Changing stroke rehab and research worldwide now.Time is Brain! trillions and trillions of neurons that DIE each day because there are NO effective hyperacute therapies besides tPA(only 12% effective). I have 523 posts on hyperacute therapy, enough for researchers to spend decades proving them out. These are my personal ideas and blog on stroke rehabilitation and stroke research. Do not attempt any of these without checking with your medical provider. Unless you join me in agitating, when you need these therapies they won't be there.

What this blog is for:

My blog is not to help survivors recover, it is to have the 10 million yearly stroke survivors light fires underneath their doctors, stroke hospitals and stroke researchers to get stroke solved. 100% recovery. The stroke medical world is completely failing at that goal, they don't even have it as a goal. Shortly after getting out of the hospital and getting NO information on the process or protocols of stroke rehabilitation and recovery I started searching on the internet and found that no other survivor received useful information. This is an attempt to cover all stroke rehabilitation information that should be readily available to survivors so they can talk with informed knowledge to their medical staff. It lays out what needs to be done to get stroke survivors closer to 100% recovery. It's quite disgusting that this information is not available from every stroke association and doctors group.

Wednesday, September 28, 2022

Virtual Events: UCL World Stroke Day Forum 2022 - October 17-27;

 Sign up and keep asking whom is doing the research for 100% recovery. Don't let them derail you off that line of questioning. They'll sputter and bring up that you should accept their tyranny of low expectations. Keep hammering the 100% recovery until they answer to your satisfaction. Let them hear loud and clear from pissed off survivors.

Virtual Events: UCL World Stroke Day Forum 2022

UCL World Stroke Day Forum aims to empower stroke survivors to influence the future of stroke research and rehabilitation at UCL.

When and where

Register here: 

Date and time

Location

Online

About this event

Now in its fifth year, UCL World Stroke Day Forum will take place in a hybrid format.

A collaboration of UCL research groups and stroke charities to produce an exciting programme of sessions, designed to encourage conversation between researchers, clinicians, charities and stroke survivors.

Programme of Events:

How Technological Advancements Boost Recovery After Stroke

17th October 2022 : 11am - 12pm

In the heart of UCL’s Queen Square, researchers are reimagining stroke recovery. While the COVID-19 pandemic has in many ways been difficult for stroke survivors, the past 18 months has accelerated the development of several new technologies designed to improve stroke care, treatment and rehabilitation.

The session will begin with a short film, documenting how these technological innovations in robotics have enabled a rapid response to public health crises. This will be followed by a panel Q&A featuring Dr Rob Simister, Dr Peter Snow and charity the Neurological Alliance.

Discovery Research: How researching the brain post-stroke improves wellbeing

18th October 2022 : 11am - 12pm

It can take several years and significant funding to make small steps of progress in science. Yet studies that focus on the intricate details can lead to big changes in the long term.

Join us for a screening of a short documentary exploring how improving our understanding of basic processes, such as how thoughts turn into actions, can revolutionise rehabilitation and predict language recovery after stroke.

This will be followed by a panel discussion, featuring UCL researchers . You will have the opportunity to ask questions and hear about how discovery research benefits the most important stakeholders: stroke survivors.

Rehabilitation Apps Aiding Recovery From Home

20th October 2022 : 11 am - 12pm

Research suggests that stroke survivors typically require 100 hours of Speech and Language therapy to see a marked improvement in their recovery. Yet NHS therapy services are only able to provide a fraction of this, with the COVID-19 pandemic introducing further barriers by further barriers by limiting or removing access to in-person therapies.

This session will begin with a short film that explores some of the latest app-based rehabilitation tools designed to improve outcomes using technology. This will be followed by a panel Q&A featuring Prof Alex Leff, Prof Carolyn Bruce, Prof Rosemary Varley.

It's Never Too Late For Recovery: How New Models of Rehabilitation are Helping Stroke Survivors Years After a Stroke

27th October 2022: 11 am - 12pm

Stroke survivors can sometimes feel that once their NHS-prescribed rehabilitation is complete, their recovery reaches its endpoint. But researchers at UCL’s Queen Square and stroke charities across the UK are working to change this through new models of rehabilitation ranging from intensive in-person therapy to digital neurorehabilitation in the home.

UCL World Stroke Day Forum 2022 presents a short documentary exploring how new reframing rehabilitation can help stroke survivors see improvements even years after a stroke.

This will be followed by an interactive panel discussion featuring UCL’s Prof Jenny Crinion and Prof Nick Ward.

No comments:

Post a Comment