkel, PhD4,5
,
Nick S. Ward, MD 6,7
, Steven L. Wolf, PhD8,9
, Karen Borschmann, PhD1,2
,
John W. Krakauer, MD 10
, Lara A. Boyd, PhD3,11
, S. Thomas Carmichael, MD,
PhD 12
, Dale Corbett, PhD13,14
, and Steven C. Cramer, MD15

Abstract

The first Stroke Recovery and Rehabilitation Roundtable established a game changing set of new standards for stroke recovery research. Common language and definitions were required to develop an agreed framework spanning the four working groups: translation of basic science, biomarkers of stroke recovery, measurement in clinical trials and intervention development and reporting. This paper outlines the working definitions established by our group and an agreed vision for accelerating progress in stroke recovery research.

Introduction

The first Stroke Recovery and Rehabilitation Roundtable (SRRR) was convened with the aim to move rehabilitation research(WRONG, WRONG, WRONG! Survivors want recovery research!)
forward. Working collectively across four initial priority areas, we reviewed, discussed, and attempted to achieve consensus on key recommendations in each of the biomarkers of stroke measurement in clinical trials4 and intervention development and reporting.5 Agreed definitions were a priority. Definitions within stroke recovery research are particularly complex given both the extended time window over which research, clinical interventions and recovery take place; and the multi-disciplinary, multi-faceted nature of the field. This paper outlines the working definitions established by our group that underpinned the scope and methodologies of each of the four groups. Agreed priority areas for accelerating progress in stroke recovery research are highlighted as a way forward for the field. These were developed following comprehensive discussions at the first SRRR roundtable meeting convened in Philadelphia, 2016. A major point of agreement of the SRRR expert group was to focus on progress of stroke recovery research in the next decade and beyond. ‘Rehabilitation’ as a blanket term for all therapy-based interventions post-stroke was considered problematic, vague and an impediment to progress. Rehabilitation reflects a process of care, while recovery well as activities, have returned to their pre-stroke state. With that, the term ‘recovery’ can be represented in two ways: (1) the change (mostly improvement) of a given outcome that is achieved by an individual between two (or more) timepoints, or (2) the mechanism underlying this improvement in terms of behavioural restitution or compensation strategies.6,7 We used the definition of rehabilitation developed by the British Society of Rehabilitation Medicine,8 “a process of active change by which a person who has become disabled acquires the knowledge and skills needed for optimum physical, psychological and social function.” Stroke rehabilitation is most often delivered by a multidisciplinary team, defined by the World Health Organisation(WHO)9 to encompass the coordinated of intervention(s) provided by two or more disciplines in conjunction with medical professionals. This team aims to improve patient symptoms and maximise functional independence and participation (social integration) using a holistic biopsychosocial model, as defined by the International Classification of Functioning Disability (ICF).9
Posted by at
Labels: , , , , , ,

No comments:

Post a Comment

Subscribe to: Post Comments (Atom)