Deans' stroke musings: Center of the Brain Funding

Changing stroke rehab and research worldwide now.Time is Brain! trillions and trillions of neurons that DIE each day because there are NO effective hyperacute therapies besides tPA(only 12% effective). I have 523 posts on hyperacute therapy, enough for researchers to spend decades proving them out. These are my personal ideas and blog on stroke rehabilitation and stroke research. Do not attempt any of these without checking with your medical provider. Unless you join me in agitating, when you need these therapies they won't be there.

What this blog is for:

My blog is not to help survivors recover, it is to have the 10 million yearly stroke survivors light fires underneath their doctors, stroke hospitals and stroke researchers to get stroke solved. 100% recovery. The stroke medical world is completely failing at that goal, they don't even have it as a goal. Shortly after getting out of the hospital and getting NO information on the process or protocols of stroke rehabilitation and recovery I started searching on the internet and found that no other survivor received useful information. This is an attempt to cover all stroke rehabilitation information that should be readily available to survivors so they can talk with informed knowledge to their medical staff. It lays out what needs to be done to get stroke survivors closer to 100% recovery. It's quite disgusting that this information is not available from every stroke association and doctors group.

Sunday, June 30, 2013

Center of the Brain Funding

I have biases here because I have had several discussions with Billy on this.
Its gotta be better than the existing stroke organizations out there that are just PR producing.
I will have to disagree that the NSA is an excellent organization, I look toward Michael J. Fox Foundation , Myelin Repair and the Alzheimers Association as examples to emulate.
This has been tried before, Walter Steinhoff of formerly this forum
http://strokesurvivorsandcaregivers.ning.com/ tried and couldn't make a go of it.
Probably very similar to the
ARNI INSTITUTE in the UK

http://www.gofundme.com/brain

What is Center of the Brain (COTB) seeking?

~ To create a 501(c)3 not-for-profit organization for the rehabilitation of severely injured people (including those with Strokes and Traumatic Brain Injuries)

~ To generate authentically "disruptive" research in order to expedite the diagnosis of severe brain injuries, and to develop & deploy that research.

~ With San Diego as the initial hub for treatment and research, we intend to build a facility which will serve as a worldwide destination for COTB.

~ Why TCOB? Aren't many excellent organizations and networks available? Indeed they are, as these examples demonstrate. For sheer neurological data, http://www.neuinfo.org. TBI, http://www.brainline.org. Stroke, http://www.stroke.org. Et al. Each of these organizations is focused on a different aspect of brain injury (family participation, political change, medication, etc.):

***We are developing a riveting focus on immediate help for the person having the severe brain injury including timely, evidence-based rehabilitation, ongoing healing, and access to the latest research. If and when the person's insurance has expired, our intent is to provide care at no-charge.***

We already have a superb group of MDs, Rehabiltation Therapists, Economists & Financiers, Business Executives, Filmmakers, Musicians and others who have said they will be on our Advisory Team.

What we are now doing is simply asking those who want to be involved, however little or large, to donate whatever amount they choose. $10, $100, $250, or other. Your donation can be public or private. See: http://www.gofundme.com/brain

If you want to know more, you can email, skype or call me:

William "Billy" N. Ethridge

billy.ethridge@gmail.com

Skype: billy.ethridge

Call: 760-632-1820

San Diego, CA, USA