Changing stroke rehab and research worldwide now.Time is Brain! trillions and trillions of neurons that DIE each day because there are NO effective hyperacute therapies besides tPA(only 12% effective). I have 523 posts on hyperacute therapy, enough for researchers to spend decades proving them out. These are my personal ideas and blog on stroke rehabilitation and stroke research. Do not attempt any of these without checking with your medical provider. Unless you join me in agitating, when you need these therapies they won't be there.

What this blog is for:

My blog is not to help survivors recover, it is to have the 10 million yearly stroke survivors light fires underneath their doctors, stroke hospitals and stroke researchers to get stroke solved. 100% recovery. The stroke medical world is completely failing at that goal, they don't even have it as a goal. Shortly after getting out of the hospital and getting NO information on the process or protocols of stroke rehabilitation and recovery I started searching on the internet and found that no other survivor received useful information. This is an attempt to cover all stroke rehabilitation information that should be readily available to survivors so they can talk with informed knowledge to their medical staff. It lays out what needs to be done to get stroke survivors closer to 100% recovery. It's quite disgusting that this information is not available from every stroke association and doctors group.

Sunday, May 31, 2020

2020 AHA/ASA Measurement Set Specifications for Adult Stroke Rehabilitation and Recovery:

Please comment here, you have til June 5th. They need to hear from survivors that they are complete failures. Write again even if you already commented, they need to hear from us in full throated roar. 

My comment is below, make sure you mention 100% recovery and that this is all guidelines NOT PROTOCOLS.

2020 AHA/ASA Measurement Set Specifications for Adult Stroke Rehabilitation and Recovery: 

  • Clinical Performance Measures for Healthcare Professionals From the American Heart Association/American Stroke Association
  • Public Comment Period
    Friday May 8 – Friday June 5, 2020
    We would like to invite you to participate in the review of the draft 2020 AHA/ASA Measurement Set Specifications for Adult Stroke Rehabilitation and Recovery. This initiative aims to provide a standardized set of performance measures specific to adult stroke rehabilitation while helping to accomplish AHA/ASA’s mission of being a relentless force for a world of longer, healthier lives.
    My comment, I put it in the last box.

    If you are the one of the 1 in 4 that the WHO suggests will have a stroke, is there anything in here that will guarantee that you will 100% recover? I see nothing here that suggests that anything is being done to stop the neuronal cascade of death in the first week. Neuroprotection doesn't convey any sense of urgency. Rockefeller University in January 2009 named it the cascade of death. That sounds urgent, especially if your doctor tells you they can do nothing to stop that cascade of death. 

    With only 10% getting to full recovery thru rehab something new needs to be tried and all this is old and barely works.  At what point will you acknowledge than 10% full recovery is appalling failure and work on solving the neuronal cascade of death? By fixing at least these five known causes:

    5.  Lysosomal Membrane Permeabilization as a Key Player in Brain Ischemic Cell Death: a “Lysosomocentric” Hypothesis for Ischemic Brain Damage

    All this is measuring is processes, not results. Management 101 would never allow goals of processes, They would always demand results be measured.

    So I consider everything in here a failure.


    If you don't know of me you should, I write Deans' Stroke Musings

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