Deans' stroke musings: Email to Mr. Camps of Kaiser Permanente

Changing stroke rehab and research worldwide now.Time is Brain! trillions and trillions of neurons that DIE each day because there are NO effective hyperacute therapies besides tPA(only 12% effective). I have 523 posts on hyperacute therapy, enough for researchers to spend decades proving them out. These are my personal ideas and blog on stroke rehabilitation and stroke research. Do not attempt any of these without checking with your medical provider. Unless you join me in agitating, when you need these therapies they won't be there.

What this blog is for:

My blog is not to help survivors recover, it is to have the 10 million yearly stroke survivors light fires underneath their doctors, stroke hospitals and stroke researchers to get stroke solved. 100% recovery. The stroke medical world is completely failing at that goal, they don't even have it as a goal. Shortly after getting out of the hospital and getting NO information on the process or protocols of stroke rehabilitation and recovery I started searching on the internet and found that no other survivor received useful information. This is an attempt to cover all stroke rehabilitation information that should be readily available to survivors so they can talk with informed knowledge to their medical staff. It lays out what needs to be done to get stroke survivors closer to 100% recovery. It's quite disgusting that this information is not available from every stroke association and doctors group.

Tuesday, November 19, 2013

Email to Mr. Camps of Kaiser Permanente

Replies, if any will be published

Mr. Camps,

If the Right Care Initiative is supposed to prevent disability then the following should be looked at.

For my next stroke I'm going to insist my doctor try a lot of these, if s/he doesn't know about them, they're fired.
What would probably make even more sense would be to prevent the neuronal cascade of death in the first week. Less dead and damaged neurons would directly result in better recoveries. Dr. Michael Tymianski, of the Toronto Western Hospital Research Institute in Canada mentions 1000 failed drugs that worked in rodents but failed in human trials. These probably need to be looked at again since it has now been proven that rodent inflammation is not the same as human inflammation. In my next stroke I have 31 possibilities that I will insist my doctor provide to me. Things like;
blood pressure cuffs in the ambulance ride

1. Statins.
2. Fish oil.
     either by injection
     or a feeding tube
3. Leg compressions
4. anti-depressants - real ones
5. music listening
6. Sensation overload
7. Coffee -
8. CerAxon
9. Peptide application
10. Action observation
11. bFGF administered intravenously
12. Viagra -
13. Training in lucid dreaming.
14. Eptifibatide
15. dietary olive leaf extract
16. ebselen - neuroprotective treatment? within 48 hours
17. diabetes drug linagliptin
18. Etazolate, an α-secretase activator
19. Glibenclamide - administered intravenously 6, 12, and 24 hours after reperfusion
20.   Paeoniflorin (PF) - PF treatment for 14 days
21. administration of nontoxic carbon particles
22. Ibuprofen
23. Ceria nanoparticles
24. Head-of-Bed Optimization of Elevation
25.   antibiotic minocycline
26.   neurotransmitter precursor levodopa
27.   Inhalation of nitric oxide
28. old flu drug amantadine
29. Melatonin
30.   opiate antagonists

All these are research documented in my blog.
All these have some research already backing them even if they have not been in human clinical trials. Its worth it to my brain to take some chances to save my neurons from dying from glutamate poisoning, excitotoxicity, Capillaries that don't open due to pericytes, Inflammatory action leaking through the blood brain barrier.

Thanks,

Dean Reinke writer and owner of Deans' Stroke Musings