'Understanding' DOES NOTHING TO PREVENT FATIGUE! Survivors want it prevented, you blithering idiots, not 'understood'! My god, the absolute stupidity in stroke is out of this world!
Here's how long you have been incompetent in not getting fatigue solved!
- post stroke fatigue
(57 posts to January 2018)
At
least half of all stroke survivors experience fatigue Known since March 2017
Or is it 70%? Known since March 2015
Or is it 40%? Known since September 2017
The latest here:
New Webinar: Understanding Post-Stroke Fatigue
A large number of stroke survivors live with post-stroke fatigue, a challenging and often misunderstood effect of stroke that can impact daily life in many ways. Unlike ordinary tiredness, this kind of fatigue doesn’t simply disappear after rest. It happens because the brain is working harder to reroute messages and compensate for injured areas, using up energy much faster than before. For many people, it can feel unpredictable, frustrating and, at times, overwhelming — especially because it’s invisible to others. To help shine a light on this important topic, we’re hosting our first webinar of 2026, bringing together a panel of four stroke survivors who will share their personal experiences of living with fatigue. They’ll talk openly about what can trigger it, how it affects their lives, and the practical ways they manage it day to day(Survivors don't want it 'managed'! They want it CURED! Can't you get that thru your thick skulls?
You've had over a decade to work on that, what the hell have you accomplished?). As there are currently no specific medications or treatments for post-stroke fatigue, learning self-management strategies — and hearing what works for others — can be incredibly valuable.
Date: Wednesday 25 March
Time: 11:30am
Where: Online via Zoom
This supportive, informative session is free to attend and open to all. If fatigue is part of your stroke journey, or you want to better understand someone who lives with it, we’d love you to join us.Why attend? This session is a chance to hear real voices, real stories and real strategies. You’ll gain insight into how different fatigue can feel from person to person, and why finding your own approach is so important. Whether you’re a stroke survivor, family member, carer or professional, the discussion will offer understanding, reassurance and practical ideas.The webinar features four inspiring speakers who each bring unique perspectives: Lynne Cameron ;– Had her first stroke 7½ years ago while gardening and experienced another last year. Fatigue has remained one of her biggest ongoing hurdles.
Andy Wilson – Had a stroke aged 46 while wild camping after completing a half marathon and cycle ride. He later retired from the Police Force and is finishing a PhD, learning to adapt to fatigue along the way.
Karl Davis – Experienced two strokes at 39 caused by a PFO and was medically retired from his role as a Traffic Police Officer. He now volunteers extensively but still lives with significant fatigue years later.
Maggie Doar – Had a major brain haemorrhage in 2020 requiring emergency surgery and months in hospital. She has since explored fatigue management strategies and believes understanding your own limits is key. As always, you’re invited to submit questions before the webinar and during the live session. We’ll answer as many as possible, making sure the discussion reflects what matters most to our community.
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