The complete stroke medical world is a total fucking failure! At least survivors in charge would have a vision for 100% recovery; not this crapola! And yes these are all famous stroke researchers but they are not solving stroke at all!
The International Stroke Recovery and Rehabilitation Alliance
- et al.
Published:April, 2023DOI:https://doi.org/10.1016/S1474-4422(23)00072-8
The global burden of disability after stroke is increasing
despite therapeutic advances. One in four adults will have a stroke and
about 63% of these events will occur in people younger than 70 years of
age. Increasing access to effective rehabilitation(Survivors want effective recovery! Not just access to ineffective rehab!) is a global health
priority,
particularly in low-income and middle-income countries. Optimising
recovery requires both new, biologically informed treatment approaches
and enhanced (high-dose and high-quality) delivery of training-based
treatments. Patient-centred research priority setting exercises can
highlight knowledge gaps.
Advances have been difficult to achieve because stroke recovery and
rehabilitation practice is complex, with multiple interacting domains
(eg, motor, language, and cognitive), disability levels (impairment,
activity, and participation), and individuals involved (eg, patient,
family members, and multidisciplinary team). Our shared vision is a
world where global collaboration brings breakthroughs for people living
with stroke. Succeeding will require highly coordinated research efforts
by international, interdisciplinary teams.
The Stroke Recovery and Rehabilitation Roundtable,
created in 2016, built consensus and aligned efforts for improvements
in research and practice. Our approach identified priority areas and led
to the creation of international, interdisciplinary, expert task forces
that—together with junior faculty—worked to identify consensus
objectives. Our first recommendations were reported in a position paper
and we have continued to provide expert guidance on research methods,
research targets, and clinical practice. The need to transition from
being a recommendation group to being an action group for stroke
recovery and rehabilitation became clear and, in 2020, we endorsed the International Stroke Recovery and Rehabilitation Alliance (ISRRA).
The
greatest impact on the burden of disability after stroke will come
through building research partnerships that include people with lived
experience of stroke.(I see no examples of this.) Our aim is to establish topic-specific, strategic
working groups, overseen by our Scientific Committee. Diverse in scope,
the aims of current groups include building the economic case for
rehabilitation and creating criteria for Centres of Clinical Excellence.
Task forces on exercise and frailty are recent additions. Building
impactful research projects both in high-income countries and in
low-income and middle-income countries is a top priority. Our approach
creates a dynamic Alliance that will focus on achieving our vision.
Our
membership includes a full array of clinicians and researchers with an
interest in recovery after stroke, from acute stroke physicians to basic
scientists, from 36 countries. ISRRA is open to all, and our work has
just begun.
We thank the many
individuals who have contributed to the work of past Stroke Recovery and
Rehabilitation Roundtables and to the building of the strategy and work
plans for the Alliance to date. Our work is sponsored by the National
Health and Medical Research Council (NHMRC; Australia) Centre of
Research Excellence in Stroke Rehabilitation and Brain Recovery (APP
1077898), the Canadian Partnership for Stroke Recovery, NHMRC
(Australia) Centre of Research Excellence in Stroke Trials (APP
2015705), Moleac, and Ipsen.
References
- 1.Burden of stroke in Europe: thirty-year projections of incidence, prevalence, deaths, and disability-adjusted life years.Stroke. 2020; 51: 2418-2427
- 2.The World Health Organization “Rehabilitation 2030: a call for action”.Eur J Phys Rehabil Med. 2017; 53: 155-168
- 3.International research priority setting exercises in stroke: a systematic review.Int J Stroke. 2023; 18: 133-143
- 4.Agreed definitions and a shared vision for new standards in stroke recovery research: The Stroke Recovery and Rehabilitation Roundtable taskforce.Int J Stroke. 2017; 12: 444-450
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