Changing stroke rehab and research worldwide now.Time is Brain! trillions and trillions of neurons that DIE each day because there are NO effective hyperacute therapies besides tPA(only 12% effective). I have 523 posts on hyperacute therapy, enough for researchers to spend decades proving them out. These are my personal ideas and blog on stroke rehabilitation and stroke research. Do not attempt any of these without checking with your medical provider. Unless you join me in agitating, when you need these therapies they won't be there.

What this blog is for:

My blog is not to help survivors recover, it is to have the 10 million yearly stroke survivors light fires underneath their doctors, stroke hospitals and stroke researchers to get stroke solved. 100% recovery. The stroke medical world is completely failing at that goal, they don't even have it as a goal. Shortly after getting out of the hospital and getting NO information on the process or protocols of stroke rehabilitation and recovery I started searching on the internet and found that no other survivor received useful information. This is an attempt to cover all stroke rehabilitation information that should be readily available to survivors so they can talk with informed knowledge to their medical staff. It lays out what needs to be done to get stroke survivors closer to 100% recovery. It's quite disgusting that this information is not available from every stroke association and doctors group.

Wednesday, May 13, 2020

Perfect world of stroke rehab - recovery plan

From a conversation with another survivor points out the current situation.
Not good.

Lead, Follow, or GET OUT OF THE WAY!


Doesn't this just about sum up our feelings about the role doctors and therapists should play?

The one thing that pisses me off more than any other is this.  The identification and implementation of a recovery plan is apparently NOT the responsibility of doctors or therapists.  Isn't it ironic that they still maintain that proprietary attitude when a patient appears to be trespassing into what they perceive as their realm.  They manage to dismiss our ideas while effectively providing none of their own.

I once brought in an article on hand recovery using the Saeboflex. My doctor totally dismissed it, I don't think he had even thought or researched it at all. He was just never going to listen to a patient's ideas. I was so fucking mad I left him and went to a different doctor telling him the only reason I was using him was to get the Saeboflex even though my extension was not enough to meet the criteria for use. I really hated the Saeboflex, the bead chains for adjusting the tension are almost impossible to adjust one-handed and just getting it on was an extreme challenge. When I complained to Saeboflex their excuse was that the unit was supposed to be used with a therapists help. In my opinion, bad design since all stroke rehab implements should be able to be put on solo one handed with no outside interventions. 



Perfect World!!!

With decent scientific therapy protocols this could be resolved.  
This is the 100% recovery plan.

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