Changing stroke rehab and research worldwide now.Time is Brain! trillions and trillions of neurons that DIE each day because there are NO effective hyperacute therapies besides tPA(only 12% effective). I have 523 posts on hyperacute therapy, enough for researchers to spend decades proving them out. These are my personal ideas and blog on stroke rehabilitation and stroke research. Do not attempt any of these without checking with your medical provider. Unless you join me in agitating, when you need these therapies they won't be there.

What this blog is for:

My blog is not to help survivors recover, it is to have the 10 million yearly stroke survivors light fires underneath their doctors, stroke hospitals and stroke researchers to get stroke solved. 100% recovery. The stroke medical world is completely failing at that goal, they don't even have it as a goal. Shortly after getting out of the hospital and getting NO information on the process or protocols of stroke rehabilitation and recovery I started searching on the internet and found that no other survivor received useful information. This is an attempt to cover all stroke rehabilitation information that should be readily available to survivors so they can talk with informed knowledge to their medical staff. It lays out what needs to be done to get stroke survivors closer to 100% recovery. It's quite disgusting that this information is not available from every stroke association and doctors group.

Friday, July 14, 2017

Stroke Recovery and Rehabilitation Roundtable (SRRR)

But without survivor input they are flailing in the dark for what survivors really want. Nothing here sounds like a strategy to get all to 100% recovery. Just generalized crapola statements.
http://journals.sagepub.com/page/wso/srrr
Last year for the first time, a group of the world’s top neurorecovery researchers met at the first Stroke Recovery and Rehabilitation Roundtable to build consensus on how to develop, conduct and report stroke research on the key priority areas of: pre-clinical recovery research, biomarkers of recovery, Intervention development, monitoring and reporting and measurement in clinical trials. 
These recommendations from this timely and much needed roundtable are pivotal for the progression and growth of a unified vision for stroke recovery and rehabilitation research and will provide an impetus for the development of strong international partnerships to tackle this important global challenge to improve stroke recovery.   
A new series of papers relating to this roundtable can be found below:
Moving rehabilitation research forward: Developing consensus statements for rehabilitation and recovery research
Agreed definitions and a shared vision for new standards in stroke recovery research: The Stroke Recovery and Rehabilitation Roundtable taskforce
Biomarkers of stroke recovery: Consensus-based core recommendations from the Stroke Recovery and Rehabilitation Roundtable (SRRR)
Improving the development, monitoring and reporting of stroke rehabilitation research: consensus-based core recommendations from the Stroke Recovery and Rehabilitation Roundtable (SRRR)
Enhancing the alignment of the preclinical and clinical stroke recovery research pipeline: Consensus-based core recommendations from the Stroke Recovery and Rehabilitation Roundtable (SRRR) translational working group
Standardised measurement of sensorimotor recovery in stroke trials: consensus-based core recommendations from the Stroke Recovery and Rehabilitation Roundtable (SRRR)
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