Changing stroke rehab and research worldwide now.Time is Brain! trillions and trillions of neurons that DIE each day because there are NO effective hyperacute therapies besides tPA(only 12% effective). I have 523 posts on hyperacute therapy, enough for researchers to spend decades proving them out. These are my personal ideas and blog on stroke rehabilitation and stroke research. Do not attempt any of these without checking with your medical provider. Unless you join me in agitating, when you need these therapies they won't be there.

What this blog is for:

My blog is not to help survivors recover, it is to have the 10 million yearly stroke survivors light fires underneath their doctors, stroke hospitals and stroke researchers to get stroke solved. 100% recovery. The stroke medical world is completely failing at that goal, they don't even have it as a goal. Shortly after getting out of the hospital and getting NO information on the process or protocols of stroke rehabilitation and recovery I started searching on the internet and found that no other survivor received useful information. This is an attempt to cover all stroke rehabilitation information that should be readily available to survivors so they can talk with informed knowledge to their medical staff. It lays out what needs to be done to get stroke survivors closer to 100% recovery. It's quite disgusting that this information is not available from every stroke association and doctors group.

Monday, May 9, 2022

If 2% of a population takes coordinated action, it makes a difference. If 5% do, it can change everything.

 A quote from Seth Godin's latest post. So with 10 million yearly stroke survivors

, that is only 200-500 thousand people needing to speak truth to their doctors and hospitals. THAT STROKE REHAB IS A COMPLETE FUCKING FAILURE.  AND THEY ARE DOING NOTHING TO SOLVE IT! With friends and relatives(10 per survivor)we only need 20,000 survivors to speak up.   You need to shout it from the rooftops. The stroke medical world is to fossilized to move. If you didn't get 100% recovered your treatment was a failure and no amount of dissembling by your doctor changes that. If they use the excuse; 'All strokes are different, all stroke recoveries are different'. You need to scream in their faces; 'Don't try to excuse your incompetency by such a glib statement'.

I'm obviously a complete failure, not a single stroke medical person has ever contacted me.  What am I doing wrong?  So it it up to you to initiate the change because if you don't your children and grandchildren will bear the brunt of the stroke medical worlds failures.

The ones who didn’t help

If 2% of a population takes coordinated action, it makes a difference. If 5% do, it can change everything.

This simple math also means that most people rarely do anything. Perhaps they don’t care. Perhaps they’re afraid to speak up and commit. And perhaps it’s simply easier to go along for a free ride.

Of course it hurts when friends and colleagues we thought we could count on shirk and hide. But everyone has their own narrative, their own issues, their own fears. We can say, “if I were you,” but we’re not them, they are.

When we focus on the ones who didn’t help, we’re undermining our work. It’s a distraction and a disservice.

Shun the non-believers. Ignore the well-meaning but unmoved. Instead, we have the chance to find and connect and celebrate the people who care enough to make a difference.

Toward better.

 

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