Deans' stroke musings: Using Blogs to explore the lived experience of life after Stroke: 'A journey of discovery I never wanted to take

Changing stroke rehab and research worldwide now.Time is Brain! trillions and trillions of neurons that DIE each day because there are NO effective hyperacute therapies besides tPA(only 12% effective). I have 523 posts on hyperacute therapy, enough for researchers to spend decades proving them out. These are my personal ideas and blog on stroke rehabilitation and stroke research. Do not attempt any of these without checking with your medical provider. Unless you join me in agitating, when you need these therapies they won't be there.

What this blog is for:

My blog is not to help survivors recover, it is to have the 10 million yearly stroke survivors light fires underneath their doctors, stroke hospitals and stroke researchers to get stroke solved. 100% recovery. The stroke medical world is completely failing at that goal, they don't even have it as a goal. Shortly after getting out of the hospital and getting NO information on the process or protocols of stroke rehabilitation and recovery I started searching on the internet and found that no other survivor received useful information. This is an attempt to cover all stroke rehabilitation information that should be readily available to survivors so they can talk with informed knowledge to their medical staff. It lays out what needs to be done to get stroke survivors closer to 100% recovery. It's quite disgusting that this information is not available from every stroke association and doctors group.

Thursday, September 21, 2017

Using Blogs to explore the lived experience of life after Stroke: 'A journey of discovery I never wanted to take

I do wish they had identified the 8 blogs.
https://www.ncbi.nlm.nih.gov/pubmed/28910496

Thomas CM^1,², Allison R¹, Latour JM^3,⁴.

Author information

Abstract

AIMS:

To explore the lived-experiences of stroke survivors as expressed in blogs and to discover the role the blogs play in the writers' lives.

BACKGROUND:

Stroke can be a devastating, life changing event. Previous qualitative studies tend to examine one aspect of life after stroke. As stroke often has multiple effects it is necessary to look widely at its lived-experience. New resources which can enable researchers to explore the lived-experience of stroke are blogs.

DESIGN:

Phenomenological exploration using an interpretive thematic analysis.

METHODS:

The internet was searched for stroke survivors' blogs (January - March 2016) using pre-set criteria, seeking blogs with entries over an extended time (>1 year). Suitable blogs were identified and codes of meaning were identified and developed into categories, sub-themes and themes.

FINDINGS:

Eight blogs were identified for analysis. Of the 40 categories, eight sub-themes were assimilated; internal dialogue, emotions, transition, stroke effects, healthcare, 'in the world', relationships, rehabilitation. Two main themes were identified related to perspectives of lived-experience; Internal relationship with 'self' and External relationship with 'the world'. Participants expressed loss and initially strove to regain their 'old' lives, their focus being recovery and independence.

CONCLUSION:

Stroke survivors must transition from their previous life to a new and initially unwelcome way of being. Rehabilitation should respect this process and support stroke survivors as they undertake this individual journey. This article is protected by copyright. All rights reserved.