Changing stroke rehab and research worldwide now.Time is Brain! trillions and trillions of neurons that DIE each day because there are NO effective hyperacute therapies besides tPA(only 12% effective). I have 523 posts on hyperacute therapy, enough for researchers to spend decades proving them out. These are my personal ideas and blog on stroke rehabilitation and stroke research. Do not attempt any of these without checking with your medical provider. Unless you join me in agitating, when you need these therapies they won't be there.

What this blog is for:

My blog is not to help survivors recover, it is to have the 10 million yearly stroke survivors light fires underneath their doctors, stroke hospitals and stroke researchers to get stroke solved. 100% recovery. The stroke medical world is completely failing at that goal, they don't even have it as a goal. Shortly after getting out of the hospital and getting NO information on the process or protocols of stroke rehabilitation and recovery I started searching on the internet and found that no other survivor received useful information. This is an attempt to cover all stroke rehabilitation information that should be readily available to survivors so they can talk with informed knowledge to their medical staff. It lays out what needs to be done to get stroke survivors closer to 100% recovery. It's quite disgusting that this information is not available from every stroke association and doctors group.

Monday, February 15, 2021

Involving stroke survivors in research relating to life after stroke: methods and impact of involvement

But it is obvious that stroke survivors know nothing that could help stroke research. Survivors are not asked to present at any stroke conference.

I'm even less than a laboratory rat as Amy Farber puts it, not a single stroke person has ever contacted me. This just proves once again what Amy Farber has to say. For the past five years Farber has been battling not only her own disease but also the wall of resistance erected by those who believe that a patient can make about as much of a meaningful contribution to the process of scientific discovery as a laboratory rat.

Involving stroke survivors in research relating to life after stroke: methods and impact of involvement


School of Health and Life Sciences

Dr Bridget Davis , Dr A Pollock Monday, February 22, 2021 Competition Funded PhD Project (Students Worldwide)
Glasgow United Kingdom Neurology Neuroscience

About the Project

Reference: SHLS20063

This PhD project will co-produce, implement and evaluate a model for engagement of stroke survivors in research relating to life after stroke.

It is now widely accepted(Really! Where the hell did you get that idea?) that the active involvement of people with a healthcare condition, their families, friends and carers, is beneficial to the quality, relevance and impact of health research. Accordingly, many funding bodies now mandate that researchers actively involve patients and the public in their research. However, there is a lack of consensus about best ways to involve people, and how to capture the impact of involvement. Involvement of people in research is a rapidly evolving area, with active developments in fields such as research co-production and citizen science.

Stroke is the most common cause of severe disability in the world. Research relating to stroke is a priority, and consequently involving stroke survivors in research is important. However, people with stroke often have a wide range of impairments and disabilities, including aphasia, visual impairment, cognitive and mobility problems, which can create barriers to participation. There are therefore many challenges to ensuring effective involvement of stroke survivors in research relating to life after stroke, and questions about the best ways to do this.

This PhD aims to:

1) Explore:

- the ways in which stroke survivors have been involved in research relating to life after stroke, and the reporting and impact of this

- stroke survivors’ experiences of involvement in research, including barriers and facilitators

- models of involvement in research, including PPI, co-production and citizen science

- stroke survivors’ views on different models of involvement

2) Co-produce, implement and evaluate key aspects of a strategy for engagement of stroke survivors in research

Candidates are requested to submit a more detailed proposal (of a maximum of 2000 words) on the project area as part of the application.

How to Apply

This project is available as a 3 years full-time or 6 years part-time PhD study programme with expected start date of 1 October 2021

Candidates are encouraged to contact the research supervisors for the project before applying. 

For full-time study of this project, apply here

For part-time study of this project, apply here

Applicants shortlisted for the PhD project will be contacted for an interview within four weeks from the closing date.

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