Deans' stroke musings: String of Pearls Institute (PSI) - Netherlands, Stroke research consortium.

Changing stroke rehab and research worldwide now.Time is Brain! trillions and trillions of neurons that DIE each day because there are NO effective hyperacute therapies besides tPA(only 12% effective). I have 523 posts on hyperacute therapy, enough for researchers to spend decades proving them out. These are my personal ideas and blog on stroke rehabilitation and stroke research. Do not attempt any of these without checking with your medical provider. Unless you join me in agitating, when you need these therapies they won't be there.

What this blog is for:

My blog is not to help survivors recover, it is to have the 10 million yearly stroke survivors light fires underneath their doctors, stroke hospitals and stroke researchers to get stroke solved. 100% recovery. The stroke medical world is completely failing at that goal, they don't even have it as a goal. Shortly after getting out of the hospital and getting NO information on the process or protocols of stroke rehabilitation and recovery I started searching on the internet and found that no other survivor received useful information. This is an attempt to cover all stroke rehabilitation information that should be readily available to survivors so they can talk with informed knowledge to their medical staff. It lays out what needs to be done to get stroke survivors closer to 100% recovery. It's quite disgusting that this information is not available from every stroke association and doctors group.

Thursday, January 18, 2018

String of Pearls Institute (PSI) - Netherlands, Stroke research consortium.

Stroke research consortium. Seems to be the only one in the world that Faster Cures knows about
http://consortiapedia.fastercures.org/consortia/psi/

At a Glance

Status: Active Consortium
Year Launched: 2007
Initiating Organization: Netherlands
Initiator Type: Government
Disease focus:
Cerebrovascular Accident (Strokes), Diabetes Mellitus, Hereditary Colorectal Cancer, Inflammatory Bowel Diseases (Crohn's Disease And Ulcerative Coli, Leukaemia, Neurodegenerative Diseases
Location: Europe

Abstract

The String of Pearls Institute is a joint project of the eight university medical centers (UMCs, teaching hospitals) in the Netherlands. It concerns a prospective, disease-specific biobank in which anonymous patients’ characteristics are documented and followed over a long period. These data are coupled to a biobank containing patients’ biomaterials such as intestinal mucosa, feces, deoxyribonucleic acid (DNA), and serum. In case of approved scientific studies — and after approved protocol — additional samples and materials may be harvested.