Changing stroke rehab and research worldwide now.Time is Brain! trillions and trillions of neurons that DIE each day because there are NO effective hyperacute therapies besides tPA(only 12% effective). I have 523 posts on hyperacute therapy, enough for researchers to spend decades proving them out. These are my personal ideas and blog on stroke rehabilitation and stroke research. Do not attempt any of these without checking with your medical provider. Unless you join me in agitating, when you need these therapies they won't be there.

What this blog is for:

My blog is not to help survivors recover, it is to have the 10 million yearly stroke survivors light fires underneath their doctors, stroke hospitals and stroke researchers to get stroke solved. 100% recovery. The stroke medical world is completely failing at that goal, they don't even have it as a goal. Shortly after getting out of the hospital and getting NO information on the process or protocols of stroke rehabilitation and recovery I started searching on the internet and found that no other survivor received useful information. This is an attempt to cover all stroke rehabilitation information that should be readily available to survivors so they can talk with informed knowledge to their medical staff. It lays out what needs to be done to get stroke survivors closer to 100% recovery. It's quite disgusting that this information is not available from every stroke association and doctors group.

Thursday, February 1, 2024

Scottish researchers helped develop key WHO guidelines on rehab

 NO, NO, NO! survivors don't want useless guidelines, they want EXACT 100% RECOVERY PROTOCOLS! Why are you doing such shitworthy work on stroke? Survivors don't want recovery guidelines that do not deliver that! Are you that fucking stupid?

Scottish researchers helped develop key WHO guidelines on rehab

Researchers from a university in Scotland were among the contributors to recent World Health Organization (WHO) guidelines outlining the most essential interventions in rehabilitation for 20 health conditions — including Parkinson’s disease — with high prevalence and elevated levels of associated disability.

The WHO’s “Package of Interventions for Rehabilitation” aims to help nations across the globe by providing information on the core components, equipment, assistive products, and workforce needs necessary to support top-shelf, evidence-based rehab interventions for patients across seven disease areas.

A team from Glasgow Caledonian University aided in the development of these WHO guidelines, which are designed to help countries’ Ministries of Health plan, budget for, integrate, and establish rehabilitation services in their health systems. The seven disease areas, each of which has a module, include musculoskeletal conditions, neurological conditions, cardiopulmonary conditions, neurodevelopmental disorders, sensory conditions, malignant neoplasm, and mental health conditions.

In addition, the package helps to inform the development of curricula and training materials to be used by rehabilitation personnel. Finally, it seeks to help investigators identify research gaps that need addressing.

“With the launch of these WHO rehabilitation packages, we hope to see a global movement towards the development and implementation of rehabilitation services for people who have experienced a stroke, Parkinson’s disease and other conditions, leading to national rehabilitation strategies, policies and guidelines [with] greater investment in rehabilitation services,” Alexandra Rauch, PhD, the rehabilitation program’s project lead at Glasgow Caledonian, said in a university press release.

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Parkinson’s disease is included in the neurological conditions module of these WHO guidelines — along with stroke, traumatic brain injury, spinal cord injury, cerebral palsy, and dementia.

The 192-page package on neurological conditions includes a Parkinson’s section that covers the role of rehabilitation, target populations, the various functioning assessments and interventions, and assessment of caregiver and family needs. It also includes interventions for the prevention and treatment of secondary conditions related to Parkinson’s, and an overview of the resources required for rehab in the disease.

Research published by Marian Brady, PhD, a professor of stroke care(NOT recovery!) and rehabilitation at Glasgow Caledonian, and senior research fellow Pauline Campbell, PhD, of the School of Health and Life Sciences’ Research Centre for Health, contributed to the package’s development.

Brady also was appointed to the WHO package development group that included multidisciplinary rehab experts from across 16 countries, including Brazil, Canada, Estonia, Italy, India, Japan, Nigeria, Saudi Arabia, and the U.S.

“As a member of the development group, we reviewed the available evidence to support the wide range of multidisciplinary rehabilitation interventions for people with Parkinson’s,” Brady said.

“The research evidence and clinical experience informed discussions, voting and decision-making as to whether the rehabilitation components were essential to the delivery of a rehabilitation service and what workforce, equipment and products would be required to deliver that intervention,” Brady added.

It has been wonderful to see that our research on stroke and Parkinson’s disease has underpinned the development of these important rehabilitation templates which will support the development and implementation of the latest evidence-based rehabilitation services for people with communication problems associated with stroke and Parkinson’s.

Along with Campbell, Brady now is updating the Cochrane review of Parkinson’s treatment. The U.K.-based Cochrane gathers and summarizes scientific research to help people make informed health decisions.

Brady recently led the Scottish recruitment for participants in a National Institute for Health and Care Research-funded trial evaluating rehabilitation interventions for patients with Parkinson’s-associated speech problems. Such disorders affect as many as 90% of patients. Collectively called hypokinetic dysarthria, these conditions include hoarseness, low speech volume, pronunciation difficulties, monotone pitch, and variable speech speed.

“It has been wonderful to see that our research on stroke and Parkinson’s disease has underpinned the development of these important rehabilitation templates which will support the development and implementation of the latest evidence-based rehabilitation services for people with communication problems associated with stroke and Parkinson’s,” Brady said.

“Our research highlighted effective approaches to rehabilitation interventions, dosage, and delivery for people with these acquired neurological disorders which will provide Ministries of Health with the information needed to put in place rehabilitation services for people that develop these neurological conditions globally,” Brady added.

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